Monday, September 17, 2012

Waiting for more answers tomorrow. Maybe.

I am so tired from crying.  I am physically and emotionally drained.  Today I sat at Ty's bedside in the PICU begging God to stop your suffering, even if that means we have to let you go.  I have done this several times before.  After watching Ty get beat up and knocked out time and time again over two years, I can't even count how many times I have had this conversation with God.  Both Lou and I talk about this all the time.  Of course, we will never stop fighting for you.  Of course we want you to live, to be with us.  Of course.  But, if it means you are hurting all the time.  If it means you won't live a happy life, then what are we fighting for?

We had another very difficult conversation with Ty's neurosurgeon today.  Let me back up to yesterday.

Last I posted, we were in urgent care.  Ty's breathing and congestion wasn't improving and he tested negative for any common viruses or bacterias like the flu or the common cold.  His eyes were crossed.  That almost always indicates intracranial pressure - and that often means another shunt malfunction.  Well, the CT indeed showed Ty was suffering from hydrocephalus again.  Lou and I were at the end of our ropes.  We insisted on an MRI before making any more decisions about shunt surgery (not an easy accomplishment in the middle of the night on the weekend, but if you push hard enough it happens).  As of today, the results are not what we hoped for, but they are still ambiguous enough that we are choosing to consider it "inconclusive" until the regular team is in tomorrow.  They are familiar with Ty's scans, the necrosis that took place in March/April, and they are better equipped to differentiate between tumor and necrotic tissue.  However, our neurosurgeon is concerned that he may see new tumor growth in the brainstem area (but not 100% certain).

That led us to another conversation in a conference room about what we should do.  Just imagine this.  He was so gentle in explaining what Ty's near future may hold, but no matter how it is worded, we may face some of the most painful scenarios imaginable for any parent.  If there IS new tumor growth, we can decide to either 1) leave the shunt as it is and allow the hydrocephalus to take over.  This means he would end up sleeping more and more with each passing day, hopefully without much pain, until he soon doesn't wake up.  2) we can fix the shunt knowing that Ty's breathing will probably get worse and worse because of the tumor until he ultimately cannot breathe without a ventilator (something Lou and I are against) or 3) perhaps he can perform a biopsy through Ty's nose (another painful surgery) to see if there are any brain tumor vaccine trials that can use a tumor tissue sample to pursue a vaccine (this alternative is a stretch - I have done a lot of research with the help of a friend and I don't think vaccines have been successful when tumor is present - it is more of a maintenance care alternative to chemotherapy). 

My mind and my actions have been racing out of control today.  One minute I'm standing at the East River thinking about how nice it would be to jump in and swim away for a while.  The next I am yelling to myself as I walk down the city streets.  Then I'm sitting in church drenched with tears telling God how I trust him (I always have, but that doesn't always help the pain).  I laid in bed with Ty for an hour, whispering in his ear that he can get better.  I made him a car out of cardboard and hospital tape so we can cover it with candy.  I feel certain he is going to die, then minutes later I am certain that he won't.  I feel like we may even walk out of the meeting tomorrow after hearing the worst, and Ty will still do otherwise just like he's done in the past. Prove everyone wrong.  One thing is for sure. I am not giving up hope, don't worry. 

What drives me crazy is this.  I have seen Ty recover in ways that can ONLY be described as miraculous, and Ty's doctors will back me up on this.  If Ty is going to do this... if he is going to beat the odds and be the miracle... then let him.  If not?  Why have those amazing feats been granted if they only ended up causing him more pain and suffering over these past two years.  Why was he saved in December 2010 when he was diagnosed with lepto-meningeal disease (which is always terminal), in Feb. 2011 when his brainstem tumor grew back larger than the original, in June 2011 when he had two new tumors the size of golf balls in his Cerebellum, in December 2011 when he suffered a stroke-like brain bleed and in April 2012 when he was suffering from radiation necrosis that is supposed to be incurable and irreversible???  He has come so far.  I can't imagine the "plan" is for him to die in the end.  I just can't.  But today, knowing what I know, I began to try and accept that possibility again. 

What would I do without him?  Ty and me... we are connected... one in the same.  We are together every minute of every day.  He is 99% of me and he is everything that makes me who I am.  Please pray for him.  Please share his story.




117 comments:

  1. Praying for you tonite, like every nite.

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  2. I don't have all the right words to say, but know that I'll be praying for you tonight and everday after. Be strong little fighter, knock that cancer out once and for all!

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  3. Praying for Ty in Arizona tonight - just like I have since I first heard his story in December 2010...

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  4. Continuing to pray for all of you. Sending you more strength, faith and hope. Keep fighting and we'll keep praying. Xoxoxoxo

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  5. Praying big prayers from Sacramento, California

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  6. I can not articulate my thoughts very well. I don't know why sweet Ty has to go through this. I don't know him, but I love this little boy. I will be praying.

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  7. Praying harder tonight. May God bless Ty and give comfort to his family.

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  8. I pray every night for Ty and your entire family. I cannot imagine what you must be going through and wish I could give you all the comfort, and peace you deserve. Will be praying extra hard for Ty, he is a little fighter who keeps winning! He's come so far and I believe he'll keep going!!! Xoxoxo

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  9. I am praying for your beautiful, sweet little boy since the moment I came across your posts. He is on my mind constantly. Sending positive vibes and courage for you dear mom. For your whole family.

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  10. I am praying for Ty tonight and asked my two sons to pray at school tomorrow in their class (they go to Cathoic school). I believe in miracles and it sounds like Ty has been one.

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  11. I will be praying for you all! God has a plan for you and Ty, just stay strong!

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  12. I'm praying for all of you tonight just like everyday

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  13. So sad to hear Ty is going through so much once again. He has been so strong and I just want him to be painfree and peaceful.I know you have been pushed to no end with all this and I have been through it with my little cousin. It is draining to the max.
    May God's peace, love and guidance be there for your whole family. TY and Gavin are two awesome little boys. I am just feeling so sad for Ty and for all of you.May God's peace and love just surround your family.

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  14. My heart was breaking reading your post today. I will be praying for Ty and your family.

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  15. Stay strong for yourself and your family. As always, prayers for Ty from Chattanooga.

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  16. Praying for wisdom and compassion from the doctors today and strength and courage for your family and Ty. Thank you for keeping keeping us updated - Rebekah

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  17. He is a proven fighter. Prayers for him, you and Lou as always.

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  18. Praying for all of you. It isn't fair at all.

    I'm so sorry that you are back in the hospital.

    Jenni in Ohio.

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  19. I have been following your blog for about a year now, but never posted. I am sorry for all that you are going through. You and Lou are amazing parents and I admire your strength. Ty and your family are in my positive thoughts.

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  20. I'm speechless, Ive been following your story & was at the divitto fundraiser to help raise $ for TY, I was so touched by the outpouring of love & support in this community. I pray for you & your family and that special little fighter Ty!! He is a remarkable little boy. I can't imagine what your going through & I know there are days when you just want to give up but hold on, hold strong & have hope as you always have.

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  21. Thank you for sharing your ups and downs on how you feel. You are entitled to have all those emotions. From reading your blog for so long, this post sounds like the one you write right before you gear up for the fight! You and Lou will know in your hearts what is right for you and for Ty. Trust yourself. Your instincts have proven right time and time again. Sending you prayers and moments of peace in your day,
    Lynne

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    1. Ditto - Lynne said it perfectly. Continued prayers, prayers, prayers and love sent to you all. ~ Julie

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  22. I have been reading all of your posts and my heart breaks for you all. Ty is the most amazing little boy I've ever seen. Keep fighting!! Saying lots of prayers for Ty and for all of you!! Stay strong!!

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  23. I am praying for Ty and your family. I'm so sorry that he is suffering like this. He is an amazing little boy and loved by so many. Continued prayers - and strength.

    Ann from Buffalo

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  24. My thoughts and prayers are with you all. It hurts my heart to know you are all suffering so much.

    Gina

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  25. Hello Ty & family. My name is Liz from NJ. I am relatively new to your story but my family is in a parallel scenario with our son Owen. He is 6 years old and has been fighting stage 4 cancer since April, 2011. Owen beat his cancer back last October yet sadly, as of this July we were told it has returned in his brain. He has a shunt & has been fighting hydrocephalus off and on until pesent day and have spent many nights in the PICU. We have prayed for a healing miracle or for God to just take him painlessly. I read your most recent post and could have written it myself. My heart bleeds for you & your family as it does for my own. I watch my son become increasingly more sick yet he has fought and beat & fought & beat this thing that Owen's doctors are equally as baffled as they are over Ty's remarkable journey. I too have had the conversation with God and asked why had He brought him to this place, over so many hurdles if in the end he would just pass anyway. I too have see-sawed between feeling like he would certainly pass, quickly changing to the feeling that he would be brought through yet again to his certain cure...I have no words to make it any better other than I can understand like few others. Stay strong & I pray for your family...

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  26. How my heart truly breaks for you sweet precious Ty and your family. Cannot even begin to imagine the horrible roller coaster of emotions and please know just reading this post, I, too, question the ways of our loving God. Yet, since we live in a world full of evil, I know that God is not the one who has caused this to happen for He is kind and good. We may never fully understand this side of heaven, however, one day when we see the Lord face to face, it will be completely different.

    Asking, trusting and believing the Lord to intervene as only He can and shower down His mercy, love, goodness, kindness, encouragement, calm, grace, healing and peace. May God remove all pain, discomfort, disease from your precious body, Ty and restore him as God made him to be whole and healthy.

    Sending much love and hugs.


    Isaiah 58:8
    Then your light will break forth like the dawn, and your healing will quickly appear; then your righteousness will go before you, and the glory of the LORD will be your rear guard.

    (F)ully (R)ely (O)n (G)od
    FROGGING FOR YOU!!

    "An infinite God can give all of Himself to each of His children, He does not distribute Himself that each may have a part, but to each one He gives all of Himself as fully as if there were no others" - A. W. Tozer

    ♥ ♥ ♥ ♥ *GOD LOVES YOU* ♥ ♥ ♥ ♥

    In His Love,

    Caterina
    caterina@colesfoundation.org
    C.O.L.E. (Caring Openly, Loving Eternally) Prayer Team
    www.colesfoundation.com www.colespages.org
    24/7 Prayer Line 888-365-COLE (2653)
    www.kidsunitetofight.com

    "There are many Americans who are clever and fearless, but the trouble is many are small children fighting an ugly disease."

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  27. Prayers from Austin, TX. I have been following your blog for so long now, I feel as if I am part of your family! I have grown to love your Ty and Gavin as if they were my sons as well. I can't even begin to imagine the nightmare you have been having over these last 2 years! And I don't want to see this with any other child either. You stay strong! We are here to help you battle this fight and collectively our prayers and faith will help you continue to fight this fight!
    We love the Campbell family!

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  28. I've been reading your blog a long time and always pray for Ty and your family. I will continue to do so an share his story. I'll light a candle too. My Irish side of the family always does this for extra prayers. Stay strong!

    Allie

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  29. I've been following Ty's story for a long time. Today again I'm praying for peace and healing for you guys. Bless him and all of you.

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  30. I am always praying for Ty as I know many others are too. Miracles happen and we should never give up hope.

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  31. Hi Cindy, First & foremost, my heart and soul goes out to each and every one of you and I pray for Ty to beat this just as he has so many times in the past. You guys have become an extended part of my family and I cannot even begin to imagine what you are going through or what poor little Ty is going through. It's hard to understand why things like this happen but I do believe that God brings these special people into our lives for a reason, they are a gift from God. And though their time here is sometimes way too short, I can't help to look at all the joy and love they bring, all the people they touch. Most bring more love & joy to the people around them then 90% of people do when living to be 100 years old. Maybe it is God's way of grounding us and teaching all of us not to take life or him for granted, I don't know. Just like when Jesus suffered and died for all of our sins, he did that to serve a purpose, it was not in vein and I can't believe that all of Ty's suffering is in vein either. I know it is not fair especially to all of you, it is awful. I have lost several special people to cancer and although it has been painful I feel so blessed that I had the pleasure to know them, to be part of their lives. I know that doesn't mean a whole lot when you are going through it but know that their is a lot of love and prayers going out to all of you. May God help you to stay strong and may he be there in your time of need. God Bless. Love you all.

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  32. Cindy and Lou,

    I have a deck of Archangel Rafael healing cards from which I choose a card for insight into my prayers when there is a health challenge in my life. Today I drew one for Ty and his health and your stength as parents, and I chose "Improving Health". It read: "Archangel Rafael is offering you inside information concerning the health information your are inquiring about. He wants you to know that your prayers and healthful actions are working, so stay on this positive path. It may be some time before the improvements are visible or palpable - in the meantime please remain optimistic and continue taking positive lifestyle actions." And then it goes on to say, "If you are the healer, this card symbolizes that you are on the right path. The changes you've been recently contemplating are indeed guidance from Archangel Rafael, who assists with your healing work. He is with you every step of the way on this healing journey." To me this speaks as a reminder that our doctors have angels guiding their work too. :)

    I am holding you all in my prayers today as always. And just so you know, I have never gotten this particular card before - so it stands out all the more to me.

    Love and hugs,

    Marianne

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  33. I never had a true hero in my in my life. Since learning about your beautiful boy I found my hero. Ty has changed my life. His will and strength and determination always amazes me and he had made me a believer in never giving up. And renewed my belief in hope and faith. I wish I could truly express in word how much you boy has meant to me. All I can keep saying is he is truly and will forever be my hero

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  34. Thinking of you always. You are a mother beyond describing words. God Bless Ty and your family.

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  35. I have no words - my heart hurts so much thinking about what you all are going through. I wish I knew the right thing to say or had the power to perform a miracle myself and make Ty all bedda. Just know prayers are being said and love is being sent to all of you. Believing in Ty, praying for a miracle - SuperTy always....

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  36. Cindy,

    My heart is breaking as i read this update. I am praying for strength for you and Lou as you make such impossible decisions for your beautiful little boy. Just know that whatever you decide, it will be what is best for Ty as no one loves him more than you and knows what is best for him. He is so courageous and such a fighter, and it's because of the strength he has gotten from both of you. Your family is loved and lifted up in prayer by so many. I hope that helps bring you some peace today.

    Brenda

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  37. Please know that you are an amazing mother and are doing everything you can for this sweet little boy. You are all in our thoughts and prayers. God Bless You.

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  38. I feel there isn't anything that a stranger can write to you to make you feel any better; other than to say that my family is praying for Ty and your whole family. My kids and I have been praying for Ty at night for a long time, but today I will pray all day, non-stop for him and for you. Your family is in my heart and soul and I wish healing and peace for all of you. God Bless You.

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  39. I am so sorry to hear this news. Bless you all. I can't imagine the thought of Ty leaving. It truly breaks my heart. I hope that indeed another miraculous event will take place, and Ty will get a little better. Hopefully there is no tumor growth happening again. Ty has changed my life and the way I see the world. Ever since I learned the horrors of cancer and have seen Ty I wanted to help. Praying for you all and my hero SuperTy

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  40. I never had a chance to post to your blog before, but I have been following your story with your precious son the whole time, and I am in awe of your strength and compassion in the face of this horrendous disease attacking your beautiful,and angelic little boy, Ty. I truly believe that all of our collective prayers and good thoughts from the rest of the outside world have gotten Ty this far. There is no other explanation. The human connection,even just spiritually, is so strong that it can create miracles and beat down fear and desperation, for all of us. I know this because following your story has helped me tremendously in dealing with the unexpected death of my 81-year old Dad from colon cancer, eight months ago. I know this is NO comparison to what your whole family is going through, but it was my first major loss of someone so loved in my life. But reading each day what you all, especially Ty, have been going through and the way you have handled everything with such amazing both gentleness and strength, has given me hope and relief from my profound grief that's been causing me such anxiety and depression. So, from the bottom of my heart THANK YOU! Now it's my turn. My thoughts and good wishes are with you every minute of each day. May Ty overcome this latest setback with the show of another unexplained and well-deserved miracle. And whatever happens, may you find peace in your hearts,knowing you did the best you could by being the best parents to this incredible and unforgettable little boy. God Bless!

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  41. Praying for you as I have for the past almost 2 years now. I read the blog then update my mother on how you are doing. I feel attached to you although we've never met in person. Prayers for Ty to beat the odds and come out stronger than ever!

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  42. He will survive this !!!!You will see him get married and have his own kids . BELIEVE !!!!! God knows what he is doing and he made you both Tys parents for a reason. You are both strong and have powers beyond this world . Ty will live, Ty will live ,Ty will live . Destroy any evil thoughts in your head that he will not . I have been following the story of your baby the whole time , I read it before I go to sleep at night most times its with tears in my eyes but the nights that make me smile make up for those. Keep fighting it will all turn around and he will become a healhy little boy who will be able to one day help others . God Bless you and your whole family he will see you though this .

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  43. Cindy and Lou:

    Ty is a miracle, never forget it! GOD is within him and all of you. Never doubt for a second in the hope of a better tomorrow.

    May God and our Mother, the beautiful Virgin Mary, hold you at this time and guide you and the Doctors to make the right decision. They have never left your side; you have witness it over and over.

    The power of prayer IS the strongest force and we will all do so to prove it! Every second Ty and all of you will be in our thoughts and prayers of thanks for his health and may the strength needed to fight this sickness come from within. The light of God will shine through

    REMEMBER:
    No matter how dark the moment, love and hope are always possible. - George Chakiris

    Love always,
    Rosalyn, Keith, Christian and Juliette

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  44. I am praying to God with all my heart for lil Ty , for a miracle. Words cannot express how much my heart aches for lil Ty and your family. I ask God everyday to take care of your lil angel Ty and all the children suffering. I will never stop praying

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  45. Never underestimate the power of prayer. God can do miracles. Believe it!

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  46. You have the strength inside of you to deal with all of this...you can do this Cindy and Lou. God gave Ty to you for a reason...you were chosen for him. It is ok to cry...yell...scream ...and wonder how you will get through this...but you will. Keep praying...as I will also for Super Ty.

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  47. You can do all things through Christ Who strengthens you... Every breath I take will be a prayer for Ty. Lord Jesus Christ Have mercy on Ty. Most Sacred Heart of Jesus I place all my trust in thee.

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  48. Praying for you today and every day, Ty. Not a day goes by where I don't think of and pray for you. My entire family loves you and we are praying for your continued strength. The Bonura family loves you, Ty!

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  49. I've never wrote before on this blog but I have for over a year been reading it and praying for Ty. Not a day goes by that I don't think of him and of you and your family. My prayers are with you all today and everyday. May God bless you all and give you the strength you need.

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  50. You are wonderful parents. I have been reading Ty's story for over a year. I admire all of you. Sending prayers from Florida.

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  51. I have never posted before but I have followed your story for a long time. I think of Ty all the time. You are an amazing mother and family. Will be praying so hard for all of you!

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  52. I pray for Ty and all of you every night and several times a day. I am praying extra hard today that you get an answer you can handle and Ty can get thru without more pain. God Bless you all...Jean

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  53. Ty and family will be in my thoughts and prayers. Believing in another rainbow....

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  54. Sending prayers from Louisvile, Ky
    I too, have been following your blog for well over a year, but this is my first post. Please know that I am and have been praying for all of you. Cindy and Lou, you all are amazing parents- words cannot convey my thoughts to you all during this time
    God bless

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  55. Oh Cindy, how I wish there was a way to take this all away. I pray so hard for Ty and his family. I often wonder the same things you do,,,,why?? My heart breaks for you and Lou. Gavin too. All of us who "know" you through your writing, who love you like family. I will never stop believing in the miracle that is "SuperTy". He keeps me going on days when I think I want to give up. I will be praying for positive news tomorrow.

    All my love always,

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  56. Your love for your incredible son will help you make the right choices for him.
    Love and prayers from Indiana;
    God bless you and your family.

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  57. I have read your blog since the start and feel as if I personally know you and your family. You are amazing and an inspiration to all with your strength. This is the first blog I read each morning. i am heartbroken over the recent events and pray everything takes a turn for the best. Please know that you have many people cheering in your corner and we are all thinking of you and supporting you.

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  58. I dont know what else to do but pray, so here is a prayer to St. Peregrine, the patron saint of cancer.

    Prayer to Saint Peregrine

    O great St. Peregrine, you have been called "The Mighty," "The Wonder-Worker," because of the numerous miracles which you have obtained from God for those who have had recourse to you.
    For so many years you bore in your own flesh this cancerous disease that destroys the very fibre of our being, and who had recourse to the source of all grace when the power of man could do no more. You were favoured with the vision of Jesus coming down from His Cross to heal your affliction. Ask of God and Our Lady, the cure of the sick whom we entrust to you.
    (Pause here and silently recall the names of the sick for whom you are praying)
    Aided in this way by your powerful intercession, we shall sing to God, now and for all eternity, a song of gratitude for His great goodness and mercy.
    Amen.

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  59. Praying for Ty and your entire family. May God watch over Ty through his journey and be by his side as he fights this horrible disease. God works in mysterious ways. Sending lots of prayers from Rockaway Beach.

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  60. As always, your family is in my thoughts and prayers.

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  61. I am praying for you and Ty and your family. I can not imagine as a mother dealing with what you are dealing with or have been. I have one daughter and if I ever lost her I don't know what I'd do. She keeps me going. You keep Ty and your family going I'm sure. Your love. Your in my prayers. I don't know you, I did go to school with Lou. Stay strong. God bless you.

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  62. Praying for Ty and your whole family





















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  63. Praying for you and your beautiful son <3

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  64. Cindy, Ty, Lou, and Gavin as well as all of your extended family We are all praying as always and believe in miricals because if you.
    Much love

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  65. Cindy Lou. We are all responding now because you need it most. Love is all around the air! I feel it

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  66. I am in love and praying!!

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  67. I am praying for Ty tonight. You are amazing parents to an amazing little boy!!!

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  68. Cindy I am praying.....my heart is skipping beats. I know Ty will fight WITH ALL HIS MIGHT.He is a true Hero.. a real super Ty.I wish God would let him be the MIRACLE.......AND BEAT THIS HELL UP.I BELIEVE IN HOPE..NEVER GIVE UP.PLEASE KNOW I AM HERE FOR ALL OF YOU! JUST A PHONE CALL AWAY.........LOVE YOU ALL SO MUCH!
    CATCH XOXOXOXO Love Mary

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  69. Love your boy! Prays with you all

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  70. so sorry your family is going through this.. Prayers, prayers, and more prayers coming your way. I have been rooting for Ty for a long time and I will continue to do so.

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  71. Prayers, prayers, prayers... May God guide you and hold you all tight.

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  72. I am fighting I'm fighting for Ty

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  73. Cindy and Lou - I know you must be running short on faith so I am sending you all my energy, thoughts and prayers.

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  74. Cindy and Lou- We are constantly thinking of all of you and we keep Ty close in our hearts. Stay strong and keep fighting. You are an amazing, loving family and Ty is a gift to us all. We are praying for Ty.

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  75. I have prayed for Ty every night for the nearly 2 years I've been reading your blog, and for you and Lou as well. Though this is my first post, I've wanted to tell you time and time again that I find you all truly amazing and inspiring. I'm praying extra hard tonight for Ty, and for you and Lou, and for sweet Gavin. I hope you can feel the prayers and love coming from all corners of the world tonight.

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  76. I am so in love with him

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  77. Come on Super Ty !! We are all praying for you!!!!!

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  78. Your story brings me to tears, you all deserve a final miracle. Best thoughts going your way. Stay strong Ty.

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  79. Ty is an amazing gift from God to the world. Your family is a wonderful example of what love can do and of how love knows no bounds. I pray for healing for Ty, I pray for his pain to vanish and for peace to comfort his beautiful family. We can't know why things happen the way they do, but we can be faithful to God and trust in his wisdom. Sending love to Ty. Thank you for your beautiful posts. Ty and Gavin are adorable and you and Lou should be so proud of your family!

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  80. Praying for your Ty and your family.
    From Kalamazoo Michigan.

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  81. Praying for you and your family. You remain in my thoughts as always

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  82. I started a Prayer Chain on my page for TY.... Keep strong and remember WE ALL ARE PRAYING~~~ We Love You All.. Kathy Brunelle

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    1. I hate cancer i am hoping for a miracle for you!

      NC

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  83. I have falken in love with that little cutie he is adorable

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  84. I love ty!! HANG IN THERE

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  85. Prayers from Ohio.

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  86. Cindy,
    I am so devasted for you. When I go to my favorites to read your blog I always think..gotta go check on my little man. I am sending you prayers and hope. I feel like your all part of my family. May God watch over all of you right now and get you through this hurdle

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  87. So many prayers for Ty and the Campbell family tonight.

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  88. Love to the family. I was at the run and saw s
    weet Ty.

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  89. I will pray exta hard tonight. I have been following your journey for a long time and will continue to do so forever

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  90. Praying for SuperTy and all of you. Sending thoughts, prayers and love. God Bless.

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  91. We have watched this little man for 2 years. We have seen what the power of prayer can do. SuperTy is in our prayers.

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  92. Cin and SuperTy- loving you and praying for you. May your love for one another always lift you up.
    -Kate (from Idaho)

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  93. I have followed your story and kept you all in my prayers from the beginning. Today I pray an extra prayer for peace in your family. I pray for the miracle for Ty to live, but if it is not to be, I pray for you to find peace in knowing you gave him all of your love and did everything possible to make his life the best it could be. Find peace in knowing the love sent to Ty from so many strangers because of you. And find peace in knowing that Gavin will grow up knowing he has parents who will fight to the end of the world for him...he's seen it with his own eyes. I pray that years from now Ty is still here to read your blogs and see new treatments available in part because of his story, and know that he is a miracle!

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  94. This must be the most difficult decision a parenty should ever have to make. It has to be heart wrenching those to watch your boin such pain. You and your husband are a wonderful inspiration to other parents of children who are sick. Whether or not he has the surgery, I hope the next few days are pain free.


    ____Karen Kopp Acquilino

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  95. So sorry for the misspelled words. May God bless you all!

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  96. I have no words that could possibly take about the devastating pain you must have in your heart but I have prayers and I am making them for this great fighter. God Bless you all.

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  97. I lost my baby boy and he was with me for only two days and not a day goes by that I dont think of him. I cant even imagine what you and your loved ones are going through. Your beautiful boy is so special, he is in my prayers daily and even though I dont know you personally I cant help but cry and break down when ready your blog as if he were my own. May God Bless You All & I will continue to pray for healing and strength to come your way <3
    Debra N.Y.

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  98. I just heard about Ty but I just said a prayer for him and will be checking up on him. I have 2 little girls and can't even begin to imagine what you must be going thru. I will keep you in my prayers as well.

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  99. I just heard about tonig. I can't imagine your heartbreak. I learned abor Ty from one of Patrick Froehlings prayer warriors. So now you have all of us praying for Ty, you, Lou ad Gavin. What an amazing child you have. Prayers for a miracle. I wonder how many pe have returned to pray because of Ty. That's one miracle. Let Tys be the second. Praying for complete healing

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  100. my family and I are all praying for Ty. I also have all of my friends praying for him. God bless all of you


    hugs kisses and prayers

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  101. Ty: Your smile could melt steel! I love you and I will never give up praying for you.

    Laura in Texas

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  102. I am praying for Ty and your family and sharing your story. This little boy is amazing and so beautiful and his strength is inspiring. I am forever touched by his story, please know this.

    Jennifer in NY

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  103. Peace , love and freedom from pain as you go through your last journey Ty. Your parents love you so much you brought them so much joy.

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  104. Ty's light will never truly go out, because he has touched so many people. I hold Ty and all of you in my heart and pray you find comfort in the love you have for each other. And if Ty returns home, I pray your hearts are filled with the joy of his life with you and not with the pain of his abscence. Namaste, Peace, Love & Compassion Always, Suzzan

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  105. Will continue to hope for miracle and sending prayers always for you, Ty. Father, I come to you in prayer for this precous soul of Yours. You know their sickness and you know all of their suffering that they go through at this moment. Father, I ask you in the name of Jesus, please hear their prayer and heal them from every sickness in their body right now. Thank you Jesus, Amen.

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