A fitting quote to kick off the week



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Our baby is finally free. Rest in peace Ty Louis Campbell.

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Ty Louis Campbell is gone, but his story continues.  This is our promise to him.  His impact on the world around him gives his short but inspirational life such meaning.  His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly.  The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.  Ty never did break his fever.  He never really woke up.  Not until he decided to leave this earth and fly freely among the clouds.  At that very moment, he was awake.  He had returned to Lou and I to say goodbye.  To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.  I went to bed last night with so much worry on my mind, but I was able to fall asleep because I was calmed by the fact that in his semi-conscious state, Ty seemed so incredibly peaceful and comfortable.  I laid down next
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Anything but cancer

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Cancer is not welcome here.  It can never, ever, ever, ever, ever come back.  As I mentioned yesterday, Ty has been showing some physical symptoms that we haven't seen in a long time.  Please, God, don't let it be cancer again.  Anything but cancer. I spoke to Ty's doctor first thing this morning and he believes the increased weakness we are seeing on Ty's left side is not related to new cancer growth - but that doesn't rule out the possibility.  He feels that Ty is suffering from spasticity, which is becoming more visible now only because Ty is getting stronger.  As Ty's muscles begin to regain mass and tone, the neurological weakness on his left side is becoming more noticeable.  This spasticity is likely permanent, but also treatable with continued therapy.  When I spoke to his physical therapist later today, she agreed that it would explain what she is seeing, and then she reassured me that walking again is still a highly attainable goal for Ty.  And "
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So Gray Today

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Ty and Gavin, July 2010 Gold is an appropriate awareness color for childhood cancer (shiny and new and triumphant), just as gray is a fitting awareness color for brain tumors. Gray matter (get it?), but even more so, the overwhelming feeling when thinking about brain tumors is quite gray. It’s all gloom because it’s all just goddamn awful.   I’m glad it’s been cloudy, cold, rainy and gray because that’s exactly how I feel on this first day of Brain Cancer Awareness month. My memories of what I witnessed leaves me with a dark, colorless range of emotions. I can’t stop thinking of all the things, large and small, that occurred during my son’s far too short time here with us.     For Mother’s day when Ty was two, Lou bought me a bike with a seat on back for Ty. Ty was so excited to show me in the morning. We went for a ride on the boardwalk but he ended up crying the entire time. He hated the bumps. What I didn’t know is that he hated riding with me because it was giving him a headache. T
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