Thursday, May 3, 2012

> 36 hours - but who's counting

Lou spent the day with Ty today, and I had a much needed day at home to get things in order for Ty's big arrival!!  We will be doing our normal routine at the hospital tomorrow (oxygen at 8AM, school at 10:30, lunch at 11:30, PT and OT at 1:30, school again at 2:30 and speech at 3PM) then we have just one more night before we discharge upon leaving for oxygen treatment Friday morning.  Needless to say, I am very, very excited.  I have so much hope that being home will accelerate Ty's improvement because of all the good it will do him psychologically. 

Ty's head pain is really getting better.  Lou and I believe that he is virtually headache free these days with the exception of neck pain and muscle spasms.  We are planning on starting a very slow taper on the pain meds so he can get back to normal over time.  The only two things that have us worried now is (1) he has vomited about once a day for the past few days, and (2) at times he is still sweating profusely which is something that used to happen when he had tumor burden activating those signals from the brainstem area.  The nausea may be due to the fact that we just started his daily chemo again last week.  It may also be because his gag reflex is so weak (just like everything else).  I just wish I knew what was going on in that head of his - literally.

Otherwise, Lou says they had a really great day together.  I didn't get back until after Ty was sleeping this evening, but Lou posted this peaceful picture on Facebook.  Earlier today he interrupted Daddy while he was on the phone just to tell him "I lub lying in bed wit you."  Sweet!



I am too tired to share much more tonight, but I did want to make sure that i posted something about May being Brain Tumor Awareness month.  Well, it is, so please be aware and help to make others aware :)  After all, there are 130 different types of brain tumors.  That certainly makes diagnosis and treatment very difficult.  Brain tumors are so brutal because the smallest change can cause the most catastrophic results.  Paralysis, loss of vision, crossed eyes, intracranial pressure and a decline in vital signs.  It's horrifying.  When are we going to find a cure for cancer? 
Thank you for all of your love and support. 
Cindy

1 comment:

  1. Hope returning home starts to speed up his recovery. You should start a twitter account that way you can update your followers with quick little notes.. (just a thought)
    God Bless Ty and as always my prayers are with you guys

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