Tuesday, October 16, 2012

No smile today :(

Today was a day of rest for Ty.  It was not a smiling day.  It was a hot sweaty, uncomfortable, feverish day.  Ty was feeling so terrible, and I overheard Lou whispering to him, "I'm so, so sorry, Ty.  We tried so hard.  All of that medicine you've had, and all of those surgeries.  We really wanted them to work.  You have been so brave.  I'm so sorry."  I've uttered those same words a thousand times, as well. 

Everyone asks how we are doing.  The truth is that we are usually okay because we are so consumed with taking care of Ty.  As always.  We are in overdrive just going through the motions and keeping our mind, body and souls very busy by focusing on our special boy.  But on days like this, we feel like we are failing him. We watch Ty on the couch and we hear ourselves sharing our most brutally honest thoughts.  How we want him to leave us so he can finally feel better.  So this nightmare can be over for him.  We, too, will be given a sense of freedom that we won't even know what to do with after all this time living this life, but the absence of Ty will be so severe and so destructive, I don't know how Lou and I will survive it.  The void will be ever-present and oh so painful. 

We say, in our most rational voices, that we want the fight to be over.  We tell each other we are ready for Ty to be free.  But as soon as something happens where we realize it might actually happen?  That maybe the miracle of Ty jumping off the couch - fully healed - isn't in the cards?!?... we panic.  We freak out like you can't imagine.  Today was definitely one of those freak-out days.  This was a crazy house.

Ty was running a low fever for the duration of the day.  This has happened before.  He hovers around 100.5 - 101 degrees and just sleeps it off.  Today was different, though.  Today he had a cold, clammy sweat throughout his body the entire day.  His face was very pale and pasty. He was wincing in pain while in and out of sleep.  His hands and feet were cold when my usual tell-tale sign for a fever is hot palms coupled with a warm kiss on the forehead.  I've told you before what I've read about cold extremities - how it is a sign that the body is working hard to stay alive - so Lou and I walked around with heavy hearts all day.  We met each others eyes and exchanged a thousand concerns with wild panic in our eyes.


I spoke to his hospice nurse, who advised me to give Tylenol around the clock and we'll wait it out 24 hours before changing anything in his medication.  I spoke to his nurse and doctor from Sloan Kettering later in the day who asked tons of questions to help us determine whether we might be dealing with a bacterial infection, a virus, or something related to disease progression. Dr. Kevin seemed less worried knowing that Ty was up and down throughout the day and hovering at a relatively low temperature.  We covered the various scenarios so it was understood what Lou and I would and would not be willing to do and in the end we agreed to wait it out. 

Lou and I are not willing to take Ty to the hospital anymore.  He doesn't want to be there. We don't want to be there.  And, we are afraid that if we ever step foot in that place again, we would end up leaving without our son.  His doctor did not disagree with that fear.  Rather, he felt that would be a likely scenario as well, and spoke about the various things that would have to take place in the hospital setting in order to treat Ty given his symptoms (blood cultures, urine cultures, chest x-rays, CT, a potential lumbar puncture, etc.).  No thank you. This boy has done enough of that.  We tried so hard for so long.  What a fighter he is!  But, we have agreed that "no more" is the only option for Ty, and what happens next is in God's hands (as it always has been).  Thank you for helping us with your constant prayers, and for those of you who are not the praying kind - your positive thoughts and kind words are working wonders as well.

In true Ty fashion, he waited to get really sick until just 1/2 hour after I hung up the phone with his nurses and doctors who called it a day.  I checked his temperature and it started going up, up, up!  Stopped at 103.2 and I had already given him Tylenol an hour prior.  Even the cold compresses weren't helping.  Of course, we began to panic.  What if it keeps going up?  What do we do?  Can he die of a fever?  That's not what we want, is it?  Will his pain get worse and worse as his fever worsens?  What should we do!!!!  Thankfully, Ty has a very compassionate doctor who answers text messages and had me call him on his cell phone. He talked me through it again and I felt comforted.  We had an on-call hospice nurse visit who also reassured us that his cold hands and feet really weren't that kind of cold, and that if his fever goes up, well, it goes up.  We are taking it one step at a time because no one wants Ty to go through any additional tests or unnecessary antibiotics when we know he has underlying, terminal disease progression.  We all know he has been through enough already and she reassured us that he is comfortable right now as he sleeps through this fever. 


Lou and I were able to change him into fresh pajamas without waking him.  I carried him up to bed in my arms and didn't want to let him go.  I could carry him in my arms like that for eternity.  I don't ever, ever, ever want to let him go.

Ty's nurse at Sloan Kettering saw the newspaper article about the hawk release in Ty's honor.  She lives in Westchester and thought it was such a beautiful idea.  We both agreed that from now on, whenever we see a hawk in flight we will wonder if it's TLC :)  I love the idea of that.  Thank you, again, to everyone who was responsible for that.  What a beautiful way to symbolize all that Ty has endured and the freedom he deserves. 

Goodnight.  Tomorrow will be a smiling day.  I can feel it.

252 comments:

  1. I am sorry that today has been such a rough one for all of you. My heart aches and breaks for you. You are so amazing and strong, as is your precious Ty. You are in my prayers constantly. God bless.

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    1. I'm so sorry to hear about what a painful day you've all had. My heart is so heavy from reading your last blog. I am trying to put the word out all over PA. I used to live in North Salem, and my little cousin Johanna went to school with Ty. I am going to contact Pocono Community Church In Mount Pocono Pa, and ask that your whole family be lifted up in prayer. I'm praying for a miracle. I keep putting your website on my Facebook. I dont even know you, but i read your blog all the time, and I feel like i kbow you. Im praying for a miracle for Ty! I will keep trying to spread awareness. Love, Liz Collins

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    2. I am so sorry it was a not so good day. I will not stop praying for your miracle. I am being soooooo specific in my prayer. I believe the Lord wants to hear our specific needs and wants. I pray today that precious Ty can have a comfortable day. I hope for a beautiful smile also. I pray for comfort and peace for you and Lou. Know that so many of us think and and hold you up in prayer during the day.

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  2. Ty looks so beautiful in your arms, and the photo of him sleeping next to his daddy takes my breath away. Praying for you guys everyday. Hoping tomorrow is a better day for all if you. -Brenda, South Carolina.

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  3. Cindy,
    I am so sorry, I just don't understand how so many people from all over the world are praying for Ty to be healed and it hasn't happened. I want so desperately for him to stay with us that I can't even wrap my head around what you and Lou are feeling. Not even alittle. I watched your news clip of you, Lou, and Ty...it was by the grace of God that you appeared so peaceful and calm on the outside while your guts are all twisted and your heart has been broken a thousand times over! I just wish I could make everything better.

    I know the pain of loosing someone that you hold so dear. You can literally feel your insides dieing, your heart withering, your very soul screaming in agony. To feel that because of a child would have to be so utterly painful that your body just refuses to feel it until it is forced too, but you remain totally and completely numb.

    You are a beautiful woman, inside and out. You are the reason Ty is perfect. Not only are you and Ty making people better parents, raising awareness for pediatric cancer, and teaching people to cherish every moment that we are given on this earth..you are leading people to God. Their God in whatever form they believe. You are strengthening people's faith all over the world with your unrelenting faith. You remind me of Padre Pio who prayed that he live in such a way that not one soul would be lost. I find myself questioning how God could allow such horriable things to happen to our children then I think of you and your love for our Lord and instantly realize that God always has a plan.
    Words can not do any justice for how thankful I am for you and your beautiful family.
    Much love and continued prayers sent from Sactamento, CA
    Tavelle-

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  4. My heart is breaking that such a beautiful little boy and his family have such a heavy cross to bear. I am so sorry for Ty's bad day and pray for his comfort. I pray everyday for his recovery, but If this is not the lords plan to bestow the greatest gift of a miracle to him, then I would hope he allows Ty the peace & comfort this little fighter deserves. It is at times like these I question his plan. Sorry our heavenly father you got this one wrong!!! Please wrap your arms around this child and bring the smile back to his sweet face. I love you Ty Louis Campbell you have definitely made me a more accepting and stronger person! Cindy & Lou, you are amazing parents! Strength, peace and love to you always...love Janet & Jayden xo

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  5. So sorry about the bad day :-( My heart breaks for you and your family! Still praying for Ty and praying for a better day tomorrow! Sleep tight beautiful baby boy!
    Marcia, CA

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  6. Ty, you are such a fighter and Super Ty definitely fits because you are stronger than any other super hero out there. I am so sorry you had a tougher day than the already rough days. Cindy, my heart breaks for you, Lou and Gavin. I can only imaging how difficult this is to watch your child fight this battle and I am sure it is not even close to actually living this nightmare. I commend you for your strength and pray everyday that your entire family continues to get the strength you need to get through this. I still pray for a miracle for Ty. I hope in your next blog we get to see more smiles from that beautiful little boy. He truly is such an inspiration to millions of people. You and Lou are amazing parents and Ty is so lucky to have you. I will keep praying for your entire family everyday. Please give him a big hug from my family and I am also sending a huge hug to you, Lou and that other gorgeous little boy, Gavin. Dawn, Hopewell Jct, NY

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  7. Cindy and Lou - As with so many, my tears over flow. I even feal guilty that this is happening to you. You both are such amazing parents that I wish I could be as wonderful as you. I have learned so much from both of you and Ty and wish I could start my babies over again as I know I could do it better. I wish I could stop all this pain for Ty, for all of you and for every other child. My heart aches. I pray so dam hard for you and have had my own shouting, bargining match with God. I would give every limb I have for my babies. I wish I could give my life in exchange for every baby this terrible disease has touched. I am so very sorry.

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  8. I can't stop thinking about Ty and what you're all going through. It's so hard to understand why a little boy has to go through this. So darn unfair for Ty and so many other beautiful babies everywhere inflicted with this monster.

    Your family's story has helped me understand how terrible this disease is and convinced me that I need to do something too. I'm not sure what that is yet but let's just say that your posts have not been in vain - you're making a difference. Touching each of us in ways you probably don't even realise. Reaching out to those of us who have been until now ignorant. I've shared your story with my family, I've asked them to pray for good days for Ty. We'll work with you, Cindy and Lou, to make sure there is more awareness about childhood cancers even if it's one person at a time. Brave, brave Ty. Brave, brave you. Hold on to Ty for as long as you can.
    Jude

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  9. I'm so sorry Ty had a difficult day. My heart breaks for your amazing boy and your entire family. The picture of him holding his daddy's fingers is so beautiful. Prayers and thoughts for a good day tomorrow and for the miracle to come.

    Irina

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  10. Cindy,Lou and Ty,- you are all fighting so bravely for each other. Your strength is amazing. My heart is breaking, right along side yours. Because you have reached out via this blog you are not alone on this journey, 1000's are sending love your way and sharing in your hurt, joy, frustration and enormous love for each other. If you didn't love each other so much, it wouldn't hurt this bad. But I am sure you agree that you would choose the love that surpasses the suffering any day.
    Keep right on telling that little boy you love him every minute of every day. Give him a kiss all the way from Down Under.
    Liz Busselton WA

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  11. Dear Cindy,
    You are beautiful and brave. How lucky your children are to have such a brave and loving mother. My heart goes out for your family, and I will remember little Ty in my prayer. I have two daughters and you gave me such an inspiration to cherish every single minutes I am with them. I am very sorry that Ty has to go through so much pain. Keep the faith and May God bless and keep your family.
    Love and prayer from Meilanny, Melbourne, australia.

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  12. With tears that fall,
    for a beautiful boy so small,
    with hearts that break,
    for not so simple pains & aches,
    for so many prayers reaching the sky,
    no. no .. not the sky, higher than high,
    higher than space,
    much higher than this place,
    they reach gods ears,
    & for little Ty, we see tears,
    tears from all over the world,
    tears from his mothers words,
    Tears that break our hearts,
    tears that reach Gods heart,
    broken we all are,
    A little boy, dreams are flying far,
    daily he sees his Angel,
    daily he is gainful,
    gainful of more people who know of this monster in his head,
    gainful that the awareness will be spread,
    oh little Ty, how I wish you could join my son,
    join all the little girls & boys that play outside in the Sun,
    in the Sun, the leaves, the rain, the snow
    oh little Ty , I wish u could know
    we all love you so much, and wish for your health
    we wish there was something much more we could do, like spread all our wealth
    The wealth we do have in this daily struggle,
    if it weren't for my kids, I would give u every bit of money I ever had, but in this world, its a battle,
    we all love u sweet baby,
    we all truely do, so just keep smiling,
    keep fighting, it defines you,
    it makes you stronger than all the super heroes out there
    stronger than Spiderman
    stronger than superman,
    you do the math,
    because how often do you hear of one boy who touches millions
    millions of hearts, means millions of.mouths, more the mouths, means more awareness about what this is doing to you,
    your my hero Ty, your all of our heroes
    because without an amazing family like yours , I couldn't be strong,
    so Ty. before I go, keep smiling,
    Get better,
    because for a lot of us , your our only hope,
    what we think about when we wake up and to to sleep
    everyday Ty, I will continue to weep

    good night best strong BIG hero boy
    sweet dreams
    we will pray away your pain
    Go ahead don't be afraid, if you want
    you can dance on those moon beams

    we love you
    forever more
    its over a million, against the world ..


    love,
    the brewingtons

    Aiden ((3)), Jr ((1)), && Sofii

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  13. To all who read this:
    Please join The Ty Louis Campbell MIRACLE PRAYER Chain tomorrow, Wednesday 10/17 at 7pm Eastern time. You do not need to go anywhere, just simply take a moment at 7pm and say a prayer for this precious little boy so that he may receive the miracle he so desperately deserves. There is strength in numbers, so maybe if enough people pray at the same time God will grant this brave little boy his miracle.
    If you are on Facebook, you can go to the link below to join but it is not necessary. All you have to do is pray at this time from wherever you are and of course, continue to pray every single day as well. Thank you.

    http://www.facebook.com/events/453232394720646/?ref=ts&fref=ts

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  14. Dear Cindy

    Floodgate just poured when I read this "How we want him to leave us so he can finally feel better" My heart aches so bad and I can hardly imagine how yours and Lou's heartache is ten thousand worst than mine. Oh God! Dear Jesus, if it is your will, please perform your healing miracle on Ty right now! If it is not, please do not prolong Ty and his family's suffering anymore!. But then..how..how to give up?! Damn it cancer! You will never win but Ty Louis Campbell will! Caused Ty is so much love by so many people, family, friends, strangers from all around the world.
    Will continue to pray so hard for you, Ty, Cindy, Lou, and Gavin..
    Love and prayers from Singapore, Vivienne

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  15. I read this every day religiously from the other side of the world. So while I read, my hopes are Ty is getting a good nights sleep. I'm a doubting Catholic, especially when this sort of abomination is allowed to happen to the innocent.
    But I hope. I hope Ty gets a miracle and the almighty gets off his butt and cuts him a break. Christ knows he needs and deserves one. You all do. I'd swap places for Ty in a heartbeat, if i wasn't a dad myself. Ty,your story, you've made me a better dad matey. Chin up, be strong and fight the good fight. from Western Australia.

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  16. I'm another Australian, sending loads and loads of love and light to you Super Ty, and to your entire family.

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  17. Cindy, Lou,
    You have not failed him and he knows that

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  18. I was reading today on Ty's FB prayer chain..at the prayer meeting,that everyone to wright down on a piece of paper, "What I would sacrifice(those are my words), so that Ty's miracle, if Gods will, he'd jump off that couch, grab, Mom, Dad, @ Little Brother , go outside @ dance in the mud!!I've been asking myself, what's your sacrifice @ the first thing I could come up with was to stop drinking My soda Coke( O NO) but on Wednesday, even being over in Calif, that is what I do..Im going to put it in a envelope @ take to my church, lay it at the alter, get on my hands @ Knees, with a *Box of Kleenex, and just pray..4:00 PM my time.And like the comment that is right before me, I to would swap places for Tys Healing.

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  19. Oh Cindy,

    The strength and courage it takes to not intervene is enormous. As hard as it must be to not treat, I hope you are comforted thinking that simply managing pain and symptoms right now will be so much more comfortable for Ty than turning down the treatment road again. But I know it feels like you're going against all of your instincts to committ to this new path. How very loving of you and Lou to give Ty this gift of some time at home with his dear family around him - no more hospitals. I hope you believe yourself that you are absolutely doing what is best for Ty. You and Lou are incredible parents to that sweet little boy, and I am sure he feels your tenderness, despite the fever. I hope he is more comfortable today... I carry your family in my heart every second and whisper my prayers to the universe that you all find peace and comfort.

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  20. Cindy and Lou I can't imagine the constant pain and fear you live with every day but you are amazing amazing people for the love and passion you show for your little boy. You are truly an inspiration and in the few days I've known about Ty, I realise he is going to change my outlook on life forever. Ty has to be the unluckiest little boy to be this sick but the luckiest little boy to have you two in his life, loving him as much as you do, and making his time as good as it can be. I will pray for you and pray for a miracle every day. I hope it helps because it is hard to keep faith when I see a beautiful little boy like Ty suffering, and he deserves to live a full, happy and long life with his loving family. Love to you all. I hope you have a great day tomorrow. xx
    Tania from Brisbane Australia.

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  21. You and Lou are so brave; it blows my mind. I wish I could take away your pain. I want to thank you for organizing the 10K for Ty this past weekend. Phil and I had an amazing experience running in it and being with your closest friends and family. I wish you could have been there to join us. I would welcome the opportunity to run in future races to raise money for pediatric cancer and any other worthy cause. You gave us a gift by allowing us to feel a part of your journey.

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  22. Please know that I am praying for Ty, you, and your family every day.

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  23. Cindy and Lou - words can not express how sorry I am that you are going through this. No parent should. Know that you are the best parents that Ty could ever want or have. When I see a hawk, I too will think of Ty. He is a special boy. Love and prayers to your family. Praying for a smile day!

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  24. Cindy and Lou....
    I am a mom of three and my heart goes out to you and your family. You and your husband are inspirations to me and feel for you. Please know there are strangers among you that are praying everyday for a Ty miracle!
    Jill Pacella
    Stony Point, NY

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  25. I think about Ty alot, wondering why has God chosen this path for him. I just dont understand, it saddens me greatly that children have to suffer like this.

    He is such a trooper through it all. He is just an amazing little boy who is so blessed to have parents like you. Don't ever feel you have failed Ty, ever. You did what any parent would do, you wanted him to live. We all want him to live. I don't even know him and I find myself bargaining with God to let him live.

    I hope and pray the road ahead gets better and he is pain and fever free. I am really praying today will be a better day as well. As always your family and especially Ty are in our thoughts and prayers. Give him a big kiss from us all the way from Florida :) I read in a previous comment there will be a prayer chain at 7:00, I too will be praying very hard.

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  26. Hi Cindy, I hope you and lou are also looking after yourselves in this period of your lives. It's crazy how kids are so resilient and most of the time, they can bounce back from anything! I read your blog everyday and I pray every night for Ty, you and your whole family. Try and keep your spirits up. Ty is so lucky to have parents like you and Lou. If he could, Ty would give you big hugs back!
    Take care and everyone in Sydney, Australia is thinking and praying for Ty, you and your family.

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  27. So sorry that Ty had a bad day yesterday. It breaks my heart to see him in pain. I will join the prayer chain tonight at 7:00, wouldn't miss it for the world. Please God heal this child! Bless this wonderful and courageous family!

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    1. I meant prayer chain on Wednesday.

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  28. Morning,

    My continued thoughts & prayers are with Ty & all of his family, his parents, Lou & Cindy.

    Ty, is my hero, he has been a source of courage & inspiration Ty, has taught me alot about what is important in life. I am going to become an active voice in bringing about an increased awareness of the heartbreaks & tragedies of pediatric cancer & an active advocate for increased funding & research in finding a cure from pediatric cancer(s).

    Ty will always have a very special place in my heart.

    God Bless.

    - Swannee

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  29. Praying for a "smiley day" for everyone in the Campbell family today. I can't imagine how difficult it must be to see Ty struggling so. Our thoughts and prayers are with you in all of your struggles and in all of your hopeful smiles as well.

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  30. My heart is torn to pieces. I pray for this horrible suffering to be replaced by peace, though every ounce of my instinct wants to say "hold on little Ty!" Poor baby, I wish I could take your pain away. I hope you had a peaceful night, but if you didn't, I'm so sorry baby.

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  31. I don't mind to start the day with tears for the rest of my life but I don't want it to be tears about Ty suffering. What a strong woman you are Cindy to be willing t let your beautiful baby go as long as it means he is pain free forever in the hands of HaShem (Jewish word for G-D). But I still no matter what refuse to believe that Ty will leave you. Not Ty. He has way bigger purpose. Plus to tell you honestly I feel like it was mine to meet him and to tell him that he has made me so different that it goes beyond being better mom better human being better at so many things but that's not about me. All I want and I pray and wish and hope and believe that Ty will heal and he will give you the biggest hug Cindy to thank you for everything you did for him. He knows you didn't fail him Lou how could you fail him there is no better father in the world than you. Please smile and feel better today Campbell family.

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  32. Ty is a precious, sweet boy. His remarkable, loving soul is cushioned in the arms of two amazing, loving parents. Your love is what enables Ty to rise above his physical pain and smile each day. While you are unable to take away the physical discomfort, you are able to soothe his sweet,beautiful soul and give him peace that trandscends the physical being.

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  33. Cindy & Lou,
    I am so sad once again that Ty is hurting and sick. I love your little guy and your entire family. I wish that miracle would come today. What a celebration that would be. I can't even imagine how much happiness would be in the world & in all of hearts. It's amazing how much love can be found for a stranger if you allow to care.
    I will keep praying for that miracle, peace & comfort.
    Little Ty, you have fought a mighty fight and done well. Your mommy & daddy have too. We are all proud of your ability to do so much with the hand you were given. I believe Ty's legacy will be "Love". How can you look at him and not feel love. How can you read his story and not be moved to tears and action. You can't! Look at all the love for him and it grows each day, thanks to you Cindy, because you shared him with all of the world.
    God bless Ty, Cindy, Lou & Gavin. Sending love & prayers ~Christine, OH

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  34. My heart breaks over and over when I read your posts. My son was diagnosed with Leaukemia August 8th, 2012, he is three years old. I found you through a friend you went to college with. Justin is now home from the hospital but his weeks in the hospital and the few following at home were extremely hard. I saw him suffer so much and I can relate on some sort of level with you. You are my hero!! Im not sure why god does this to children, but I believe because you are such a beautiful strong person he chooses someone who can love and nurture to take care of ty. Its not fair, and I cry for you everyday and pray that ty will be at peace and comfort. I want to help you in some way maybe make life a little easier for you, a gift card from your favorite local pizzeria god knows you dont have time to cook or a basket of goodies or someone to help you clean for a day. I know you have the donate page for cancer research but I would like to help you personally. I think you are so special and that beautiful baby boy of yours is just an angel. I know you are so busy with ty, my email address is luvbgs76@aol.com, Please let me know how I can help in some way..All my love and prayers to you and your family

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    1. Thank you. We have so much support please treat Justin to a special treat or yourselves to a meal as you are all fighters just the same. May god bless your son Justin.

      Lou

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  35. I feel so terrible for you. No one should ever have to go through this. My heart is truly broken for that beautiful baby. I know it must have been a hard decision but I agree on no more poking and prodding. Ty knows how much he is loved and I believe he feels all the love coming from all these strangers. I don't know what the future holds for you guys but I believe in God and I believe he is going to take care of all of you. Even if we don't understand the decisions he is making at this moment. I pray Ty has a better day.
    Love, prayers and strength,
    Michelle

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  36. Sending love, prayers, and strength, strength, and more strength to you all. I carry you all and that perfect boy in my heart all day, everyday.

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  37. I continue to check your blog daily for updates on Ty. I wish you peace and comfort during this time.
    ~Andrea

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  38. We continue to pray for Ty and for your family. My sister and I had our kids play in the rain for him today and each said special prayers for Ty. The love you have for your son inspires me to be a better mother to my girls and never take a moment for granted.

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  39. Cindy- My thoughts and prayers are with your beautiful boy and your family. I'm so sorry that you are going through this. You are amazing parents. Stay strong and know how many people love your special boy.

    Ann from Buffalo

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  40. I pray so hard for you and your family to get through this with no pain for Ty. Cindy, you and Lou are so strong and have endured so much! I pray our God will shine upon you and bring you peace as he takes your beautiful boy in his loving arms to give him an eternity with no pain and freedom from his body. I cry as I write this as it brings a bittersweet calmness. Wishing you the most restful and fun day today. Sue D

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  41. I have read this blog for a few weeks now and want to send my love and thoughts from London. It breaks my heart for the pain that you are going through but little Ty has had more love and fun in his short life time than most children will ever have thanks to you and Lou. My brother died at the age of 16 with a massive brain hemorrhage. It was immediate and with no warning. The pain was incredible and at the time I was thankful that he didn't know he was dying. But you have made me realise that it can be beautiful, respectful, dignified and that the pain that you are going through now IS worth it so that you can say all the things that you want to say.
    Love to you all and thoughts from all over the world.
    Kirsty London

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  42. You are ever in my thoughts. My heart goes out to all of you. God bless.

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  43. Praying all the time...keep the faith.

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  44. “If ever there is tomorrow when we're not together... there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart... I'll always be with you.”
    ― A.A. Milne

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  45. Thank you for giving Ty so much love.
    Thinking of you and especially Ty.

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  46. I don't know what to say. I'd almost begun to believe that my "barter" with God worked (I'm one of those that aren't the praying kind). It breaks my heart that Ty isn't getting better. I know that's silly, because my broken heart is NOTHING compared to yours, but I've absolutely fallen in love with him and your family, and I don't want to lose any of you!

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  47. You and Lou are doing the right thing for Ty. He said no more hospital and that's exactly what you are granting him. You are both wonderful parents and are doing everything in your power to help Ty and he knows that. You have an amazing little boy who has brought smiles to millions and millions of people all around the world! Stay strong. I wish you all peace and strength and most of all, a miracle for that amazingly strong little boy, Ty. Looking forward to seeing some smiles today :). Deb. <3

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  48. Keep FIGHTING Ty! I am sending prayers your way! I hope they are heard and that a miracle touches you... You are loved, TY (even by strangers)

    Liz <3

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  49. je rentre du travail ( je travaille aux soins intensifs d'un grand hopital en france) et la premiere chose que je fait en arrivant c'est allumer l'ordinateur pour prendre des nouvelles de tyl. et la je m'effondre en lisant les mots que vous avez ecrit aujourdhui. mes larmes coulent au fur et a mesure que je lis. j'aimerai tellement trouver un moyen d'alleger cette souffrance que vous et tyl subisser chaque jour...je vais prier encore encore, allumer une boujie (comme tout les jours) pour tyler, pour vous cotre mari et gavin...que dieu vous benisse .... nathalie de france

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  50. Hoping for SuperTy Smile today :)
    Ania

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  51. We love you Ty! Thinking of you each and every day, and of your loving parents too.

    -Lisa from AZ

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  52. I do hope Ty has a much better day today. The picture of you two holding Ty is priceless. And I do agree you both are doing the right thing by keeping him at home where Ty wants to be. You and Lou are wonderful parents and I am learning so much from that. Everything continues to be in God's hands. I will continue to pray for Ty and for your family. God Bless.

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  53. Praying for Ty has become a regular part of our day. We're hanging onto every update and praying that God shows His power and makes that sweet boy WELL. Last night we danced in the rain for Ty and held hands while praying for him. Lots of love from the Campbell Family in Maryland!

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  54. I will pray for a smiling day too! God Bless all of you. You are in my thoughts and in my prayers every single day. Sending a big hug and a kiss your way! XO

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  55. Love you Ty! Praying for you all day, everyday.
    Lisa (Blauvelt, NY)

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  56. Oh poor Ty. I'm so sorry he is uncomfortable and by sharing his beautiful smile today. You both really are the best most amazing parents and Ty is so lucky to have you. I'm praying extra hard today. Ty and all of you deserve that miracle. And comfort and strength.

    Allie

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  57. What a beautiful pic of you carrying Ty & how heartbreaking how this horrible disease has him so thin & weak. Reminds me of my brother back in 1994, he had osteo sarcoma.

    I live in Ft Lauderdale, the very front of my house I have 7 trees & in 1 of them lives a hawk!! I'll see it as the hawk that was released in Super Ty's name!!!

    I truly hope Ty had a better night {hugs}

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  58. Prayers and love everyday! I think you are making the right decisions, just as you always have! Sometimes we have to know when to say when, you have not failed, you gave it all you had...I still remember the post, Cancer has picked the wrong family to F--- with! You are very special people and you deserve so much peace, but I'm afraid things will never be the same. My heart hurts for you, hope today is a better day, Love, Terri (Campbells in Il.too)

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  59. “There is no pit so deep, that God's love is not deeper still.” - Corrie Ten Boom

    May the love of God wrap his arms around you.

    Roxanna from Florida

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  60. I'm so sorry Ty had a bad day :(. I hope he is doing better today. I'm always thinking of him and praying for him. My heart breaks for you guys. Both pics you posted made me so sad. No one should have to go through what Ty and your family is going through. Much lov to you all!

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  61. I have no idea what the future holds for you guys Cindy - I'm holding out hope for that miracle that heals Ty completely. I can't think about anything else. I don't want to ever believe there will be a time he is not here - all that he's fought through so far, it just can't end like this. I wish I could reach through the screen to give you all big hugs.

    Last night I woke up at exactly 4:44 - what an odd time right? But whenever I see a clock with all the same #'s I always make a wish. My wish last night was a simple one, Dear God please make Ty all better.

    Love & hope for Ty always -

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  62. This has got to be one of your most heartbreaking blogs. I applaud your decision to keep him at home and not let his final days be spent being poked and prodded in a hospital. A part of me wants to believe that all this is Ty's way of ridding himself of this monster and one day he will wake up and ask for a blue lollipop. I hope you find peace soon in whatever manner that might be.

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  63. Cindy & Lou,

    My heart breaks for you. I cannot imagine being in this situation ever. I hate all that your family has had to go through, especially Ty. What really has made me break down lately is Lou. I can't get the thought out of my head about the handshake and what he was whispering to Ty tonight. Lou, you are an amazing daddy and you in NO WAY failed you son! I think many of us write directly to Cindy because she is the author of this blog. However, we hear your pain too and think of you constantly! Lou, my fiancé read the post about the handshake and I saw a grown man with tears in his eyes. I think it hit home because he showed our 4 year old how to do "tight handshakes" too.

    I love you Campbell family and will continue to pray all day long for your family and your little boy.

    Joy Marielle
    Baltimore, MD

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  64. I'm praying for his pain to go away. That's such a hard thing to say knowing what it might mean. I want a miracle for Ty. But the fact that so many people have been touched by your story and are now praying for your little boy, that's kind of a miracle. Know that you are surrounded by thoughts and prayers. From your friends and perfect strangers. We're all rooting for you.

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  65. Our hearts break reading this, but your love for Ty and your willingness to share it, is something that will never be forgotten.

    If his perfect body is unable to carry his spirit, then it is with unconditional love that you are able to say it is time for him to go so his body can stop fighting. So he can be a kid again. And jump in huge muddy puddles. And smile upon you, Lou, and Gavin.

    I am so sorry. Our thoughts are with you always.
    Love,
    Linda, Rob, Jack, and Allie Scruggs

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  66. Cindy & Lou,

    You have never failed your son. You have always been strong, loving and given him courage to fight. This time...no matter the miracle God provides...is a gift. As difficult as it may be, your little one is making this journey in your loving arms and care. When you feel discouraged, just close your eyes and know that no matter what time of day or night people who love the Campbell family are all around the world praying for Ty and you. Even as you sleep...prayers are lifted up to God. How awesome is that! Revel in it. Let us offer you strength when you feel weary.

    Your family has given so much to us. We are ever grateful that you allowed us into your home and heart to share Ty and his illness. You have changed the world. The only thanks we can offer is to partner with you and Lou to spread the word about this horrid disease and fund a cure. Be assured, you have inspired many to do just that.

    Remember, God loves Ty. He wants only the best for him. Cancer is not from God. It is evil. God has sent his angels to be with Ty to fight the evil one. He will never leave any of you.

    Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go. Joshua 1:9

    May today bring you smiles, a giggle, and a peaceful time with your beautiful Ty.

    All our love,
    Baumann Family, Nebraska

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  67. Dear God,
    Can you hear me? I need to ask you something. You see, there’s this little boy, and his name is Ty Louis Campbell. Ty is very sick, and we need a miracle to cure him. Please God, he’s so little, but, so brave. He has suffered more than anyone that I know. He has never known what it meant to be a normal little boy. Ty’s life has been mostly all suffering and pain. I cry for his agony and pain. I cry for his parents, whose love and devotion to him is beyond description. Why does this have to happen to him? He is pure and innocent. Please God, help him! I beg you. Please God, place your hand, upon his head, and heal him. Let Ty return, in vigor and strength, and run into his parent’s loving arms.
    Lord, hear my prayer.
    Kathy, Philadelphia

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    1. Beautiful prayer. I pray for the same thing every night. Ty is such a beautiful, sweet, innocent little boy. Please heal him.

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  68. I am so sorry Ty had a rough day and I am so sorry you and Lou think you failed Ty. That is the farthest from the truth! You two are the most amazing parents and have done everything right by your adorable sons! I wish I could take away your pain and Ty's as well. I think about him 24 hours a day and pray that a miracle does happen. I will be praying tomorrow night @ 7 pm also! My family loves all of you. Here is to a smiley day today!! :) love from Long Island, NY

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  69. Tyler Family Staten IslandOctober 16, 2012 at 10:46 AM

    The Tylers (Melissa, Stephen and Ryan (2years) are praying. I pray everyday. I stop and pray every moment Ty enters into my mind which is multiple times daily. I have dropped to my knees for Ty. We pray for a miracle every single day. Please God so many people across so many countries can't be wrong. Ty needs a miracle. We are praying.

    Love The Tylers from Staten Island New York
    Muddy Puddle Lovers thanks to the Campbell family.

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  70. I will continue to pray for beautiful Ty. I will continue to cry each time I read your heartfelt and compassionate posts. I can't imagine what you (and your family) are going through. I pray for your miracle to come true. Thank you for sharing with us. Because of you, I believe I learn to love a little more each day.

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  71. My heart aches that you all had a difficult day...I was so hoping and praying for a you all to be able to capture a big smile from a brave little guy. I hope that today is a more comfortable day for you Ty and your family. As always I will be praying for that miracle, insh'Allah, and wishing you all the best. God bless you all...<3 from Myrtle Beach...

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  72. Tyler Family Staten IslandOctober 16, 2012 at 11:01 AM

    Also my mother works in St. Anne's Villa in Morristown NJ. It's an old age home for nunners (as I have always affectionately called them). We have added Ty's name to the prayer list. You would be amazed what these nunners can get accomplished when they prayer. We are pulling out the big guns for you Ty.

    Love Again
    The Tyler Family
    Staten Island New York

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  73. Cindy, I've been following Ty's journey for over a year now and I've never posted. I pray every day for that beautiful little boy of yours. Ty is the bravest boy. I need to thank you, for helping me be the best mom I can be. My baby girl is 9 months old, and as soon as she can walk we are going to be jumping in every muddy puddle we see in honor of Ty. God Bless the Campbell family.

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  74. I found your blog through a friend (we live in Brooklyn)...I have a one and three year old. Last night...the rain starting coming down and we ran outside to play in the rain- you all were our inspiration. Thank you Campbell Family for inspiring me/us. You are amazing and we are rooting for Ty!!

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  75. Yes, you have a brave fighter! You are all fighters! Praying for you all. Hoping that today is a smiling day. A peaceful day. A day full of love.
    Jennifer, Illinois

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  76. What a beautiful, brave boy you have. The pictures of you and Lou are so tender, heartbreaking, you are AMAZING parents! My little girl and I prayed for Ty last night, we said "I love you Ty!"...please God, have mercy on this little angel and his family. Sending all of you lots of love, hugs, and hoping for a smile today :)

    Lisa & Family

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  77. Praying for a smiling day too and that Ty feels a little better .We all want Ty to be free from pain and we want a MIRACLE to do that ..Always hoping
    Praying for your family too (((((()))))s to you TY and xxxxxxxxxxxxxs Gail

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  78. My wish for Ty and your family is peace and comfort. I can only imagine the pain that you and Lou are going through. You two are amazing parents and you don't need to questions if you've done all that you can. You both have. Hoping today is a better day for Ty.

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  79. Praying for your family and Ty. I hug my son tighter and more often because of Ty. Please know how strong you and Lou are. (((HUGS))) Praying for peaceful day full of smiles!

    -Kristin (Ohio)

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  80. I have tried 4 times now to write something meaningful and just can't come up with the right words.
    I am so thankful Ty has you 2 for parents!! Both of you are my inspiration in life! You have taught me so much.
    I am and will continue to pray for a MIRACLE. Please continue to whisper in his ears. Please tell him how much he is loved.
    With all my love,
    Pam
    Greensburg/PA

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  81. So many hugs and kisses and prayers for you all, as always. Always praying for peace and comfort for Ty. <3 Sally

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  82. Hi Guys
    Just stopping by to say hello from Canada.

    I hope you have a great Tuesday. I hope for comfort for Ty, some relief for Cindy and Lou and for Gavin and Ty - something to smile and giggle about.

    I am there with you in spirit. I wish there was something more I could do. Sending BIG HUGS through super-hero brainwaves. hehe
    Jeni

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  83. My prayers are with you and your family. You will always be his mom and Lou will always be his dad. You guys did everthing you could possible to make Ty better. Reading your posts just makes my heart so heavy for all of you. I know your pain as we had to make the same decisions as you to choose quality over quantity. I live with this choice every day. It has been 10 years this Saturday that my baby was called to heaven and it hurts just the same if not worse now. But then remember all the special times I had with my Zachary and its brings smiles to my face.

    I ask my Zachary to watch over Ty and help him pull through this aweful nightmare and to give Ty and his family more precious memories together.

    Prayers to you all!
    Becky

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    1. Thank you for sharing and make god keep watch over your little angel.
      Lou Campbell

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  84. Despite my wishes, I don't have magic words that can make everything better. But am sending all the love and prayers I can from here. To both Ty and Gavin, and to Mom and Dad as well.

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  85. Sending lots of prayers for Ty and your family. XO

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  86. Dear Campbell family, you have touched the lives of so many around the world with your beautiful, courageous, strong son. You have taught people to love, appreciate, enjoy and live life, not just to live in the moment but enjoy all of life's blessings. You and Lou should never doubt anything that you have done for Ty, you are both amazing parents and human beings, he and Gavin are surrounded with the love that any child would long for, even more. You are right in your decision to keep Ty home, in the comfort of his surroundings and in the arms of his Mommy & Dad. No more hospitals, no more tests, no more poking and proding just comfort and abounding love. Angels are around him, they are around you and may they wrap their arms around you and comfort you. Ty is so loved, he and this horrible monster battle have touched so many hearts and changed so many lives. Ty is so strong, so brave. Our thoughts and prayers are with you and Ty every minute of every day.

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  87. I am dying inside as I read your words. I cannot cannot cannot wrap my head around what you are going through. As a mommy to 2 sweet little 4 year olds, my heart just won't let me even consider what being in your shoes is like. And I selfishly pray to never ever know. I am sending all of my light and love to you all, to Ty especially, and please know you are all in my heart as you face the coming days.

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  88. It breaks my heart to read that it has been a rough day for Ty and for his family. I wish and pray for a miracle. No child should go through so much pain; it's so unfair. I'm so sorry. I wish I could have the power to heal Ty and kills his illness. Ty, I always think of you, and whenever I see my son Gabriel, who is 5, I think of you. And I keep telling him how lucky he is to be healthy and that he should pray for Ty. Lots of love and hope you can give us a smile tomorrow.

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  89. You are the bravest people I know. I love reading the daily routines of Ty and the family. I am praying for your family.
    Claudette Roberts
    (know Dawn Bond)

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  90. Me again, yes I'm at work, but I can't stop thinking about Ty. Sometimes it just weighs so heavy on me, I pray so hard it hurts my head. Wish I could give him the good health he deserves! wonder how he just stays so sweet? do you think, we as adults could be so easy to keep going like he does? Praying for a miracle, wish I lived closer, I would love to just touch him, when you describe it, i can almost smell him...I'm in love, lol! Thanks for making my heart feel so much, I think it's good for us, to feel what you feel, Still praying, Terri

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  91. Dammit Cindy. I believe with all my heart that Ty is traveling back and forth between the earthly and spiritual world. And I believe he is full of joy as this is happening. But like I said, dammit Cindy. There should be some secret portal where parents could accompany their children through this process. Even if we forget details immediately. Even if we have some magic power to hold the secret of the unknown. I'm with you on that one. You're his mama! I've always said that parenting is my m

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  92. Cindy, my heart continues to ache for you and your family. I think about Ty and your family all day long and are constantly praying for a miracle. We recently were on vacation and continued to check your blog while we were away. A part of me felt guilty for being away with my family having a good time while someone else in my town is dealing with all of this. Please know that my thoughts and prayers are with Ty and all of you always, no matter what I am doing. You all have touched my life in so many ways. Praying very hard for a healing miracle xoxo Kerri

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  93. God, PLEASE let their be smiles today. Lots of smiles, and shared jokes, and no fever, and no pain.
    My God, Cindy, I have NO idea how you are so graceful through all of this. The beauty in your soul positively emanates through your writing. So many of us would be cursing and swearing our ways through writing such unbelievably raw, painful emotions (if we were even able to put ANYthing into words, going through what you are)...and yet, here you are, with your sweet, loving, thankful words. You are simply amazing. Clearly Ty's soul is connected with yours. Courage and calm clearly run in your family.

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  94. Most humbling experience hands down. You two know that faith of being humble to god more than I could ever imagine. And the grace that you exude...

    Sending love on the wind from California,

    Marianne

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  95. I have been following your dear son for the past few weeks. I pray for your baby everyday. May God Bless you all in this horrible struggle. This was shared with our community by the family of a little girl who passed away from Neuroblastoma. I don't know that anything can help, but here it is.

    The Brave Little Soul
    By: John Alessi

    Not too long ago in Heaven there was a little soul who took wonder in observing the world. He especially enjoyed the love he saw there and often expressed this joy with God. One day however the little soul was sad, for on this day he saw suffering in the world. He approached God and sadly asked, "Why do bad things happen; why is there suffering in the world?" God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see, unlocks the love in people's hearts." The little soul was confused. "What do you mean," he asked. God replied, "Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone." The little soul began to understand and listened attentively as God continued, "The suffering soul unlocks the love in people's hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely, because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this - it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer - to unlock this love - to create this miracle for the good of all humanity."

    Just then the little soul got a wonderful idea and could hardly contain himself. With his wings fluttering, bouncing up and down, the little soul excitedly replied. "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people's hearts! I want to create that miracle!" God smiled and said, "You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. They have already chosen a name for you". God and the brave soul shared a smile, and then embraced.

    In parting, God said, "Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed." Thus at that moment the brave little soul was born into the world, and through his suffering and God's strength, he unlocked the goodness and love in people's hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys, some regained lost faith - many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened. God was pleased.

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    1. This very idea came to me in the middle of the night when I was thinking of Ty and questioning why. Then a peace came over me when I realized the miracles here on earth that the entire Campbell family has created. It is truly a beautiful thing.

      Thank you for posting this beautiful story that helps to make sense of this suffering.
      God bless Ty, Cindy, Lou and Gavin now and always. Their pure, raw and never ending love is an inspiration to all

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    2. This is absolutely breathtaking and beautiful.
      Cindy and Lou, I have been reading for the last month or so and I again, just do not know what to say that could possibly be right, except that you are DOING everything right and Ty will ALWAYS know that. ALWAYS. My God, please never think that you have failed him, that is furthest from the case. I have a feeling that when the time comes, Ty will make sure that you see him, hear him and never every forget and I really feel that he will always send you signs and reminders through his adorable little brother too. My love to you on such a high level, please stay strong and PLEASE KISS TY on that hipster head of his for me. xoxo

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    3. wow that brought tears to my eyes. beautiful story. ty you are so strong.

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  96. ^^^^^^
    This is absolutely beautiful.....Ty is a miracle....not his brave battle but his very soul! My prayers are with you all for peace.

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  97. I'm not the praying sort, at least not in the traditional sense, but I find myself on my knees in prayer, begging for a miracle for Ty and your family. Someday I'm afraid that I may break as I share in your grief. I wish that each of us could shoulder some of it for you and make your load lighter, but I know that is not possible. I will go to school today to pick up my 5yr old and as he jumps into my arms I will think of Ty as I always do and I will hug my boy a little longer and a little tighter. Praying, wishing, hoping for smiles today. Prayers, love and light from NC.

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  98. Dear Cindy and Lou,

    You are the most wonderful parents and have done everything possible for your Ty. Please do not feel like you failed him for that couldn't be further from the truth. I read your posts with such pain and heartache for you. The situation you find yourselves in as parents is unfathomable, and I know you are doing the right thing by keeping Ty at home. I am sure he can feel the love surrounding him in your home,. I can feel it through your posts. Your connection to Ty is so visible.

    I pray for you constantly and can't get the gorgeous images of precious Ty out of my head. That smile, that hipster hair, those lips, and his freckled foot. God bless all of you. I am not giving up on a miracle.

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  99. Two of the most heartbreaking photos. No parent should have to go through this. And no child should feel this kind of pain. But one thing that Ty does feel is love. First and foremost from you, Lou and Gavin. And then there's all of us--the many many that you have touched with your words and unselfishness. Ty couldn't have picked a better set of parents. I hope Ty smiles tomorrow (today) and even better that he gives you a big sh$t eating grin! I am praying for you and your family...
    Jennifer in NC

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  100. Precious Ty: I read your update late last night as I always do before bed. Needless to say, I cried myself to sleep as I am sure your parents do every night. Oh, how all this just breaks my heart. I am so sorry you have been uncomfortable. I prayed for a better day today. I am crying again as I write this. I have a huge lump in my throat. All of this is so hard to take in. You have been such a trooper through all of this. I love you and your family.

    Laura in Texas

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  101. Lou & Cindy,

    I have been observing a moment of silence & prayer during daily Mass for Ty & his family, his parents, Lou & Cindy.

    Thank you for sharing Ty's courageous & heartbreaking journey. Ty has deeply touched my heart & soul. My continued thoughts & prayers are with Ty & all of his family, most especially, for his parents, Lou & Cindy.

    God Bless.

    - Swannee

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  102. oh Cindy - having held my own sons when they were sick and feverish Ive prayed for a quick recovery. How do you handle these long days. Smiles are in your future - I hope he is fever free tomorrow. More prayers coming your way!

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  103. My heart breaks and I weep reading today's post. I also have a 5 year old son and I hug him tighter and stop to appreciate him more because of Ty and your family. I find myself praying alot for Ty, with my 6 year old at night, as I do chores around the hose and as I lie in bed in the quiet of the night. I can't imagine your pain. No child should have to endure what Ty so bravely has, the fact he smiles a all is a living testimony to the beautiful, strong, amazing boy he is and I know no one has to tell you this, you see and live it everyday. Ty changes lives everyday. I know no one can read your blog and not have their lives changed. Ty is and will always be a gift to many people. I will continue to pray for Ty and for your family and when and if Ty goes to that place where he will truly be free I will be paying for your family to find that place where you can find peace. Thank you for sharing a piece of your special boy with us, he has forever enriched and changed my life.
    Tammy

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  104. I am so, so sorry that Ty had a rough day yesterday. I pray that he feels better today, and that you'll see his beautiful smile many times throughout the day. I can't even begin to imagine the pain that you and Lou are feeling, but I, too, agree that you're making the best decision for him. He has been through so much, as have you, and it's time for your family to be together at home without Ty being poked and prodded. Your love is so great, and so powerful, Ty can feel that love above the pain and discomfort he is feeling now. You and Lou have given Ty the greatest gift you could, unconditional love from the moment he blessed your lives. Saying prayers, as always, for the Campbell family.
    Trish

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  105. I sit here and recite a thousand different things in my head, trying to figure out the right words to say. I wish I could offer more than to say I am praying or how much your words and pictures have meant to me over the last few years. Ty is the last person I think of before bed and the first one I think of in the morning. I long to know how he is doing. I want all of his pain and suffering to be gone...I want a miracle for Ty. Cindy, you and Lou are amazing. Don't ever second guess anything you have done. You are all exactly where you need to be right now. I am sure that Ty is so at peace having you and Lou close and silly Gavin being the entertainment:) The love you all share is simply incredible. Keep snuggling and smelling that beautiful little boy, keep whispering in his ear. Keep doing exactly what you are doing!
    Sending warm thoughts and prayers!!
    Michelle from NH

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    1. With all my heart and soul I want Ty to get better, for him, for you, and for the rest of the world.
      But if he doesn't, my hope for you is that you are able to live everyday knowing that Ty's story will never end, and that by sharing him with us there is no part of the world he can't touch. I know that isn't much comfort, but I feel strongly that your work (because of TY) to raise awareness for childhood cancer will continue to live on through the generations. And to every family you help inspire and save will come a little bit of Ty's wonder and strength.

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  106. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.

    – Isaiah 40:30-31 (NIV)

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  107. Dear Ty-

    You are my super hero and pj's are your costume.

    :-)

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  108. Dear Cindy & Lou

    Words cannot express how I feel right now. I cannot even begin to understand what your feeling or going thru. I do know that your Ty is my Hero and I will never ever forget him or your family. As I have said before Ty has made me a better parent by truly appreciating everything my 3 boys do no matter what. I think it is so cruel and unfair that anyone especially an innocent little boy have to go thru the horrible daily struggle of cancer.

    As always your family is in my thoughts and prayers

    Much Love From Ohio
    Brandy XOXO

    PS.....FU cancer!!!!!

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  109. I am so sorry for a rough day for Mr. Ty. He is such a beautiful child and deserves the world. I pray for him constantly. If there comes a day where he is able, I would love for him to come to AR and jump in the puddles with my boys. I know they would be up to all kinds of no good trouble, and that we would love every minute of it. I wish you all the world's love and healing blessings for tomorrow.

    Sarah Cooper
    AR

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  110. I'm so sorry you had a bad day. Praying and thinking of you guys all the time.

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  111. The sheer number of people who are following Ty's valiant fight and your family's ordeal is testament to how eloquently you share your day-to-day struggles and moments of tranquility. No one can believe what Ty is going through and the injustice of it all. You are obviously under a tremendous amount of pressure, but you appear very much in control and at peace in your photos. You are both very loving parents who are doing everything you can possibly do for your wonderful son. People all over the world are pulling and praying for you. It's tough to fathom what you and others like you go through with a seriously sick child. Clearly, life is not always fair but it is worth living and that's why we have an inner strength to cope with unimaginable grief. I join the multitudes in wishing Ty the best and peace for all of you. He will always be a part of you and his smile will never fade. Many, many people are thinking about him and rooting for him. Thank you for sharing your life and teaching us how to appreciate the small things. God bless Ty and your family.

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  112. I think about Ty every single day and pray for him and you and your entire family ever night. Ty is a fighter and inspires me to be a better mom. Each night I read your posts I immediately go in to my 3 year old twins bedroom and kiss them 1000 times, so grateful for their health but so very haunted by what Ty and you and Lou have to face everyday. Your words and honesty go straight to my heart and touch my soul. There are no words to describe how sorry I am and how unfair this is. Childhood cancer has to be stopped...this is not right or natural. You are always on my mind

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  113. There isn't anything to say that hasn't already been said a 1000 times by everyone else but somehow, I don't know, maybe it helps a little bit to know just one more person is praying for your son?

    My kids and I read the updates and have watched Ty's videos and as everyone has said, we are so grateful for your strength to share with us - perfect strangers - your pain and sadness.

    I will never know or be able to give you any reason this has happened to Ty but I truly don't want him to suffer any longer. Please God save this little boy from any more suffering.

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  114. Dear Cindy, Lou, and Gavin,
    I am speaking for all of us who are always awaiting your next post. We feel like we are part of your family and love Ty so much. We are here with you. Please know that. Tell him how much we all love him. Kiss him again and again today. I am so sorry he has to go through this. Cindy, you are an amazing mommy and I am dying inside for you. You and Maya are changing the course of Childhood cancer...one blog at a time. We will continue to spread your story, it is the least we can do...
    With love,
    Demetria

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  115. Dear heavenly Father, please comfort Ty and his family during this difficult time......

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  116. There is not a single day that goes by that I don't think of your son and your family. I have four children due to IVF. The best way to describe to you how my family thinks of you is this....my fertility doctor was my God and you my dear are my angel. You have reminded me of the love between a mother and child. You have reminded me to be the best i could be to them EACH and EVERY day. You have reminded me to cherish even their fights. You are truly amazing parents. I will forever be grateful for getting to know Ty and your family through your posts. You have changed me FOREVER. I wish nothing but peace for you all during this heart wrenching time. Please know that you are all in our prayers. Even my children. Ty is our hero and so are you guys. With lots of love and prayers.

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  117. Prayers, prayers, and more prayers....sending prayers from Long Beach, NY.

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  118. I was out most of today, but when I got out of my car in the driveway there was a hawk circling overheard. I said a prayer for Ty and remembered the hawk that was released. I came in open up the laptop and went onto your Blog. I just sat here and thought about the hawk. Hope you find peace when you look up in the sky and see a hawk flying overhead. Positive thoughts and prayers coming to the Campbell Family. Catherine Trifiletti

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  119. I am so so sorry. I sit here everyday catching up with you and I just cry. Love to you, to your sweet, beautiful, brave, best-good-boy-in-the-whole-world. I pray and think of you constantly. For peace, for the easing of his pain and yours (though I know there is really no easing your pain) and I hope you can feel the love and goodness you inspire around the world. Inspiring families to love eachother and appreciate eachother more. I promise you that I will not squander a single moment I am given with my son. Love, love, love and peace for you.

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  120. oh cindy. i am sitting in a restaurant sobbing. your writing is so vivid and beautiful i can almost feel your pain (of course no one except someone who has walked your shoes can really come anything close to feeling your pain). if i were Ty i would feel so grateful to have you as my mom. you are a ray of light. you are walking this disgusting journey with so much grace and kindness and gratitude. it's so unfair. why couldn't god take a child whose mother did not love him so? A drugged out abusive mother? that you are being robbed of this beautiful soulful boy makes me want to scream. whenever i see a hawk here in LA I, too, will wonder if it is TLC. prayers and so much love for you, ty, lou, and gavin. i think of you every single night when my head hits the pillow and i am holding you in my heart and hoping for some peace for you.

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  121. I really cant say anything else or anything different from what eveyone else has said here. Just that I too feel the exact same way as soooo many here. I feel so much love for lil Ty and I will not stop praying with all my heart and soul for him or your beautiful family. There has to be another miracle for lil Ty. There has to.

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  122. You and your husband have amazing strength. God bless you both and your wonderful son.

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  123. I read and watched you video last week on the Journal News website. Since that day I cant get TY off my mind. I get excited and hopeful when I come home to read your last entry. He is embedded with prayer and hopes for a miracle. Miracles happen everyday and that little boy will change the world if God allows.
    My prayers are with TY and his family. May God grant the miracle of healing to Super TY Campbell!

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  124. I saw your story in the journal news, and for the past two days have read almost all of your blog entries. I have a 2 year old son and it's alarming how much he looks like Ty. Brandon and I have started to pray for Ty at bedtime and will continue to do so. You and Lou are so brave to share your experiences but I know you have touched lives. Ty is an amazing child and will be with you always. Know that everyone is praying, crying and mourning for you and yours! Love and well wishes from Monroe, NY

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  125. Esta dura experiencia en sus vidas esta cambiando de alguna manera mi vida y la de muchos mas. Me doy cuenta de lo fragil que es la vida y de las bendiciones que tenemos. Dios bendiga a Ty y a toda su familia. God is with you every second..I am sure Ty feels him..

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  126. Tomorrow for school spirt week my school is having superhero day.... as long as I can find my super Ty tee shirt ( i have recentely moved and lost a lot of tee shirts) I will be wearing that.As always prayers and hugs to you all.

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    1. Can you please tell me where I can purchase a SuperTy shirt? When my school does it's March of Dimes walk I want to wear a SuperTy shirt.

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    2. I am not sure I got mine at an event that I went to back in June.

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  127. My two little boys, ages 7 and 9, are outside playing in the rain as I type this with tears in my eyes. Thank you, Ty, for helping me appreciate the small things that mean so much to a child. My little boy just ran in and gleefully said how much fun he was having. That is because I would have never allowed them to get wet and muddy before a little boy I have never met opened my eyes. I love you, Ty Campbell

    It's me, Laura, in Texas. I have already messaged you today, but I just had to let you know how much you have inspired me to be a better parent. Hope you day is full of beautiful smiles.

    Laura in Texas

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  128. Sending prayers for Ty and family. I don't know what else to say except that my kids have a picture book called Heaven is for Real (there is an adult version as well) and I think it might be a good book if you don't already have it.

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  129. Thinking of everyone under your roof tonight. Love u

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  130. Cindy, You are such an inspiration to me as a mother. I read your posts every day and pray for a good day, pray for no pain for Ty. I also have a Ty although I choked in the hospital and put "Tyler" on his birth certificate!! My Ty is 7 and I will someday share Super Ty's story so that he too can remember to smile. Love and prayers to you, Ty, Lou and Gavin.
    Karen

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  131. Thinking of SuperTy and all of you with love and prayers of healing.

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  132. We love you SuperTY! Our hearts and prayers are with you every day. Cindy and Lou- you are amazing parents. Your hope and faith is what will get you through anything handed to you along with your love bound by the four of you- it will exist forever and no one and nothin can ever take that away. Prayers for your night to be better, for your miracle. I am so sorry that any child has to endure this- it isn't right- and know you have changed the lives of so many by your blog and you have put a face to this horrible issue that is unacceptable. I will forever fight for this cause- and it is because of Ty. <3

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  133. This story has really changed my life in so many ways! May God Bless you All. Ty is in my Prayers everyday. Mike Kehoe from Florida

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  134. Sending so much love to the Campbell family.

    The love and compassion you both have for your baby boy is truely amazing and makes my heart swell. You are doing amazingly, i could speak about how amazing all 4 of you Campbell's are all day. I hope there are more smiles from Ty today and that he is comfortable xx

    Lots of love,
    Megan
    Australia.

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  135. I praying for you always, hoping today was better.

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  136. I love you, Superty. You have changed my life. Nothing is the same after I got to know you. God bless you and your family.

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  137. God Bless you all

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  138. At the end of every storm, there is a rainbow-- Tomorrow, there will be smiles! Hope you have an easy night. You are ALWAYS on my mind, SuperTy!

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  139. Earlier, my 4 year old asked if we can check on Ty. We pray for a miracle every single day!!

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  140. I am hoping for a good day for you tomorrow, Ty. I am thinking of you tonight.

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  141. I have been thinking about and praying for Ty and your family nonstop. I wish I had words as eloquent as yours to express how inspired and amazed I am by all of you. I am so so sorry for the hurt in your heart. As I read your words I wish I could offer you more support than a simple post, but please know that you remain in my thoughts and prayers.

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  142. Thinking and praying for you as always. Sending so much love and positive thoughts to you. Praying for a good night and a day filled with smiles tomorrow. Xoxo

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  143. I check your blog daily, and most recently, a few times a day. I have told every one who will listen about Ty. I've prayed for him and asked others to pray too.My heart aches for you, for I know how hard it is to watch someone you love, someone who so deserves to grow up fade away due to Cancer.This insidious disease has invaded so many of our lives. I curse it, I cry because of it and mourn the loss of so many because of it.May Ty have restful days and may you and Lou stay strong and give Ty the gift of ever lasting peace he deserves. Tell him you will be ok. Never stop praying for a miracle but also let Ty know that it's ok for him to go and be God's most beautiful, smiling angel.Prayer are with you all. Connie Domangue

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  144. I have been thinking of Ty and your family all day. I so badly hope it was a better day. You all deserve it! I have a young son and reading your story for the past month as made me appreciate the little things so much more and have so much more patience. I thank you for that and will continue to pray for Ty! You and Lou are doing such a great job!

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  145. When I read your entry this morning my heart hurt. It hurt to hear of the horrible suffering of your precious Ty. It hurt to see his beautiful and helpless face. And, it hurt to even try and imagine your pain as his mother. Since I have been praying for Ty daily and wishing for a miracle, I did a little research today to see how often those miracles really do happen. I actually found something interesting from two different reliable sources.

    Spontaneous remission or regression is a documented medical occurrence that, although very rare, marks the complete recovery of a patient suffering from advanced cancer. What I found most interesting was that in almost every case, prior to the spontaneous remission, the patient suffered from a bad infection and high fever. As a result of the fever, the body also fought off the tumor or cancer cells. I can't help but think that that might be what is happening for Ty. Let that fever burn; let it kill the horrible monster that has taken over his precious little body.

    As always I am praying to God that this be Ty's miracle. I am begging God that he no longer suffer. Cindy, I thank you for sharing his story so honestly and eloquently. I am no stranger to cancer as it robbed my family of a child just five years ago. I promise to join you in this fight for as long as it takes to save innocent children. I promise you are not alone although the pain must feel unbearable most of the time. Stay strong and trust that God will take care of Ty. I so wish I could take his pain away. xo

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  146. While reading your entry I cried so much. I couldnt even imagine the pain you and Lou are going through. Just reading your entries every night I have so much love for Ty.
    I pray for Ty and your family every night. He is by far the strongest little boy and does not deserve any of this suffering. I pray for the biggest miracle for Ty to be cancer free. Stay strong as you are and leave it in Gods hands.

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  147. While reading your entry I cried so much. I couldnt even imagine the pain you and Lou are going through. Just reading your entries every night I have so much love for Ty.
    I pray for Ty and your family every night. He is by far the strongest little boy and does not deserve any of this suffering. I pray for the biggest miracle for Ty to be cancer free. Stay strong as you are and leave it in Gods hands.

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  148. Dear cindy and lou, I cry my eyes praying for ty's healing, for ur and ur families comfort and peace. This is not fair and I don't understand it, but I do believe in Jesus and know that he hears our prayers. I thank u jesus for tys healing. Thank u cindy for telling us ur story, I wish I could hug u and take ur pain away!! Xoxo. Summer-louisiana

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  149. I too have been thinking about your family pretty much nonstop since I was made aware of your blog. In that short time Super Ty has come to represent so much to me...he represents the best of us. I hope that today was a better day, that the night is a peaceful one, and that tomorrow is full of smiles. Dear, sweet Ty. I hope you can sense just how much you are loved.

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  150. He's a beautiful boy, always will be a beautiful boy. You've all done EVERYTHING you can and you deserve to be so proud, not to suffer :(

    I'm so so sad for you and so sorry
    Rest assure he knows you love him and that he loves you. Peace will come
    love all the way from Australia.
    PS - you are an excellect writer - have you thought about the comfort and support that other parents with sick kids might get from reading your blog?

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  151. Dear Cindy and Lou-
    I write this as a parent who has walked in your shoes. We lost our McKenna on July 21st, 2011 (two weeks before her 8th birthday) to DIPG.
    I have no words to express my sorrow and pain for all of you. For Ty, who has fought so hard and so bravely. For you and Lou, who have the burden of being the one's left behind. We are working toward a future where no child has to endure this pain and suffering, where no parents have to feel the helplessness and guilt. But nothing changes the here and now.
    All I can say is continue to love your Ty as you have from the beginning. You have done such a wonderful job of being there for him, of bringing him joy in the midst of the struggle. I know that it is not enough. I know that it will never be enough, but it is all we can do. He is an amazing child and you are devoted parents. Both you and Ty continue to inspire so many.
    My heart is with you tonight. May Ty find peace and comfort in your love.

    Kristine Wetzel

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  152. Please know that you and Maya Thompson are true inspirations to many thousands of families out there that read your blogs and cry along with you both. I am a Mom myself and have lost loved ones to this horrible disease but it breaks my heart; why do these beautiful babies have to suffer! I admire you and your families and will keep all of you in my prayers and thoughts and ask that your hearts will heal in some sort of way with time! Bless All of You and most of all your "Precious Ty!"

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  153. Always praying for you guys!

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  154. Prayers, prayers and more prayers being sent your way. My heart breaks for you, Lou and your boys. Beautiful Ty.... I look at my own little 5 year old Spiderman and I can't imagine what your going through. Hold him tight and each other and remember that love is what we take with us, through this life and the next. Gentle ((HUGS)) to you, from Margaret (Brisbane, Australia)

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  155. Please keep us posted. Worried about Ty. How is he doing today?.

    Please don't loose hope. Just hug him, hold him, kiss him as much as you can. We don't know what is going to happen tomorrow. We lost Ronan and it broke my heart. Now seeing Ty in this conditions tears my heart apart. Every night, I wait for update on Ty's health. We all are praying. I am sorry to see and hear that he is in so much pain but after all we all are mothers. Our one side cannot see our child in pain and our motherhood also does not want to let go because it's unbelievable to live life without precious ones.

    Is it possible to keep changing his head positions to avoid infections?. Not sure how is his condition. Waiting to see Ty in photos in post.

    Please keep us posted. I have 5 yr old jumping around all day long and here I see Ty in pain. I pray to God every single day that why children have to go through this who didn't even get chance to see life.

    Take care. Love Ty!

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  156. Thinking about Ty and holding his smiles close to my heart...My prayers for a peaceful day for everyone in the Campbell family.

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  157. WOW, a reassurance that if you think you are having a bad day, think again for someone out there is worse off than You. My thoughts and HOPES are with you. Your right the brutality of honesty takes your emotions all over the place. I lost my sister at 36 to cancer and I witnessed her fight and her refusal to fight more, please take my strength for your decisions for I'm sure there is days you just wonder how you keep going.

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  158. Just wanted to let you know we're thinking about Ty and your family constantly. Praying that today is a better day for Ty.

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  159. Ty,

    My continued & constant thoughts & prayers are with you & your family, your parents, Lou & Cindy.

    Ty will always have a very special place in my heart.

    God Bless.

    - Swannee

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  160. Wow what strength my prayers and thoughts are with you all x

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  161. Prayers and positive thoughts are with you. My mind is constantly with Ty and all of the struggles you have all endured. Your precious boy is so aware of all the love you give him. He could not have more wonderful, caring parents. You all are so blessed despite the disgusting disease robbing you of your beautiful boy.

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  162. It is Wednesday morning and there is no new update on Ty. I know because as soon as my alarm goes off I grab my phone and I check. My heart sinks knowing I won't get to find out if he had a better day. Then I think positive, that no news is good news. I say a prayer for all the Campbell's and start my day. I head upstairs to turn on the tv to Nick Jr (Backyardigans is on). I'm in the kitchen getting my boys breakfast together and I hear something.....something that reminds me of SuperTy. It's a song that has Ty all over it. I run to the other room to see what it is. It's a video from Yo Gabba Gabba, a band called The Roots singing "I Love My Family". You used it in the family vacation video from last year. I stood in my living room bawling my eyes out.

    I love you Ty Louis Campbell!!! I have never felt this love for somebody who is not family or close friend. You have become family to me, your family has become family to me. I will NEVER stop praying for a miracle. I will NEVER forget how you have changed my life, made me a better mommy and a better friend. I will NEVER stop doing what I can to spread awareness and raise funding for pediatric cancer.

    All my love ALWAYS,
    Elaine Hinkle

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  163. Your words just break my heart. They take me back to the start of the year when we were losing our dear boy. It is so very hard when you want their pain to go but it means maybe you have to let them go as well. So very hard indeed. I'm crying for you and Lou and your sweet Ty. You are truly an amazing wonderful mother. I hope tomorrow is a much better day for Ty. Praying for a brighter future for you all.xx

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  164. No words to send.
    Just love for you and your wonderful boys.
    xo

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  165. 1 Peter 1:6-7 "So be truly glad. There is wonderful joy ahead, even though you have to endure many trials for a little while. These trials will show that your faith is genuine. It is being tested as fire tests and purifies gold-though your faith is far more precious than gold. So when your faith remains strong through many trials, it will bring you much praise and glory and honor on the day when Jesus Christ is revealed to the whole world."

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  166. Love and prayers to the campbell's. Hopefully you are capturing today's beautiful smile as I type this. Love you Ty.

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  167. Saw this poem and thought of you.

    You have a blanket soft and light
    to give you comfort day or night
    this is no blanket ordinaire
    with warp and weft of wool so fair.
    This one is of a different type
    to help you through to pale day light
    the threads are strong the color clear
    made by friends to calm your fear.
    The strands are linked like friends far and wide
    stand with you side by side
    you need not call we always hear
    we come to catch a fallen tear.
    With this blanket and love surround
    soft threads of help and prayer abound
    a whisper here a murmur there
    a hand to hold a dawn to share.
    So take this blanket that we offer
    and wrap around you tight
    and we shall be here waiting
    when you feel the time is right

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  168. I find myself every 5 mins checking for a new post!!! Oh how I wish for no news to be good news!!I'm hoping You and Lou and Gavin are playing with Ty and he is having a smiling day! Thank You for sharing Your story with us, I found you thru Ronan, and like the person above said, You and Maya ARE inspirations and I am grateful I found both of You, although I honestly wish I had NEVER known of either one of You because that would mean Ronan would be alive and Ty would be playing with his Lil Brother like he should be!!! I dont know what else to say except I'm so sorry Yall are going thru this!!! I am not one to normally pray, but I prayed for Ty today!! I prayed for a miracle....

    Sending Love from Tampa Florida
    Michelle

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  169. No news is good news...I pray. As I do each morning when I awake, I check on Ty...on all of you. Today there was no update.
    I understand completely and yet I am SO worried. I remain hopeful...they're enjoying double the smiles to make up for Tues!!
    My family is away in Europe & when they check in via email they ask for an update on Ty!!!
    We LOVE you sweetheart. As a mommy, I LOVED those pictures from Tuesday... So Beautiful.... I sobbed when I looked at them, as I do daily.
    My prayers as always are with you...but I sure have questions some days....I really hope God knows what he's doing...I know I'm no one to say that or question, but my heart is just SO shattered for both of you. I offered Ty at a Mother Prayer Group the other day.
    Peace for today - One day at a time...
    Much LOVE-
    Diane Knott

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  170. Your family is a constant on my mind and in my heart.

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  171. Hope all is OK. You didn't post last night. Thinking of Ty and the rest of your family. Still praying.

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  172. I am so worried about Ty. Praying all day.

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  173. I just wanted to send a note saying I am thinking of you and your family. I have been following Ty's story for about a year now, and he has touched my heart in so many ways. I have been diligently reading every day for the past month and praying for your family every moment since. I live in Utah, and I am trying to do whatever I can think of here to raise childhood cancer awareness. My friend's daughter has luekemia and it has opened my eyes to this world and I have been a blog stalker ever since to so many precious children. I pray for peace and comfort for you, Lou, Gavin and most especially Ty. I know that Ty will be called to do such great work with the Lord, and he will help so many other children still here, even more than he has already.
    - Jackie J. in SLC, UT

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  174. Praying for all of you, please update us!

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  175. I cant stop thinking of Ty, and I just hope he is not in pain.... I love him so much, he is so blessed to have the most loving family, and the best Mommy! I'm constanly checking in for updates, I hope no news is GOOD news!!! Please God give us a Miracle and heal this special little boy that changed all of our lives!

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  176. I'm praying for Ty day and night!! I have completely fallen in love with your beautiful boy. Please tell him there are so many of us who love him and are praying like crazy for him!! Thinking of you Cindy and your family. Just know that you and Maya Thompson have woken my eyes to childhood cancer and I will not stop fighting this beast cancer!!

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  177. Prayers and well wishes are coming your way today from the Marist Women's Basketball family. Ty you and your family are so strong.

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  178. God Bless you and your beautiful boy! Our prayers and thoughts are with and will remain with TY.
    xoxo

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  179. We're all praying for Ty and keeping the whole Campbell family in our thoughts. Be safe, Little Ty. Be safe...

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  180. Im sitting at work just thinking about you Ty and your wonderful family. I can't get you out of my head for even a minute today (no work getting done for me). I am worried today as your precious mama hasn't posted so I am praying extra hard for you all. I know you are so strong Ty and you have been for a long time and you may be getting tired but you hold on tight and give you mommy and daddy those precious smiles that they want so bad. You are bringing people together Ty you are so wonderful. In this crazy insane world there are people all over it just thinking and praying for you isnt that amazing and it is all because of you and your wonderfully strong family. You are all amazing.
    I know my post has been all over the place and it was done with a big lump in my throat the whole time. I cannot even begin to imagine your pain Cindy & Lou I would give just about anything to be able to hug you both.
    Still praying for MIRACLES!!!
    Much Love from Ohio
    Brandy XOXO

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  181. We are an FOJ family and saw your story through FOJ. Sending love, prayers and hope for a miracle! Sending good thoughts that you are continually supported by friends and family in your community. You are doing everything you can. Be kind to yourselves and enjoy every precious second.
    Karen from Florida

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  182. Ty I hope you had a better day. you are such a strong little boy. We are praying for you. Mom always remember you did not fail ty at all you made him the strong little angel that he is. You and Lou are very special people stay strong. God brings us to it he will help us through it. Stay Strong.
    Me


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