Thursday, December 24, 2015

Coping with his absence at Crimpy time

Holidays are built on tradition.  They come with a host of annual rituals that stir up all sorts of long-term memories from as far back as early childhood (when I got a “Baby This N’ That” from Santa), and as recent as just last year (when I failed at cookie decorating).  I remember who gave me almost every ornament on my tree.  I chuckle every time I count the 11 “Baby’s First Christmas” ornaments we have for Ty, and only one we received for Gavin.  Sorry Gavin, it’s just a fact of life when you are not the first-born.

Then there are his ornaments.  The one he picked out when we were on our Make A Wish trip in Disney.  The ones where a bear holds a number for each Christmas he celebrated with us, but the numbers stop at “5”.  The ones that adorn his beautiful photos with sentiments such as, “always in our hearts,” and “Christmas in Heaven.”  I seriously don’t know how we survive tree trimming each year.  Every ornament I pull from the box stabs a bit harder and stings a bit sharper than the last.  Even the happiest of memories are juxtaposed with the reality of how much things have changed.  

Our house is decorated.  It is beautiful and festive, and if you didn’t know better it would feel oh so merry and bright when you walk through our front door.  But that’s because the extra stocking on the mantle goes unnoticed to most. 

This will be our fourth Christmas without Ty, and I can’t remember a single thing about the first Christmas without him.  Not one.  Gavin was 3 ½ years old, I know that, and he was probably just starting to take notice of the holiday magic, but I was too absent to witness any of it. My body was there, but my heart and soul were elsewhere.  I know we got a tree, but I can’t remember doing so.  I suppose we decorated it, but I can’t imagine how.   Slowly, I am trying to rebuild family traditions that honor Ty’s memory without being mired in sorrow.  But to be honest, I still find it pretty impossible.  I am much better at coping with his absence, but it doesn’t make it any less painful.  It’s just different now. 

We continue to hang Ty’s stocking next to his brother’s.  Each year it is too difficult to imagine placing it back in the box, yet seeing it hanging there every day is equally cruel.  I will fill it with his favorite candy from Santa Clause as I have done every year, but on Christmas morning it is a strange and uneasy feeling when we have to unpack it ourselves, and the candy sits uneaten in my pantry for months afterward until one day I toss it out quickly and without question in a moment of strength. 

I wonder what Ty would want for Christmas this year.  What pages would he be folding in his toy books?  He would be 8 years old, and I don’t know what his eight-year-old voice would even sound like.  So I playback his squeaky four-year-old voice in my head and I hear his giggle when he announces “Bow and Arrow!  Guns!”  He loved the rise it would get out of me. 

So this year I didn’t resist when I saw the totally awesome bow and arrow at the toy store (Nerf, don’t worry).  I bought it for Ty without question, and that secret was mine and only mine as I continued to walk the aisles and unload at the register.  Later in the week Lou and I were talking about how we can honor him on Christmas morning.  We decided that we will watch some of his home videos before opening presents (something Gavin may end up bringing to his therapist later in life along with a long list of other things), and we will wrap the bow and arrow as a gift for Gavin… from Ty.  I am pleased with this.  I hope to give Gavin a gift “from Ty” every year from now on.  Something that is meant for Ty, but equally fun for his little brother to play with in his memory. 

Christmastime, 3 years old.  Ty pointing to the present he wants to open.  Look at that smile!

When I was searching my photos over the years, I relived the holidays from 2010 - 2012 and for the first time it occurred to me how blessed we were with having truly wonderful, happy, magical Christmases.  Easter, on the other hand, was always the worst.  Christmas was our most joyous holiday, he was feeling good and happy as can be.  Every Easter he was so sick, and endured such suffering.  Reflecting on this now, I find it so very poignant.

This time of year I am reminded of the reason for the season, but as much as I love and trust in God, I will never be able to stop asking, “why?” I used to pray to Mother Mary with such passion, and her statue at the church always looked at me with sadness and above all, sympathy.  Her eyes told me, “I know, I watched my son suffer, too.”  But they never told me, “it will be okay.”  I searched her face for reassurance.  I begged and pleaded.  But I never saw anything but, “I’m sorry.” 

When I cried to her I would tell her that I’m not strong like her.  That I can’t bear to lose him and if I had the choice to save all of mankind or save my son, I would choose my son.  Because that is how selfish I am.  I should be embarrassed by that truth, but there is no pretending when it comes to prayer.  I had no choice but to lay it all out there, admit I am flawed, and beg for my son to be cured.  I never prayed for anything so hard in my life. 


I don’t ask God for anything anymore, because it hasn't worked out for me.  I have vowed to simply trust in God and stop asking.  Instead, I say a prayer of thanks every night. Even on my worst days, I am grateful for my family, and for the time I had with Ty.  I'm grateful for my Christmas memories with the best good boy in the whole wide world.  I’m grateful for the roof over my head and the food on my table.  My son suffers no more, and I know that.  I am coming to terms with living this life without him.  I value my time here on earth, I adore every minute I have with Gavin, and I absolutely love what we are doing at the TLC Foundation – my happy place.  And when my time comes, I will have the greatest reward waiting for me.  It is that truth that keeps me going.  Merry Crimpy everybody.  XOXO.  
  

14 comments:

  1. I never prayed so hard for anything in my life either. Thank you for sharing Ty. A peaceful Christmas to you Cindy.

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  2. Merry Christmas to your family. I too live with an empty spot on my mantel. I'm sorry to say it doesn't get easier, but those memories are still a gift. prayers and hugs

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  3. How is it possible to love a family that I do not personally know? Your baby is that special, Cindy. I can't imagine what you experience every day in his absence, but you and Lou and Gavin and Ty have made me love my own family in a different way. Your rawness and vulnerability are breathtaking, and it is doing good in ways you don't even realize. Merry Christmas Campbells. You all hold a place in my heart.

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  4. So many people prayed for Ty, myself included and I will honestly say, I was not one for prayer -ever, rarely. But I prayed for 2 years, every day. Merry Christmas Cindy. I think of you always. . .

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  5. I don't know what to say, really. I feel I've said it all before in past comments, etc. I just wanted to let you know that even though we've never even spoken, and I never met Ty, years later, you're all still on my mind and in my prayers. Ty made such a difference. He was no doubt a very, very special little boy. Merry Christmas to all of you. <3

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  6. I came here to see how you are doing, as I was thinking of you -- in the quiet of Christmas Day night. Your words -- and the feelings behind them -- make my heart so very heavy for you ....and for the loss to the world of your beautiful Ty ~ Wishing you peace

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  7. Such a powerfully honest post, as always. I'm thinking of you, Ty, Gavin and Lou all the time even when I don't comment. God bless you all.

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  8. Ty touched so many lives and the TLC Foundation will continue to honor him by finding more suitable treatments. I have so much respect for you because,at your darkest hour, you chose to help others while suffering from such an incredible loss. I wish you, Lou, Gavin and all at the foundation a new year filled with peace.

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  9. Beautiful Ty, beautiful you. Thank you for sharing. I always think of you on Christmas morning. xoxoxo

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  10. Just wanted you to know you are thought of...you do such a great job at balancing things.

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  11. Cindy I am so sorry. I am sure you already know but its crazy to me how many people since hearing your story have similar words. Holly Berry lost her husband to cancer. She speaks beautiful as you do. Thank you for reminding us that cancer affects all of us humans. You are not alone and never will be

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  12. I too would pick my son over saving the world, I too would want my baby boy over anything else in the world - you are a mom, your babies are the most important thing to you. As moms we put our kids first. I hope you had a peaceful Christmas. No words to make it "better", but just wishing for strength, peace and happiness for you and your family in 2016.

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  13. I also prayed every night, bawling most times to God. I wanted that miracle for you and Ty desperately! My son was 4 then, he's 6 now and everytime it rains, he jumps into puddles points his finger to the sky and shouts very loudly..this is for you Ty!! (im usually smiling and crying watching this). He just mentioned Ty the other night and I love how though we have never met, your best good boy in the whole wide world captured our hearts and has never left. I think of you, Ty, Lou and Gavin daily. And I continue to pray for you. I sometimes sit and imagine how beautiful your reunion will be when that day comes..gives me chills! You are amazing and please never stop writing to us, I watch daily for your posts!

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  14. Without any doubt I choose Ty too. He is the most beautiful magical special boy in the world. He is the forever Peter Pan that has changed so many lives and brought blessings and hopes and smiles and tears to many faces. He did to mine. I can't believe it has been so many years. How is it possible?! I remember the picture of the book that came to your house when Ty passed and it had two big letters TY on it. It was surreal. I don't know where you get your strength to continue to keep all of us believing that no matter what but life is special and beautiful and all who knew Ty are truly blessed. I hope Gavin used his toy and was a bad boy shooting all around him. :)
    Missing you superTy.
    Tatiana

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