Tuesday, September 19, 2017

The Changing of the Signs

The annual Muddy Puddles “Mess Fest” wasn’t created just because Ty wanted to jump in a muddy puddle. It’s also because Liam never had the chance to ride a zip line. It’s because when Brynlee had low immunity, she couldn’t go near anything “messy” and fun. It’s because when Riley was in the hospital he passed the time making goop, and because Jared would love to try the climbing wall but his treatment left him too weak. 

Every activity hosted at the Mess Fest is planned and executed with the children in mind. We dedicate each one in honor… or in memory… of a child that has been impacted by a cancer diagnosis. We do this because it is most important that everyone attending the event remembers how this event came to fruition, and the underlying reason why they are there.  We make a sign for each child that includes a photo, age, type of cancer, and whether or not the child is a survivor, a fighter, or a forever child (for example, Ty passed away when he was five, so he is listed as “Forever 5.”).


The TLC Board of Directors and the close-knit team of Mess Fest volunteers have all gotten to know the different children, even if just from having the hard-earned responsibility of handling the signs. We talk about them around the office when we hear updates on any one of our “kids,” and each and every sign is handled with our utmost loving care. The signs can get messy at the event, with mud splatters, food from the food fight, finger paint splashes, etc… and when we wipe them down we run a washcloth over the faces of these children as if they are our own kids needing a gentle but proper cleaning.

Each year, we also have to inventory the signs and make updates. On one hand, we marvel at how much the kids have grown. For example, Dylan was 8 when we made his original sign. He has since had 3 more surgeries to remove new tumor growth and address infectious complications, yet he recently won the roller hockey championship in his league on Long Island and we will update his sign to read “12 years old” for next year’s event (he celebrated his 11th birthday at Mess Fest this year). He amazes us.


 On the other hand, some of the signs need to be updated to “forever’ signs, and those are the signs that break us. This year I had to make new signs for Brooke, Leslie, Ava, Trucker and more. I have to go into the file on my desk, delete the existing words and write “forever.” When the new signs arrive, I have to find the nerve to dispose of the previous signs without breaking down (which, is easier said than done). This year I struggled and cried when I came across Tessa’s sign just days before the event and realized her forever sign wouldn’t arrive in time. Questions like “Do I leave her sign down this year, cover the status, or leave it as is?” swam in my mind with tears forming in my eyes. I decided I simply couldn’t leave her out, but when I tried to cover up the word “fighter” I felt nauseated. So, I decided her beautiful sign would be proudly displayed as-is, and I would have an updated version for next year.


Three years ago, there were two little girls in treatment for brain tumors and I followed their stories on social media religiously. Ellie and Kai. They were close in age to when my own son was diagnosed, and I relived every happy (and horrific) experience as they walked down a path I am all-too-familiar with. I admired how their moms were so active in their care, and progressive about treatment options. I hoped with all the hope in my heart that they would both thrive against cancer, and I couldn’t wait to dedicate an activity at Mess Fest in their honor.

I got photos from their moms, and we agreed that it would be sweet to dedicate the same area to both girls because they knew one another from the hospital. I decided it would be absolutely adorable to envision them both in the mud kitchen, side-by-side making mud pies. And that is where their signs have been displayed ever since.


This year, both Ellie and Kai were changed to “forever” signs.

I beg of you, as parents, to remember the signs. Remember that there are so many children in treatment who can’t have the childhood they deserve. Let your kids get wild and messy sometimes, and take a step back to enjoy the moment yourself. Donate, because we can’t stop fighting for these kids until there is a cure. Share this blog and ask others to donate, too. How my heart explodes to see Gretchen and Addie playing in the mud kitchen in memory of Kai and Ellie.



Back-to-school is here and life is crazy… but I hope you will remind yourself that moments like this are what’s most important. September is childhood chancer awareness month. We hope you will read, share, care and be aware. Donate today! #curechildhoodcancer #childhoodcancerawarenessmonth #muddypuddles #cancerisnotachildhood

11 comments:



  1. My name is Ruth Moore , Am from UK,i never believe there will ever be a solution to my relationship problem with my lover. my lover called smith Moore threw me out of his house and brought in another lady who he now feels the only best for him. until one day i receive a phone call from a friend in the city that my man is going out on a date with another woman in town, i told her i am also surprise too, because since smith Moore has left me he hardly think nor call me. so after some few days my friend called Martha called me and told me that she has found a man that is very powerful, and he is a great herbalist from Africa, truly we all knows that Africans are blessed with so much herbal voodoo powers which they use to help much people, so he told me that the man name is prophet oyinbo , that she will forward his email address for me so that i can contact him for help, so truly she sent me prophet oyinbo email address and i contacted him that faithful day. he mailed me after a great while that my man will be back to me if only i believe on his work,so after 25hrs i receive a phone call from smith Moore, and he started begging that i should please forgive him against all he had done to me.. he begged me of breaking my heart and letting the other lady a new heart. he promise me never to let go. now i and Smith Moore are now planning to get married as soon as possible. we are brought back with the great powerful love spell and blinded with prophet oyinbo spell, we are happy and glad. so i thank you sir for the great help you offer to me, because i think today this might be the only ways and means i can ever thank you of your work.. i am glad. you can contact him for a love spell today at: prophetoyinbojesus@gmail.com or you can call him at +2348074066640


    ReplyDelete
    Replies
    1. I AM SO HAPPY DR TRUST, MY HUSBAND IS BACK.

      I completely trusted Dr Trust totally from the time I spoke with him during the period my husband Left me after 11 years of our marriage, He started the spell work on my husband, and gave me so much assurance and guaranteed me that he was going to bring my husband back to my feet in just 48 hours of the spell casting. I was so confident in his work and just as he said in the beginning, my husband is finally back to me again, yes he is back with all his hearts, Love, care, emotions and flowers and things are better now. I would have no hesitation to recommend this powerful spell caster to anybody who is in need of help.. E-mail Ultimatespellcast@gmail.com or Ultimatespellcast@gmail.com his website: https://utimatespellcaster.com

      WhatApp or call him +2348156885231

      Do accept my gratitude sir.

      Delete
    2. DIVORCE AND MARITAL BREAKTHROUGH

      It all started when my husband cheated on me with another woman unknowing to him that the woman is a wizard, the woman castes a spell on my husband which made my husband change his feelings towards me and the kids and broke our 6 years marriage. i was confused and stressed because of the pains of being a single mother, when i called a friend and explained my marital challenges to her, she instructed and directed me to contact a great powerful spell caster called Dr. Ugo Wonders living in Florida. i contacted Dr. Ugo and explained my problems, he assured me his help and it was 100% guaranteed. i provided the materials for the spell and in 48 hours, after Dr Ugo Wonders of generalspelltemple@gmail.com finished casting the spell, my husband was free from the evil woman spell and he came back home to us a day after begging us to forgive him. i was so shocked and short of words and here i am today happily testifying so the world can know how this great man helped me with his real powerful spell.
      To every one with marital problem, divorce issues, lost lover or any relationship related issues, you can contact Dr. Ugo wonders the ultimate spell caster via his email address generalspelltemple@gmail.com or call his mobile number directly on +13863369876


      DIVORCE AND MARITAL BREAKTHROUGH

      It all started when my husband cheated on me with another woman unknowing to him that the woman is a wizard, the woman castes a spell on my husband which made my husband change his feelings towards me and the kids and broke our 6 years marriage. i was confused and stressed because of the pains of being a single mother, when i called a friend and explained my marital challenges to her, she instructed and directed me to contact a great powerful spell caster called Dr. Ugo Wonders living in Florida. i contacted Dr. Ugo and explained my problems, he assured me his help and it was 100% guaranteed. i provided the materials for the spell and in 48 hours, after Dr Ugo Wonders of generalspelltemple@gmail.com finished casting the spell, my husband was free from the evil woman spell and he came back home to us a day after begging us to forgive him. i was so shocked and short of words and here i am today happily testifying so the world can know how this great man helped me with his real powerful spell.
      To every one with marital problem, divorce issues, lost lover or any relationship related issues, you can contact Dr. Ugo wonders the ultimate spell caster via his email address generalspelltemple@gmail.com or call his mobile number directly on +13863369876

      Delete
    3. Name: moore kathleen
      Location: Brooklyn New York
      D.O.B: 12/12/1984
      Address 75 COOPERAGE STREET APT #502 TORONTO, ONTARIO M5A0J5

      GET YOUR EX BACK WITH THE HELP GREAT SPELL CASTER CALLED DR
      SAMBO VISIT HIS WEBSITE BELOW

      Good day to you all , my name is moore kathleen i want to share a brief testimony on how Great Dr Sambo helped me re-unite my long gone relationship . I thought I have lost it all until I saw a post about this great spell caster called Dr Sambo , I contacted him and told him about my story “few years ago , my husband and I were deeply in love I thought life was that easy , because I was with the man of my dream , until his secretary took him from me , he stopped loving me ,we separated because of the incidence , I couldn't take it any-more , I count live with him know he has someone else out there , but I still loved him . until few week back I contacted Great Dr Sambo who helped me bring back my long gone husband , he apologized to me and each day that passes he love me more . if you are out there , because I know a lot of people are experiencing difficulties in their marriage or any form of relationship , just contact Dr Sambo and he will definitely help you as he has done for me here are his details .

      Email Add: Divinespellhome@gmail.com
      Email Add: Divinespellhome@yahoo.com
      Phone : +2348039456308

      THIS GREAT SPELL CASTER IS TESTED , TRUSTED AND 100% GUARANTEED . HE WILL DEFINITELY HELP YOU .

      Delete


  2. My name is Ruth Moore , Am from UK,i never believe there will ever be a solution to my relationship problem with my lover. my lover called smith Moore threw me out of his house and brought in another lady who he now feels the only best for him. until one day i receive a phone call from a friend in the city that my man is going out on a date with another woman in town, i told her i am also surprise too, because since smith Moore has left me he hardly think nor call me. so after some few days my friend called Martha called me and told me that she has found a man that is very powerful, and he is a great herbalist from Africa, truly we all knows that Africans are blessed with so much herbal voodoo powers which they use to help much people, so he told me that the man name is prophet oyinbo , that she will forward his email address for me so that i can contact him for help, so truly she sent me prophet oyinbo email address and i contacted him that faithful day. he mailed me after a great while that my man will be back to me if only i believe on his work,so after 25hrs i receive a phone call from smith Moore, and he started begging that i should please forgive him against all he had done to me.. he begged me of breaking my heart and letting the other lady a new heart. he promise me never to let go. now i and Smith Moore are now planning to get married as soon as possible. we are brought back with the great powerful love spell and blinded with prophet oyinbo spell, we are happy and glad. so i thank you sir for the great help you offer to me, because i think today this might be the only ways and means i can ever thank you of your work.. i am glad. you can contact him for a love spell today at: prophetoyinbojesus@gmail.com or you can call him at +2348074066640


    ReplyDelete
  3. Hi,

    Sweet Ty, Sweet Ellie and Kai and other kids is always in our hearts and minds. They were real Warriors! I hope that some day somebody makes a solution to cure all cancer disease. Until then we have to make these kids lives better. I'll send all my prayers and hugs to you Cindy and your family and all these kids whom fighting against cancer.

    // Johanna from Finland

    ReplyDelete
  4. MY EX IS FINALLY BACK TO ME

    I was so depressed when my ex left me for another woman. it made me felt like i was not relevant and my heart and love life was seriously destroyed. i could not concentrate in anything i was doing. i went online and searched for help but could not find any genuine spell caster until i went to Ocala Florida to visit my aunt to ease the depression and loneliness. when i got to Florida, i explained to my aunt who then felt pity for me and told me the secret she have not told anyone about the success in her marriage with her man. she then took me to the temple of powerful Dr. Ugo Wonders whom i met and explained my problems to. he promised to help me because of my aunt. i trusted his words and provided him with the materials needed to help me get my ex back and to my greatest surprise, after 48 hours of casting the spell, my Ex cam back on his knees begging for me to forgive him. i was shocked and surprised at the magic. we are happily married now and everything is working fine with us.I promised Dr. Ugo that i will never keep this a secret because he brought back my life and my world and that i will hare my testimony to the general public.
    My advice goes to any one out there who is emotionally depressed or having any similar relationship problem, to contact Dr. Ugo wonders the ultimate spell caster via his direct email generalspelltemple@gmail.com or call his temple line on +1 386-336-9876 he is the best in Florida....



    MY EX IS FINALLY BACK TO ME

    I was so depressed when my ex left me for another woman. it made me felt like i was not relevant and my heart and love life was seriously destroyed. i could not concentrate in anything i was doing. i went online and searched for help but could not find any genuine spell caster until i went to Ocala Florida to visit my aunt to ease the depression and loneliness. when i got to Florida, i explained to my aunt who then felt pity for me and told me the secret she have not told anyone about the success in her marriage with her man. she then took me to the temple of powerful Dr. Ugo Wonders whom i met and explained my problems to. he promised to help me because of my aunt. i trusted his words and provided him with the materials needed to help me get my ex back and to my greatest surprise, after 48 hours of casting the spell, my Ex cam back on his knees begging for me to forgive him. i was shocked and surprised at the magic. we are happily married now and everything is working fine with us.I promised Dr. Ugo that i will never keep this a secret because he brought back my life and my world and that i will hare my testimony to the general public.
    My advice goes to any one out there who is emotionally depressed or having any similar relationship problem, to contact Dr. Ugo wonders the ultimate spell caster via his direct email generalspelltemple@gmail.com or call his temple line on +1 386-336-9876 he is the best in Florida....

    ReplyDelete
  5. Hi all, Read my testimony! Getting ex back after a breakup. My boyfriend of a 2 year just broke up with me and am 28 weeks pregnant. I have cried myself to sleep most of the nights and don’t seem to concentrate during lectures sometimes I stay awake almost all night thinking about him and start to cry all over again. Because of this I end up not having energy for my next day’s classes, my attendance has dropped and am always in uni and on time. Generally he is a very nice guy, he ended it because he said we were arguing a lot and not getting along. He is right we've been arguing during the pregnancy a lot. After the break up I kept ringing him and telling him I will change. I am in love with this guy and he is the best guy I have ever been with. I’m still hurt and in disbelief when he said he didn't have any romantic feelings towards me anymore that hurt me faster than a lethal syringe. He texts me once and then mainly to check up on how am doing with the pregnancy, he is supportive with it but it’s not fair on me, him texting me as I just want to grieve the pain and not have any stress due to the pregnancy. I was really upset and I needed help, so I searched for help online and I came across a website that suggested that Dr Ahmed can help solve marital problems, restore broken relationships and so on. So I felt I should give him a try. I contacted him and he told me what to do and I did it then he did a spell for me. 28 hours later, my boyfriend came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my boyfriend are living together happily again.. All thanks to Dr Ahmed. as it is a place to resolve marriage/relationship issues, do you want to be sure if your spouse is being faithful to you or Do you want your Ex to come back to you Contact.: E-mail: Ahmedutimate@gmail.com call/whatsapp: +2348160153829 save your crumbling home. I suggest you contact him. He will not disappoint you.

    ReplyDelete
  6. Get Back With Your Ex Now Urgent Spell Caster Online That Guarantee And Work Fast marriage problem, am missy stone from atlanta georgia usa my husband and i were happily married for 3 years. and i caught him cheating with another woman for over 2 months. i was devastated. and I was in such a mental condition, that I called his parents up and said everything. I pleaded him and asked him what went wrong in our marriage. but he denied to tell me anything. he said he want a divorce. and his new gf called me up each day and abused me verbally. i was trying to move on. but the love i have for him was too much. i was frustrated. looking for help to get my husband back one day looking on my internet i come across a product of a page and graphic of love spell on how to get ex back,stop your husband for cheating, restored broken marriage and stop divorced also get your wife back. so i have no choice coz i love my husband and i want him back from that woman i directly give a contact on this product graphic page, and to the promise of it,after the love spell my husband call me,text me and i I replied him as I would never accept him. but he continues begging seeking for apology. for what he did to me, meanwhile my husband sends me friend requests on Facebook… and calls me up the other day.and i respond to him, with this i was so very happy that my husband really change for the bad he was to see me back as his only one lovely wife so that is how i gave him another chance? all thanks to this product page and graphic love spell coz it really help and work for me i promise to keep sharing his page if you have any similar problem as my, have a hard time of getting your husband back, ex bf back, save your marriage, i will advise you to try this same, on Dr happy product page and graphic love spell directly on his email happylovespell2@gmail.com also add him on whats-app +2348133873774

    ReplyDelete
  7. Hello I'm Alexandria, I read some testimonies about a love spell caster by Dr.Unity on how he has helped lots of people in bringing back their ex lovers within some hours, Sincerely I was just thinking if that was real and if this man could really help bring back my lover whom I love so much. I decided to contact him because I love my boyfriend very much and we have been apart for a couple of months I really missed him so much, I have tried all other means to get him back but couldn’t.I contacted Dr.Unity and he told me that my ex will come back to me in the next 11 hours, Dr.Unity released him up to know how much i loved and wanted him. And opened his eyes to picture how much we have share together. My ex is now back to me again.As I`m writing this testimony right now I`m the most happiest lady on earth and me and my boyfriend is living a happy life and our love is now stronger than how it were even before our break up.All thanks goes to GOD and Dr.Unity for the excessive work that he has done for me by helping me to get back with my ex boyfriend. I would like to drop Dr.Unity mail address and hope you see this testimony and contact him if you have any problem and i guarantee you that he will help you. Here’s his contact..
    Email him at: Unityspelltemple@gmail.com ,
    you can also call him or add him on whats-app:+2348071622464,
    or view his website:https://unitysspelltemple.blogspot.com.

    ReplyDelete
  8. Name: moore kathleen
    Location: Brooklyn New York
    D.O.B: 12/12/1984
    Address 75 COOPERAGE STREET APT #502 TORONTO, ONTARIO M5A0J5

    GET YOUR EX BACK WITH THE HELP GREAT SPELL CASTER CALLED DR
    SAMBO VISIT HIS WEBSITE BELOW

    Good day to you all , my name is moore kathleen i want to share a brief testimony on how Great Dr Sambo helped me re-unite my long gone relationship . I thought I have lost it all until I saw a post about this great spell caster called Dr Sambo , I contacted him and told him about my story “few years ago , my husband and I were deeply in love I thought life was that easy , because I was with the man of my dream , until his secretary took him from me , he stopped loving me ,we separated because of the incidence , I couldn't take it any-more , I count live with him know he has someone else out there , but I still loved him . until few week back I contacted Great Dr Sambo who helped me bring back my long gone husband , he apologized to me and each day that passes he love me more . if you are out there , because I know a lot of people are experiencing difficulties in their marriage or any form of relationship , just contact Dr Sambo and he will definitely help you as he has done for me here are his details .

    Email Add: Divinespellhome@gmail.com
    Email Add: Divinespellhome@yahoo.com
    Phone : +2348039456308

    THIS GREAT SPELL CASTER IS TESTED , TRUSTED AND 100% GUARANTEED . HE WILL DEFINITELY HELP YOU .

    ReplyDelete