Ty's Story

On October 4, 2007, Ty Louis Campbell came into this world, and our lives changed forever. We never knew love like that before. Then, on August 11, 2010, our lives changed forever again. A mass was found at the base of his skull and Ty was later diagnosed with an extra renal rhabdoid tumor; a very rare and aggressive cancer. Since the diagnosis, we have been flooded with an outpouring of love and prayers. We created this page to keep our friends and family up to date on his progress, and to share our experience with our loved ones. Ty passed away on October 17, 2012, but his legacy lives on. Thank you all for your tremendous support.

Thursday, September 25, 2014

Long Beach Sand in Our Shoes

Living in a beachfront community, there is a common phrase, "I've got sand in my shoes."  It's more than a literal reference to the actual sand that is in your shoes more often than not.  It is representative of the beach being part of you - going with you wherever you go.

Our family has Long Beach sand in our shoes, and we always will.  No matter where life takes us.

When Ty was home on hospice care, some great friends from Long Beach were coming up for a visit and Lou asked them to bring a bottle of water from the ocean, and a jar of sand from the beach.  He kept it in his closet.  I didn't know why.

When we laid Ty in his casket, he was dressed in a white three-piece suit, and a blue handkerchief - his hair was perfect, his feet were bare.  Then Lou pulled out the box from his closet.  He poured the sand over Ty's bare feet, followed by the ocean water.  We believed he was free to go back to the beach, and we found peace knowing he was going to rest with Long Beach sand between his toes.

When we visited his statue after the Luau, I was prompted to photograph the beautiful seashells and lollipops that were left by his feet.  Thank you to all of our incredible friends who paid him an unprompted visit that day.  The way you remember him is what allows Lou and I to continue putting one foot in front of the other.  When I saw the sand between "his" toes, I was immediately reminded of his beautiful feet covered in sand and surf the very last time I kissed them goodbye.  Reliving that day is raw and painful, balanced by beauty and serenity.  I love that we were able to create this statue in his memory.  I love that he will always have Long Beach sand in his shoes. 

I took a walk around the neighborhood today and I became an emotional wreck after just one song on Pandora.  Sadly, I don't listen to much music since losing Ty - not even in the car - because every song, no matter how relevant or irrelevant, seems to trigger some kind of memories of Ty and I end up with tears in my eyes.  The song "Home" by Phillip Phillips doesn't have much significance other than the fact that it was wildly popular around the time Ty died, so when it came on this morning it triggered memories of driving in the car with Mely - heading to the TLC office after he passed away; then rewind to the day he died; relive the exact moment (which, by the way, happens all the time).  Then something happened that has never happened before....

There is a very light and beautiful harmony in that song.  A chorus where back-up singers are making lovely sounds, and all of a sudden I imagined Ty flying.  Soaring through the air with wind in his hair and OMG how he was laughing.  He would turn to look at me as if I was flying right next to him, and then turn sideways and tuck in his knees for a back-flip before zipping upwards into the sky.  Like he was Peter Pan! This vision felt so real, it was as if he was truly home.  That he was free and he was happy and he was not alone.  

I bawled.  I cried and I cried and I wished I had better prepared him to leave.  I thought about how I held onto hope until the very end because I just didn't want to let him go.  I feared that my barely five-year-old son was hanging on to his own painful life simply out of fear because he didn't want to leave me and Lou.  I always worry about him walking into Heaven alone.  I always wonder who was there to meet him?  If it was Granny, how would he even recognize her?  But then there he was, flying.  Like a little boy fulfilling his wildest dream.  His face, his smile, was that of a child who doesn't know pain anymore - like he never knew it at all,  

So, I leave you with that tonight.  I lost my son, the love of my life.  I am left here to be sad and that's okay, because he is soaring across the sky.  He is Peter Pan.  Maybe they all are.  Even Granny :)

Sunday, September 21, 2014

Nothing gold can stay

Nature’s first green is gold,
Her hardest hue to hold.
Her early leaf’s a flower;
But only so an hour.
Then leaf subsides to leaf.
So Eden sank to grief,
So dawn goes down to day.
Nothing gold can stay.
- Robert Frost

I don't think there could be a better color to represent childhood cancer.  Children, in all of their beauty, purity and innocence, are truly golden.  When a poor child is diagnosed with cancer, he or she is immediately robbed of this, while forced to face pain, fear and realities that grown men and women can barely even cope with.

When Gavin bumps his head badly, or skins his knee, or gets a shot at the doctor's office - I coddle him and I try to comfort him with every remedy possible.  Yet, in my mind I know what real pain looks like to a five year old.  I think to myself "sweet little man, you have no idea, thank God"  And for that, I am grateful.  He is still gold and I want him to hold onto that for as long as he possibly can. I want him to be a carefree kid and have incredible memories from his childhood.  I hope Lou and I find ways to create those for him.  Muddy Puddles!!

When I review the stats, I am in as much shock today as I was the moment I first became aware myself.  Ty was diagnosed in August 2010, and it wasn't until we checked into the clinic at Sloan Kettering that September that I saw my first gold ribbon.  It wasn't until then, that I was prompted to investigate more about childhood cancer in general because I had otherwise been focused solely on Ty's diagnosis.  It didn't occur to me that childhood cancer might be as common as it is; yet brushed under the rug time and time again when it comes to funding the research needed to advance toward a cure.

  • Cancer is the #1 disease killer among children in the US
  • Every three minutes, a child is diagnosed with cancer
  • One out of five children diagnosed with cancer in the US will die
  • Less than 4% of the government funds allocated to cancer research are put toward researching childhood cancers
  • Childhood cancer is under prioritized and grossly underfunded (which is why private, community non-profits like the TLC Foundation are so important to supplement that funding)
  • 9 out of 10 researchers agree that the lack of funding is the top barrier preventing them from finding treatments and cures for childhood cancer
  • The majority of childhood cancer survivors live with long-term effects post-treatment, many of which are life-threatening

And the list goes on and on.  This is why awareness is so important.  Awareness drives people to take action, and results in better funding for research.

This year, I am so happy to say that I have seen a huge positive shift.  I have seen various go gold initiatives making headway across uncharted territory.  I see more and more people sharing the facts and supporting the cause.  Even those are not forced into the world of childhood cancer due to a diagnosis, but who want to make a difference on behalf of all these kids even when the easier option is to look away.  It's beautiful.  The ripple effect makes me feel light and giddy and full of hope - as if I'm being doused with gold glitter, showering in the sparkle of it all.  Thank you so much for your beautiful support.

Over the weekend we hosted a beautiful beachfront fundraising event.  The Long Beach Luau was nothing short of perfect.  Before the start of the day, some incredible friends stopped by to put blue leis on Ty's statue - and when I returned there after the event he also had beautiful seashells and lollipops at his feet.  It was a celebration filled with nothing but fun, yet friends went out of their way to show us that they will always remember the real reason behind the day.  The little boy who inspired it all.  Look at those blue skies behind him.  It was the most breathtakingly beautiful day.

Ty worked a lot of magic that day, not the least of which was the weather.  We could not have wished for a more perfect day.  I believe some of the raffle winners were hand-picked by my angel, like the little girl who was in remission for Leukemia and dreaming of winning the American Girl doll raffle - you had to see her face when she won.  Or our friend who lost her bike to Hurricane Sandy and was saving up for a new one - she won the beach cruisers. At the close of the event the DJ played the same Hawaiian song that I made Ty's video to, and it almost brought me to my knees.  Thankfully, I held myself together and remembered that this was not going to end sad.  It was an amazing day.

We raised more than $10,000 for childhood cancer research in five hours.  It will never get old.  I will always find peace doing this for the next Ty Louis Campbell and keeping Ty's memory alive while doing so.  I am filled with such resolve, and such tremendous gratitude for another amazing day surrounded by incredible people.  Thank you.

I will follow up with loads of Luau photos over the next few days, and updates on Gavin.  Kindergarten life!  In the meantime, I want to leave you with this photo of Amelia.  She is pretty incredible.  Gold is beautiful.  Go Gold for Amelia, and always #SuperTy.

Sunday, September 7, 2014

GOING GOLD and The Long Beach Luau

The Long Beach Luau is less than two weeks away.  We hope you will get your tickets!  Finally, the TLC Foundation is bringing an annual fundraising event to Long Island.  It will be fun for the entire family.  A wonderful way to say goodbye to summer.

Thank you, Brother Jimmy's and The Sands, for hosting this incredible beachfront event.  The food will be amazing, as will the entertainment.  Please join us.

GET TICKETS HERE:  www.tylouisluau.eventbrite.com

In the meantime, September is in full swing and we couldn't be more excited about the incredible campaigns taking place.  This weekend, alone, the adorable Bella hosted a lemonade stand for the TLC Foundation during Pawling's neighborhood tag sale, and the Westlake Wildcats went gold for the second year in a row (check out those socks and bows)!  Arlington High School will be wearing gold shoelaces, and Carmel High School is dedicating September fundraising efforts in support of TLC.  And the list goes on...

You can get gold shoelaces and other SuperTy gear at the PRET*TY store at 30% off for the entire month of September.  http://prettystore.storenvy.com/  Enter promo code GoGold at checkout.

We are just so grateful.  All of these kids should be very proud of themselves for getting behind such an important cause and for making a difference!

Monday, September 1, 2014

Thank you, Empire State Building

“Thank you, Empire State Building. Your refusal to support the childhood cancer community has only created a firestorm of support.  The kind of support we have been rallying for over decades!  Your grossly insensitive decision, and the following bad press that accompanied it, has only helped our cause and raised childhood cancer awareness across our beloved city and beyond.  So, for that and only that, I thank you. 

For anyone who doesn't understand where this message stems from, let me back up a bit.  September is childhood cancer awareness month, and the awareness movement is represented by a gold ribbon.  This is my son, Ty.  He died of cancer 13 days after his fifth birthday.  He was the one, out of every 300 children, who was suddenly and inexplicably diagnosed with cancer.  He deserves your attention and support.  They all do.   

Over the past five years, I have watched a lot of failed awareness efforts unfold across the childhood cancer community. It seems the awareness efforts spread across the group of existing parent advocates who are already all-too aware of the realities of childhood cancer, but rarely reaches far beyond that audience.  I have read the long and tired debate over whether or not awareness is effective if it doesn’t result in action.  The bottom line, in my humble opinion, is that if new people become increasingly aware, many of them will be moved into action.  They will commit to donating, or doing something for the cause.  Can you imagine the increase in fundraising success that the breast cancer community has seen since the world started going Pink in October (and beyond)? 

Or consider the ALS Bucket Challenge.  Most people who participated also took the time to learn about this heartbreaking disease, and make a donation as well.  Last time I checked, they raised $14 Million as a result!  Yes, I think it’s fair to say that awareness results in action.  It is not a wasted effort – it is an important one. 

Inspired by the movement that turned the White House pink among hundreds of other renowned landmarks, the childhood cancer community has tried to emulate that success by asking those same buildings to go gold in September.  A petition was successfully submitted to the White House with the required 50,000 signatures in 2012, but it was later denied.  The Empire State Building has said “no” as well, for years on end… but this year, that denial has ignited a fire among us. 

A grieving dad named Tony Stoddard made it his promise to his son Cole to turn the world gold and raise awareness in his memory – and he has made a great impact so far.  This year, Tony made a formal request to the Empire State Building that was recently denied.  When he shared that denial with his followers on social media, dozens and dozens of other parents and non-profits have come forward stating that they, too, had made the request of the Empire State Building and received the same letter over the years (in fact, one of our board members at the TLC Foundation filled out the application and received a letter of denial last February).  Little did we know that the owners of the building were so adamant about NOT going gold for our kids – until we started sharing our collective experiences and hitting social media with the hashtag #empiregogold. 

As a parent who lost a child to cancer, I can’t tell you how deeply insulted and appalled I am.  For years we have been trying to make a difference in September, and the Empire State Building’s refusal to go gold is perfectly representative of the countless roadblocks we face every step of the way.  It’s confusing and hurtful.  How can anyone come up with a good and just reason NOT to support childhood cancer awareness?  It’s mind boggling!  We are talking about children.  With cancer.  Kids.  Babies.  Teenagers.  I just can’t wrap my head around it.  Who is the person behind the anonymity of a computer screen who deleted photo after photo after photo from the Empire State Building’s Facebook page?  How did that person look Sweet Sally Sunshine in the face, and hit the delete button?

On the flip side, as a PR professional, I also recognize that they unintentionally did us a favor.  For the first time since I, myself, became “aware” in the worst way possible – I am seeing the community join hands in a polite, unified protest.  We are demanding an explanation and leveraging the media as a collective group, and it has been incredibly successful.  I am so proud of the parents who have bravely spoken out in front of the camera.  They are reaching an entirely new audience and turning something terrible into something terrific.  What has happened next is a dream come true.

  • Times Square – the crossroads of the world – is going gold on September2
  • One World Trade Center – the tallest building in the Western Hemisphere– is going gold
  • The Helmsley Building will be lit gold in September
  • The Coney Island Parachute Drop, a historical NYC landmark – is going gold Sept. 5
  • The City of Yonkers (Town Hall) will be gold this September
  • Staten Island Hilton is going gold
  • Bay Ridge Brooklyn is going gold
  • The Mid-Hudson Bridge will again glow in beautiful gold
  • Theodore Roosevelt Executive Building in Nassau County is going gold
  • The New York Stock Exchange’s closing bell rang for pediatric cancer awareness
  • The New York Giants have gotten behind the effort (specifically, Mark Herzlich and Tom Coughlin) and will be supporting the go gold movement]
  • Kennedy Square in Long Beach, NY, will be lit up gold

And this is only some of the lightings announced for New York State.  There are many other gold lightings planned across the country and around the world!  This is an incredibly positive movement.  I am proud.  For the first time, I am excited for September rather than disheartened.  I do believe we are on our way to turning the world gold :)


Riding the coattails of the ice bucket challenge, I have also seen dozens of adorable new campaigns follow suit in support of childhood cancer awareness for September, and I will support each and every one.  Please check them out and participate where you can throughout the month.

#goldselfie, so fun. 
#gogoldchallenge, learn the facts
#youvebeengolded, a fun version of “ring and run,” leaving behind a gold ribbon to display on the front door
#whippingchildhoodcancer, take a pie in the face and make a donation
#goldmaniCURE, get a gold manicure and post a picture
#beboldgogold, asks you to talk to others about childhood cancer

This September, won’t you please go gold for our kids?  XOXO.  Thank you for your continued love and support.  

Friday, August 29, 2014

Vacation Then and Now

Lou and I left yesterday for a short cruise to celebrate his parents’ 45th wedding anniversary.   Lou and I, his sister Debi and Rich, and Mom and Dad – no kids. 

Gavin ran out the door with a huge grin as we pulled away, turning to give us a butt shake.  I had mixed emotions knowing how happy he was to see us go!!  Sometimes I worry that he was passed around so much as a baby that he’s a natural independent and I tear up over visions of him moving halfway around the world someday.  But then I remember kissing him goodnight and yelling up to him, “I love you more!” as he’s heading up the stairs, only for him to run back down to say sternly, “Let’s not argue about this right now, Mommy.  I love YOU more!”  Then we play a game where whoever says it last loves the other person more, and I make sure we end at the same time.  “It’s a tie! I guess we both love each other the same.”  He needs me J.

Off we went, leaving from NYC and zipping up to Canada, we couldn’t have asked for better weather.  We have all been under a tremendous amount of stress lately (on top of the ever-present loss that we still feel daily), and after less than 24 hours of over-eating, over-drinking and enjoying just being together, I sit with the morning cup of coffee that was delivered to my door and I feel spoiled and blessed.  I love my family. 

On September 3, it will be nine years that Lou and I have been married.  On our very first anniversary, I woke up to our wedding song playing in the kitchen.  Lou had made ham and eggs, sunny-side-up sitting on top of heart-shaped toast with fresh fruit and red roses adorning our kitchen table.  He served me like I was a princess before presenting me with an anniversary present – tickets for a 10-day Mediterranean Cruise leaving a few days later.  I know, right?  He’s pretty amazing.

This is the only other cruise I’ve ever been on, and I am enjoying all of the memories coming back.   Eight years ago, Lou and I embarked on our most extravagant vacation with the exception of our honeymoon.  We knew we would start a family soon, so we broke the bank to experience European travels together and indulge in the good life before pregnancy and babies would change everything.  Change everything it did, for certain, but I wouldn’t trade a thing.  Of course, minus cancer.  I would obviously trade anything (and I truly mean ANYTHING) to make cancer go away and to get my son back.    

I remember how careful I was with my wedding band and engagement ring during that first cruise.  Putting them in the safe in the room whenever I was heading to the pool or if we were disembarking for the day.  Now those rings are a part of me – my ring finger perfectly and permanently indented because I never take them off.  I don’t even feel them anymore and I don’t think twice about losing them because they can’t possibly fall off.  Like a rope around a tree trunk, I have grown around them both physically and emotionally. 

This morning I smiled at my reflection - me in my comfy cotton PJs and nerdy glasses – and I thought about how I packed a dozen silky nightgowns for my last cruise.  How I went shopping for a new “cruise wardrobe” beforehand and packed different accessories for every outfit.  Back then I was preparing for the experience, today it’s all about the escape.  For this trip, I have my “I carry your heart” locket with Ty’s picture in it and some PRET*TY bracelets.  What more do I need? 

I spent more time preparing Gavin’s things and writing notes about how he likes his chicken nuggets extra crunchy, and how he prefers comfy long pants and long sleeves, even when it’s 90 degrees outside (he’s a weirdo, that kid).  I stressed out shopping at various stores to get all of his back-to-school supplies from the supply list before we left (I didn’t even know there was such a thing until a couple of days ago).  I can’t even tell you how difficult that has been.  Back-to-school is harder than Christmas.  Much.  My emotions have been running so high and I have been in pain for so many reasons. I imagine what backpack I would be buying for Ty as I pick out one for Gavin.  Gavin is getting so big so fast and I just want my babies back – both of them.  I overheard his friend saying “You wish you had a brother so you wouldn’t have to ride the bus alone.”  That is an understatement, little friend.  How right you are. 

I packed for myself the morning we were leaving and put little thought into what I should bring.   I just wanted to get the hell out of the house.  I could feel the excitement rising as we pulled away, and now that we are actually here, I am at peace.  Sitting on this balcony with my computer on my lap and nothing but ocean on every side, I am reminded how small and unimportant I am.  That reality has allowed my everyday worries to float right out from under my skin and into the open water.  I hope I can leave them there for a long time. 

Last night I watched the bright pink and orange sun disappear on the horizon and I convinced myself, yet again, that Heaven is real.  That God made that beautiful sunset and that when I myself get swept away at the end of this crazy, painful and beautiful life, I will finally understand.  And Ty will be there waiting for me, and we will live together in the beauty of that sunset and I will never, ever, ever let him go again.  I have no fear because I know that what waits for me is only pure love and light and I can’t wait.  I promise that I will take care of Gavin and make the most of this life until then, but there is an incredible sense of peace and comfort that comes with the true acceptance that there is so much more to this life than what we experience every day.  And I have faith that the happiness that awaits us is so incredible it is beyond our greatest imagination.  If it turns out I’m wrong and there is absolutely nothing after this, at least I’m living the rest of this life filled with hope rather than despair. 

It has been 8 years since that European cruise.  Lou and I have been through so much in those 8 years.  We are completely different people, and we are so lucky that we have grown more in love and more alike instead of the opposite.  The first time we returned to our room to find our towels in the shape of a swan or a monkey we took pictures and thought, “This is so great, how do they do that!”  Last night we found a puppy on our bed and silently let out an unimpressed “been there, done that” sigh.  It’s a little sad how quickly a new experience can become old!  Of course we are still thoroughly enjoying our time here.  For us, escaping has always been a healing withdrawal and I couldn’t wait to get away from the back-to-school frenzy for a few days.  I feel miles away from it all, both literally and figuratively. 

Vacation is good.  Happy anniversary, Mom and Dad.  Happy almost anniversary, Lou.  I couldn’t imagine living this life without you.  I hope Gavin takes us on a cruise for our 45th wedding anniversary.  Or maybe our 35th ;) 



Thursday, August 14, 2014

Thank you to our volunteers, to all that attended the 2014, and to the woman in line at the supermarket...

... truly, I can't thank you enough.

The Mess Fest was outrageous.  The best day of the year, no doubt.  Once again, people came in droves.  We surpassed our 2013 fundraising goal and I am confident enough to say that the event was flawless.  The weather was like a huge smile shining down upon us.  There were ladybugs landing on children and laughter filling the sky.  It was pure magic.  Everything Ty ever would have wanted.  And I am proud.  VIEW THE GALLERY HERE.

We couldn’t have done it without the 100+ volunteers who selflessly donated their time, the incredible fundraisers who participated in the Dirty Dunk, and all of you who attended to make this event the tremendous success that it was.  Special thanks, of course, to our long-time friends at Kiwi Country Day Camp for donating the most amazing place on earth to hold this incredible event year over year.  Lastly, our sponsors, because without their generosity we would not be able to reach our fundraising goals to support innovative childhood cancer research.

The Ty Louis Campbell Foundation will be celebrating our 2 year anniversary soon.  I am proud of all we have accomplished, and we are well on our way to becoming “kind-of a big deal” (to quote Anchorman).

Sometimes I use this blog to keep you updated on the “business” side of things and I have made a conscious effort to slow down on how much of my personal experiences I share on a daily basis.  Because, in all seriousness, who wants to hear about how much I miss Ty day in and day out?  It’s been just about 22 months now – everyone has moved on while I sit here forever changed and plagued with the weight of his loss forever on my shoulders.  I have graduated to the slowly dissipating “bereaved mom” blogger, and there are new children to follow – whose triumphs inspire as they embark on their cancer journeys.  And all I can think is… “SH*T!  When will this slow down? When will these voices of childhood cancer be heard?  When will these innocent children be cured?  Will I live to see the day we uncover a miraculous cure-all?”  Because right now, today, I don’t see an end in sight and it is unbearable.

If you are active on social media, you may have noticed that our community is in an uproar over the recent refusal from the Empire State Building officials to light the building gold in September to honor childhood cancer warriors. In 2012 the White House denied a petition to go gold after already going pink for breast cancer awareness… and now this??  The mid-Hudson bridge was lit gold in Ty’s memory (and will be again), the city of Yonkers is going gold for the 2nd year in a row, Mahopac lights the town gold and sells gold ribbons to retailers to support the TLC Foundation – but these huge, most influential buildings just refuse to support our awareness efforts.  It is beyond disheartening.  It makes me feel as if Ty wasn’t important enough. That our children still don’t have a voice no matter how hard we try in our united efforts.  Did I mention that the Empire State Building was green in honor of the Teenage Mutant Ninja Turtles?  Barf.  Seriously, I couldn’t be more disgusted.  Please hit social media with the hashtag #empiregogold.  Use this image on Instagram (or any image).

Tweet at them, Facebook them, keep your messages positive while expressing your disappointment over this decision.  It’s not about a building or a bridge or a landmark being lit gold, it’s about a movement to raise awareness for the number one cause of death by disease among children so that some day it won’t be!

On Saturday I drove home from the Mess Fest by myself.  Gavin was with Lou and we had two carloads filled to the brim with supplies.  To my surprise, I became overwhelmed by a sudden wave of unstoppable grief and I cried the entire way home.  Big, ugly, can’t catch my breath hysterics in between screaming and cursing as loud as I possibly can.  I was totally and completely overwhelmed and exhausted.  I guess after having so much adrenaline for days on end I just hit a wall.  That cold, hard wall being the reality that no matter how amazing it was - and no matter how hard I work to make that special day in Ty’s honor – it doesn’t change anything.  He is still dead, and when I look in my rearview mirror I will never see his smiling face again.  And that is a reality that is just too painful to bear sometimes, no matter how much time has passed.   And despite all of his pain and suffering… he died anyway.  I have been looking at this photo a lot over the past 2 weeks.  What do you think he was thinking?  We reassured him over and over again that he would beat the cancer.  That he was so brave.  But this face, this pain, this confusion, didn’t have a happy ending.  And in my heart I know that I failed him.  

I’ve been down on myself for having lost interest in writing.  Not just this blog, but so many articles that I have swimming in my head that I wanted to publish.  I wanted to write more about Gavin and how amazing he is.  I wanted to write more about Lou and what we are doing to help one another.  I wanted to keep writing about cancer across all ages, the good, the bad and the ugly.  And I wanted to write more about coping and grief and missing Ty.  I’ve been feeling so discouraged because I worry no one wants to hear my sad musings anymore.  My sleepless nights where words flew from my fingertips have been replaced with glasses of wine and early bedtimes to feed my lingering depression.  I can’t always keep up with all the amazing ideas we have for the foundation, let alone my emotional outlet via this blog.

Lou was home early yesterday and took Gavin to Karate so I went to the supermarket by myself.  It was one of the saddest trips I have made to the supermarket in well over a year.  I don’t know what came over me, but I couldn’t stop hearing Ty’s voice, imagining him in the cart as I pushed through each aisle, and I could barely hold back the tears with every single step.  On the checkout line, the woman in front of me asked, “Are you Cindy?  I have been reading your blog for years.  Thank you so much for sharing with us all.  I can only imagine what you are dealing with and how you are feeling but the way you put it into words, I am right there with you.  Please keep writing.”

That was exactly what I needed to hear to turn things around immediately.  No doubt.  It has been some pretty tough days and nights lately, despite the incredible joy that I took away from the Mess Fest.  That woman in the supermarket reminded me how much I need to keep on keeping on and if I need to "talk"- sad or not - I’m going to keep doing this.  Because it is good for me.  And because it is important to be candid about all of this… the reality of childhood cancer and child loss and grieving and living and loving and parenting… I am an open book for all who care to read it.  Thanks to all of you who do continue to read and share.  Ty’s story will never end.  


Wednesday, August 6, 2014

Important Details for Mess Fest: Parking, Attire, Tickets, etc.

Ty's first and only Muddy Puddle
We are counting down the minutes to The Muddy Puddles Mess Fest 2014!  The weather looks PERFECT and the event is already a success thanks to all of you.   It is going to be everything Ty would have wanted, and he will be smiling down on all of us that day!

Ticket availability:  We are prepared to sell hundreds of additional tickets at the gate, however, we cannot guarantee that the event will not sell out.  In order for our team to be best prepared, please try to purchase tickets in advance, when possible.  Use promo code friends for an additional 10% off now until Saturday.  

Parking and Shuttle Buses: As indicated on our registration site, all parking is off-site this year. Everyone must park at the Mahopac High School, 10 minutes away, where several large shuttle buses will be running non-stop to transport you to the camp (421 Baldwin Place Rd, Mahopac, NY 10541).  There is absolutely no parking at Kiwi Country Day Camp (with the exception of handicapped parking).

As a ticketholder, you will be at an advantage if you bring your printed tickets with you.  When you pull into the lot, ticketholders will be directed to a designated parking lot in the back, where we will have a check-in table so you can easily get your event wristbands before you even board the shuttle. That way, you can avoid waiting on line when you get to the camp.

The first shuttle bus will leave the lot just after 10:30.  Gates will open at Kiwi at precisely 11am.  If you wish, you may drive to Kiwi for a drop-off beforehand, but you will then be redirected to park at the high school (which is approximately 10 minutes away).

By Train: For those traveling by train, Metro North/Harlem line will arrive at the Croton Falls Train Station every hour, about 5 minutes past the hour.  We will have a shuttle at the train station to easily and quickly transport you to the camp and back at the end of the day.

What to wear:  Considering it is a Mess Fest, we recommend you dress comfortably and be prepared to get dirty to the point where you may never wear those clothes again :)  Be sure to bring a swimsuit because there are swimming pools, as well as a change of clothes (don’t worry, we will hose you off before you enter the pool)!

We have dozens and dozens of wonderful activities planned, fun performances and loads of prizes. We can’t wait to see you there!

The Campbell Family and all of our incredible volunteers