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Showing posts from September, 2014

Long Beach Sand in Our Shoes

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Living in a beachfront community, there is a common phrase, "I've got sand in my shoes."  It's more than a literal reference to the actual sand that is in your shoes more often than not.  It is representative of the beach being part of you - going with you wherever you go. Our family has Long Beach sand in our shoes, and we always will.  No matter where life takes us. When Ty was home on hospice care, some great friends from Long Beach were coming up for a visit and Lou asked them to bring a bottle of water from the ocean, and a jar of sand from the beach.  He kept it in his closet.  I didn't know why. When we laid Ty in his casket, he was dressed in a white three-piece suit, and a blue handkerchief - his hair was perfect, his feet were bare.  Then Lou pulled out the box from his closet.  He poured the sand over Ty's bare feet, followed by the ocean water.  We believed he was free to go back to the beach, and we found peace knowing he was going to rest w

Nothing gold can stay

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Nature’s first green is gold, Her hardest hue to hold. Her early leaf’s a flower; But only so an hour. Then leaf subsides to leaf. So Eden sank to grief, So dawn goes down to day. Nothing gold can stay. - Robert Frost I don't think there could be a better color to represent childhood cancer.  Children, in all of their beauty, purity and innocence, are truly golden.  When a poor child is diagnosed with cancer, he or she is immediately robbed of this, while forced to face pain, fear and realities that grown men and women can barely even cope with. When Gavin bumps his head badly, or skins his knee, or gets a shot at the doctor's office - I coddle him and I try to comfort him with every remedy possible.  Yet, in my mind I know what real pain looks like to a five year old.  I think to myself "sweet little man, you have no idea, thank God"  And for that, I am grateful.  He is still gold and I want him to hold onto that for as long as he possibly can. I want him

GOING GOLD and The Long Beach Luau

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The Long Beach Luau is less than two weeks away.  We hope you will get your tickets!  Finally, the TLC Foundation is bringing an annual fundraising event to Long Island.  It will be fun for the entire family.  A wonderful way to say goodbye to summer. Thank you, Brother Jimmy's and The Sands , for hosting this incredible beachfront event.  The food will be amazing, as will the entertainment.  Please join us. GET TICKETS HERE:   www.tylouisluau.eventbrite.com In the meantime, September is in full swing and we couldn't be more excited about the incredible campaigns taking place.  This weekend, alone, the adorable Bella hosted a lemonade stand for the TLC Foundation during Pawling's neighborhood tag sale, and the Westlake Wildcats went gold for the second year in a row (check out those socks and bows)!  Arlington High School will be wearing gold shoelaces, and Carmel High School is dedicating September fundraising efforts in support of TLC.  And the list goes on...

Thank you, Empire State Building

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“Thank you, Empire State Building. Your refusal to support the childhood cancer community has only created a firestorm of support.  The kind of support we have been rallying for over decades!  Your grossly insensitive decision, and the following bad press that accompanied it, has only helped our cause and raised childhood cancer awareness across our beloved city and beyond.  So, for that and only that, I thank you.  For anyone who doesn't understand where this message stems from, let me back up a bit.   September is childhood cancer awareness month, and the awareness movement is represented by a gold ribbon.   This is my son, Ty.   He died of cancer 13 days after his fifth birthday.   He was the one, out of every 300 children, who was suddenly and inexplicably diagnosed with cancer.   He deserves your attention and support.   They all do.     Over the past five years, I have watched a lot of failed awareness efforts unfold across the childhood cancer commun