Thursday, September 27, 2012

Sweet dreams for the best good boy in the whole wide world

"The best good boy in the whole wide world" is a silly nickname that Lou and I have been calling Ty forever.  We actually have a totally goofball song that we sing where we ask Ty "who's the best good boy in the whole wide world?" and he answers "me!"  We get louder and louder and it can always make him smile when he ends it with a scream... "MEEE!"  He has been sleeping most of today, and I like to imagine he is having sweet dreams, literally, since we all know how excited he gets over candy. 

Waiting and watching our beautiful boy sleep is so painfully beautiful.  While he sleeps we sit and run our hands over his soft, delicious hair, our finger slides down his warm, pink cheek, and we kiss him on those billowy, heart-shaped lips of his over and over like we've been doing since the day he born.  I am constantly checking the temperature of his hands and feet to make sure they aren't getting cold.  Several people have told me that is a sign that he will leave us soon and now I am riddled with stress over his temperature.  "Warm.  Thank God.  What?  Ty's sweating?  No, don't take his Nana blankie off, we have to keep him warm."  I am literally in physical pain caused by sheer anxiety.  Couple that with the emotional pain that is beyond any physical pain imaginable... I am a train wreck (you can cut off my arms and legs and leave me in the middle of the woods to be slowly eaten alive and it wouldn't come close to how I'm feeling). 
 
 
When cancer took away his ability to run, Ty enjoyed walking while holding our hands for balance. When he could no longer walk, he scooted around the house on his butt and he loved building towers of blocks or legos with his brother. When he was disabled and limited to the couch (which was 80% of the time these past 2+ years) he found so much joy in his toys and looking through toy catalogs. When cancer took away his ability to even move his arms and play with his toys, his love affair with candy emerged.
 
Now he can't even eat, but we present him with a cool new piece of candy every single day and he still smiles every time. In fact, he received a beautiful gingerbread house the other day and he likes to show it to everyone who enters our home. Today, an adorable candy "jeep" was given to him by a boy in our neighborhood. So sweet! 
 
Some of Ty's loot from the past few days.  Lego guys, mini pumpkins, a blue sparkle jar and yes, the candy jeep
 
I promise you, the Campbell's will be famous among the neighborhood kids for always having totally amazing Halloween candy in honor of Ty.  Yesterday Ty and I looked through a candy catalog and picked out gummy fingers and insects, glow in the dark gumballs, lollipops that ooze blood.  We're getting it ALL!  Today he was tired so when he asked for arts and crafts, I entertained him by drawing candy for every day of the week.  Toward the end, I asked him what kind of candy we were missing (we had red candy, peppermints, swirly candy, candy buttons, gumdrops and blue striped candy).  Ty answered quietly, but just enough so I could understand him.... "hearts."  UGH!  Can he be any sweeter?  How much do you love him?  Here is a picture of our craft for the day. 
 
 
 My house if completely taken over by cancer and all the things that revolve around this disgusting disease.  Here is a picture of the dishes I did after we put the boys to bed tonight.  These are the medicine syringes from the past couple of days.  That's HOW MUCH medicine Ty gets every day, and he isn't even on chemo anymore!! 
 
 
Ty has been throwing up in the middle of the night lately, so I've had a lot of laundry, too.  Lou and I live a life that revolves 100% around Ty and cancer.  We have been fighting so hard for so long, and we watched our angel baby go from the picture of perfect health to hospice.  This is pure hell, but we are still so busy and preoccupied with caring for him that we are totally holding it together (my worst time is always night when I'm alone with my brain that won't stop thinking).  We are trying to love every minute with him without letting our pain take over.  This house needs to be happy and fun always, and we are doing our best to keep it that way.  I can only imagine how much of a void we will suffer from when he is gone.  I am so scared for us and what is ahead. 
 
Two shelves for medicine alone
 
These four drawers are filled with medical supplies and this isn't even the half of it
 

You all know how passionate I am about spreading the word about pediatric cancer.  There is an interesting article in this week's Newsweek that focuses on the need for an increase in funding for all cancer research.  The statistics are so outrageous.  How is it possible that we don't have enough funding for researching this epidemic?  Then consider all of the innocent children who are attacked by this demon.  It's disgusting.  The budget for the National Cancer Institute (responsible for developing ways to prevent, treat and cure cancer) was $5Billion, compared to $144Billion spent on conflict in the Middle East over one year.  Whoa!!  One in two men will develop cancer.  One in three women.  One in four people will die from cancer.  That's 25% of the population.  We need to do better than this, and of course, I think we need to start by saving the children. 
 
Before signing off, I want to apologize if you have reached out to me and found me unresponsive.  If you have left a gift at the doorstep or prepared a meal and didn't receive a proper "thank you" yet.  Please know that the love and support we have been showered with is amazing, and we are grateful beyond words.  Anyone who knows me well, knows that I am almost incapable of returning a phone call, text or email in a timely manner. I don't know why! I think because I always feel so rushed, and I want to take my time in responding or have the time for a good conversation, and then I don't always find that time. Even though Ty isn't an infant anymore, he demands just as much of my time, even more.
 
That's all I have to share for tonight.  Sorry I was all over the place, but that's how scrambled my brains are right now.  Lou and I aren't sleeping well, obviously, and it's catching up I guess.  Thank you so much for all of your love and support.  Always praying for a miracle. 
 
 
 

99 comments:

  1. We're always praying for a miracle for you all too... <3 you all and sending hugs, prayers, love and HOPE always,
    Chrissie, Matt
    Katie, Mighty Mikey & Timmy

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  2. I stay up every single night and await your posted update for the day. I will never stop praying and am always thinking of Ty and your entire family, Keeping you all forever in my prayers and sending positive thoughts your way.

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  3. Your amazing...I hope you know that! Praying for you all..especially your beautiful Ty all the time. Stay strong and keep the faith...praying real hard for a miracle.

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  4. You are such a strong mother I pray I never have to feel your pain and am so sorry that your family is enduring this unthinkable illness. Your words are so empowering even if they are "scrambled." I think they are pretty darn good considering...Always praying for your family. What an amazing son you have an inspiration for all...God Bless your family.

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  5. Sending hope and prayers to that sweet, wonderful boy I have never met, but feel like he is as close to me as my own. Love and prayers for Super Ty and Gavin and his wonderful parents. Know he is having the sweetest dreams in the world because of you.

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  6. Cindy & Lou,

    You are simply amazing! I'm telling you, if I can be 10% the woman you are for the rest of my life, I will be incredible.

    I can't get the picture out of my head of Lou lifting up Ty and flying around like an airplane. That's the vision I carried with me all day today. When I looked at my own boys and heard my little one tell his older brother, Yikolas (Nicholas) I love you, I lost it. I just pictured Gavin telling ty that he loved him.

    God Cindy, I am sure I am not helping things. I'm so sorry for what you are going through. No child should suffer and you are right, a hell of a lot more needs to be done for Pediatric Cancer. It truly makes me sick the suffering children go through.

    Tonight I will scream at god. Times like this make me truly question my faith. Hopefully, god will prove us all wrong. (((((Hugs))))

    Joy Marielle
    Baltimore, MD

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    1. Tonight I will scream at god. Times like this make me truly question my faith. Hopefully, god will prove us all wrong.


      I feel you, I'm there too..

      ~Michelle, North Ga.

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  7. Couldn't fall asleep before I get an update on the most beautiful precious boy in the world. He looks so good and I bet you he feels so warm. You are the most heroic woman Cindy and he is the toughest little boy. How I wish to meet you and your family and for our boys to play together. Maybe one day when Ty is better. Thank you for being you so selfless so aware of the pain of the others while all you really need is just to take care of your boys. You and your family are all captain Universe.

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  8. I have been waiting all day for your post and hoped it would be that Ty had a great day!! What sadness to see the picture of the syringes and what your poor baby goes through daily. Thank you as always for taking the time to update us and also for the beautiful picture of him sleeping. I have always loved sleeping pictures.
    hope you get a restful night's sleep and that Ty has a peaceful night. Always saying prayers for that special little boy. Sweet dreams Ty.
    -Jennifer

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  9. Praying for you always.

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  10. You are beyond strong. A shitty day at work makes me somewhat unbearable but my worries are humbled to your sorrow. You have made me a better mother, person, friend. Your strength is to be admired. My strongest prayers to you, your family and your two very special boys.

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  11. Pray all the time for you...I wait for your update and start to panic when I dont see one by 11. U know it sounds silly but from one mom to another, I worry so much for you... Feel as if I know you, I swear the other night I wanted to jump in my car and go to you just to give you a hug! Your doing an amazing job and I am completely in awe of you and Lou's strength, love and courage for your Ty. Through your stories about Ty, you have changed my world as a mom we are so often hurried through the day.. Ty has taught me about the simple beauties that I have learned to slow down for. As you already know he is such a special boy a precious angel and I am so honored to know him through you and for that I thank you for sharing his story... In turn I can share in Ty's story and raise awareness about this disgusting disease that effects so many child like your son.
    I will ALWAYS pray for TY... For his miracle! Everyday I say my mothers prayer for you.. In my heart I like to believe that you are drawing strength from it at that very moment .. One mon holding another moms hand.. I really hope you feel it. I hope during your dark hours, especially during the nights that haunt you when you are alone with your thoughts. I hope you know you are not alone..soapy people care and soapy are sending their love.

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  12. Saying so many prayers for you and your family. You are simply amazing and have touched so many, near and far.

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  13. Yes, I'm sure you are honey...I'm scared for you too..



    In constant prayer for a miracle,

    ~Michelle, North Ga.

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  14. PLEASE do not apologize to anyone - I can't imagine anyone expects anything from you right now other then to try to take care of yourself and cherish every moment you have with Ty!! Right now Ty is all that matters and anything anyone is doing for you guys is done out of the sheer hope of trying to alleviate some of your burden or pain or out of feeling completely helpless to do the one thing we are all wishing for - and that is to heal Ty.

    Thank you so much for keeping us updated - like others have said I look forward to these posts. The pictures you paint of what's going on are beautifully beautiful and beautifully sad - and I think that's an amazing combination. It is bringing us all closer to the goodness that is Ty and inspiring in so many of us the desire to fight for kids battling this beast, to raise awareness and not ignore this problem any longer. The picture of all the syringes from his medicine is an eye opener that even now Ty has to endure all of that. It makes me so mad that cancer did this to him.

    I too imagined I could see Lou flying Ty around the house to bed and it made my heart hurt just a little less. When you described him looking in to your eyes and how you talked about heaven to him - tears poor out just imagining it, but it also made my heart hurt less to hear that Ty seems comforted by that. AndI could just see Gavin trying to drag that giant spiderman balloon in to his bed.

    I am so sorry Cindy, Lou, Gavin and Ty - you didn't deserve this - of course no one does. I will continue to pray to god for a miracle - begging him really, to make Ty healthy and whole. I know that sleep is near impossible - but please, please take care of yourselves. Hugs to you all. Prayers always. SuperTy now and forever. Sweet dreams Ty.

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  15. I read your posts every night. Thank you for posting and sharing all those wonderful pictures. I pray every day for Ty and for all of you. I ask God to bless you all with the strength to get through each day. I ask God to bless Ty with a miracle. Praying for you Super Ty! Sweet dreams beautiful boy! <3 Deb XO

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  16. My heart goes out to you each and every second I think about you, ty and your family. Just as everyone else has said your explanation of heaven was something that only a mother could say to her son. Our time on earth may seem long to us but for loved ones in heaven it's just seconds.
    I thought today about many of your earlier posts throughout the years and countless times you speak about asking god to take ty's pain and give it to you, take your arms legs anything just make ty pain free. I want you to know that god loves your family and although it's the most incredible pain imaginable (I can't begin to imagine) god is granting your prayers...
    TY is going to be a super hero for what seems like only a split second to him in heaven before his family rejoins him. He will have barley begun to start jumping through puddles.
    I pray for another miracle for Ty and thought the song below may bring a little sliver of peace for the unimaginable pain you are in. So much love!! Good night! http://www.youtube.com/watch?v=39_9-yuanxc

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  17. I have so much love in my heart for you all and am in such awe of you Cindy, as you mightily move through this very scary time. I pray for Ty's miracle every day, many times, for if anyone deserves such a miracle..it is our Ty. What a miraculous little angel of a boy and what a strong warrior he has for a Mama. I am reminded every day when I read your amazing blog, to not sweat the small stuff...and to live each day to it's fullest with those I love most. THANK YOU TY FOR TEACHING US ALL SO MUCH!

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  18. Praying for Ty everyday and for your entire family. God hears our prayers. My heart aches for you but you are such a strong woman. You are such a good mommy : ) Keep staying strong and put all your faith in God.

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  19. I have MUCH love for you Campbell Family...so much it hurts. <3

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  20. Thank You Ty, for being the best little boy in the whole wide world!!! It has been an honor lil' man. My Super Hero!

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  21. Beautiful sleeping Super Hero! Oh, Cindy, I can't begin to tell you how emotional I get about Ty and I have never met any of you in person. In fact, I live several thousand miles away in Texas. But, every single time I read your posts lately, I dissolve into a huge puddle of tears. If I can be affected this way, how horrible it must be for you. Dear sweet lady, my prayers, love, and hugs go out to you and Lou. Ty is lucky to have y'all as parents. Ty: I love you and I will never stop praying for you.

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  22. The best good boy in the whole world indeed. Cindy, we are all here with you, collectively hugging you and your beautiful family to give you the strength you need. No one can take your pain away, but know you are not alone! We are all stroking Ty's beautiful hair with you. Have courage dear sweet mother.

    Christina from Hoboken, NJ

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  23. Cindy & Lou,

    I wish so much that Ty would be healed, so much it hurts. I don't think I have ever cried so much as I have the last couple of weeks. Your post yesterday was beautiful, touching and so hard to read. I had to walk away due to how much it was making me cry. I wanted to comment & just couldn't do it. I came back and read it several times with the intention of saying something. I want you to know I think the words you choose to tell Ty about heaven were perfect & I believe absolutely true. Ty and your entire family are constantly in my prayers. I am praying every minute that God grants us Ty's miracle. I love your proposal to God and think there is nothing at all wrong with asking for another miracle. His life alone has been one miracle after another. We just need one more big one! He has touched all of us that read about him through you more than you could ever know.

    I said once before that you can see God in Ty's face. He was made in the image of God and is perfect. He really is a beautiful boy with a beautiful heart and soul. The picture you posted yesterday was so sweet. I wanted to hold his little hand and tell him we all love him. I had never watched the videos before and I did last night. They are beautiful. I can't believe how much Ty and all of you have been through. My heart is so broken for you. God bless your little Ty's body & soul and grant you the strength, wisdom & comfort in every minute of the day & night. Much love and prayers. ~Christine, OH

    Ty definitely is loved....

    “There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are messengers of overwhelming grief...and unspeakable love.”

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  24. I think I would have written the "cut my legs and arms off and leave me in the woods " thing myself. I think that describes perfectly the pure hell that you all are going through right now. So glad you still have your sweet boy with you. The pictures are so sweet, although I have to say that the picture of Ty in the red hat on the last post or so, well I can surely see the hurt in his face....in his eyes, and I cried and cried seeing that picture. His little face truly shows all he has gone through.

    I wanted to share something with you, don't know if you've already done this or had this suggested to you, but when my neighbor was dying of stage IV breast cancer, she was leaving behind a 14 year old daughter. I went to the craft store and bought the mold kit (comes in a bucket size container) and did a mold of her and her daughter holding hands. It was very easy. You mix it up, they place their hands (or you could just do Ty's hand or foot) in the bucket for a minute, take it out, pour in the mold and it creates the most realistic replica ever.....even the tiny lines and fingernails are so vivid. My neighbor passed away a few days after we did the mold. Since then her daughter has told me how much having her mother's hand means to her. Wish I lived closer, I would totally do this for you. Prayers.

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  25. You are doing a wonderful job caring for Ty! It sounds like he knows he is loved and adored all the time! I will continue to pray for a miracle. Your family never leaves my mind and I think it has made me stop and smell the roses a little more. Life is so precious. Thank you for updating.

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  26. Praying for all of you. I cannot imagine what you are going through and how you are doing this. You guys are in my thoughts all day. Someone wrote about making a mold of the two of you holding hands.. or a mold of his gorgeous foot. That sounds like such a great idea. I don't know what else to say except that I am here and thinking of all of you. Love and prayers that you will all be able to heal from this.
    Michelle

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  27. First: NEVER, EVER apologize for not thanking anyone for these niceties. Your "thank you note", is this beautiful, generous blog you take the time to share with us every day. Those of us who have sent gifts have done so purely to bring one more ounce of joy to Ty, and to all of you. We all feel so completely powerless against this disgusting monster, cancer, that we feel like we have to do SOMEthing. It is as much for us, as it is for you.

    Second: keep documenting the awful truth about the toll this horrible disease takes. The bins, the syringes, the countless bottles of meds. Take pictures of what I am sure is a veritable mountain of paperwork, bills, and invoices, packing slips, and boxes of supplies. You will use these pictures as you champion this cause of funding pediatric cancer. I don't have a doubt in my mind that this is going to be your life's work. I foresee you taking this fight to Washington, and making a real change. Maybe not now, but when life settles down for you... Your voice is amazing, and commands attention. People will listen (we already do!) People will give. My husband and I have been supporters of St. Jude's for years.... I'm thinking about switching our funds to directly go to pediatric cancer research. You are right. We HAVE to beat this disease!

    Third: (and best of all)... I've been walking around in a fog of sadness and concern for Ty, for days now. This morning, though - I lay in bed, half awake, half asleep, with a feeling of incredible lightness. I woke up smiling, and then had something like a dream. I saw Ty, curly locks back on his angel crown, tip-toe-hopping around your bed... around you and Lou, giggling, and taking the occasional break to lay down on your side and hug you, with the biggest smile. He hopped off your bed, and ran around your house at full speed, occasionally making himself slide down the hall in his socks. Then back to your bed for more hopping, light as a feather on his feet. I have to believe that God, or my angel, gave me the gift of a glimpse of Ty's dreams... or maybe a glimpse of what his spirit is up and doing, as his body sleeps. Whatever the case, it gave me a real sense of happiness for him for the first time in a long time. I bet your talk about Heaven has given him the freedom to test drive his beautiful, healthy self...
    My constant thoughts and prayers are with you all. God bless you, and keep you strong.

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  28. I could not get Ty out of my mind last night. I laid in bed all night unable to sleep, with constant thoughts of Ty going through my head. I want so badly to take away his cancer even if it means transferring it from his precious body to mine. I want so badly to read you're blog or see a post from
    Louie on Facebook with news of a miracle. I pray for this and continue to believe that it WILL happen. I will continue to pray for Ty's recovery as he is always in my thoughts, as well as you, Lou and Gavin

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  29. I pray that Gods healing Hand bring healing to this Precious kind innocent Soul and his Entire Body. Super Ty we Are All praying for you. Praying harder than ever for this Courageous Strong family. Sending hugs. Never give up! Praying for a Miracle. Miracles Happen!
    From Keila and family Queens, NY

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  30. What a sweet picture of a totally amazing Ty!

    Love,
    Jan
    Georgia

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  31. Cindy, I am in awe of you . Ty and Gavin couldn't have asked for a better mommy. Do you realize how your words have impacted so many of us? You make me strive to be a better mom everyday. Thank you for sharing with us.

    Love, Claudine

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  32. Love, prayers and healings..from Canada!!!!

    love love love!!! to all of you!!!

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  33. I don't know you or Ty and I just started reading your posts this week- I have falleiLife live wth your little guy and I am so very heart broken for what you have all been through and are going through. I pray for you all every day morning noon and night.
    Ireading your blog was like getting a huge bucket of ice water dumped on my head- it woke me up to life! I have a 1 year old and 3 year .You are an amazing mommy! Ty id he knew what he was doing when he picked you to be his mommy!

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  34. I thought and Prayed most of the night for Ty before I fell asleep. I just woke up and got on my computer, I Thank God every morning that Ty is with you..... I LOVE THAT HE WISPERED, HEARTS! He is just so filled with Love, Cindy he is such an amazing boy... Please give him a gentle hug and kiss for me.... Prayers always. Kathy Brunelle

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  35. Cindy,

    Last night while saying our prayers with my daughter (2 yrs old) we said a prayer for Ty. You are constantly on my mind and prayers. Praying for your family!

    Prayers and Hugs your way...
    The Tuniewicz-Rojas Family
    Wantagh, NY

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  36. Still sending prayers and lots of candy dreams to Ty.

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  37. Dear Campbell Family you are all true heroes & an inspiration to u all. Everday I read these blogs and am amazed by your strength & strong spirituality, something God Has blessed you all with. God has blessed you with an Angel & that Angel has touched many lives. When I see pictures of Ty & allhe's going through I do see a sense of joy, love & peace in his eyes. You are all blessed & please keep on fighting & may God Bless You all....

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  38. I woke up early this morning and came down to check on Ty before the boys get up for school. It has become my ritual. When they boys come down, your blog is on the computer and they can see his sweet little face and know he is with us. He is a part of our family...this darling little boy that they have never met, but has made an everlasting impact on their lives. They left this morning, as always, with their Ty bracelets on.

    I'm so glad you brought up the Newsweek article. It infuriates me everyday when I see how much money these political campaigns have raised...hundreds of millions of dollars!!! In months...Really?? Imagine
    if everyone felt that urgency to give to cancer...just $1..how much we could raise! It just doesn't make sense. But it will change. It has to change. You and Lou have done an amazing thing by sharing Ty & his story with the world. You have opened so many peoples hearts & minds to this horrible disease. It is another one of the miracles of Ty...

    And never apologize. You are doing exactly what you should be..spending every waking moment with your delicious little Candy Man. I have been singing that Sammy Davis song all morning..and i'm sure i will be singing it all day..thinking of sweet TY. Always in our hearts...our thoughts and prayers. xxxooo

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  39. We keep praying for Ty.... thinking of you often.

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  40. My husband recently started following Ty's story, too. We cry together daily. Cannot begin to imagine the anguish and heartache you face. Ty has touched so many lives, more than you may ever know. God bless and keep you all! In constant prayer for you and your sweet boy. Sending much love and positive thoughts your way!

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  41. My son and I include TY in our prayers every night, and I find myself adding in a bunch more throughout the day. Praying hard for that miracle.

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  42. I don't know how to express my thoughts, my heart just breaks every day when I read your posts. Ty is such a beautiful little boy who deserves to grow up. I am constantly praying for another miracle. Cancer Sucks! I send to you today peace, comfort and hope. Your family is never far from my thoughts.
    Maura Skiba-Indiana

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  43. Cindy:

    PLEASE, do not apologize, you are going through the toughest moment anyone can go through. Dedicate ALL your energies to enjoying every second with your sweethearts.

    This Sunday, Ty and all of you will accompany me on the Susan G Komen Race, as he has in the past. Every step I take it will be for him, every moment of the day is thinking and begging for a miracle, because I BELIEVE and give THANKS for the miracle in SUPER Ty.

    Remember:
    Faith is believing in something when common sense tells you not to. - From the movie, "Miracle On 34th Street"

    God didn't promise days without pain, laughter without sorrow, or sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way. If God brings you to it, He will bring you through it. - unknown

    "I don't pray for God to take my problems away, I pray only for God to give me the strength to go through them." - Jose Lozano

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  44. You need some sleep, peaceful quiet sleep, even if its snuggling next to Ty. You need your strength for what may come ahead. I say that from experience. When my mom was dying of breast cancer I sat at the end of her bed in a recliner afraid to even blink afraid of her passing. I went from a healthy 115 lbs to 95 lbs 3 wks later. I was physically & emotionally done!! Just like you, our home was filled with boxes of medicine, an ugly reminder of what killed my brother, mother & father. All along I held onto my faith & begged God daily for strength! Lou & you will get thru this, you have each other & Gavin to love & live for. Super Ty will never be far nor forgotten because he will always live forever in your hearts!!
    Don't worry not being able to reply back, your true friends & family understand. Your main focus is Ty & all the smooches & love you show & give him!!
    While there is life, there is hope!! God bless!!

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  45. Don't worry your pretty little head about thank yous. People give from the heart and in return all they hoped for was to raise your spirits. You are so gracious!

    With you all the time,
    C

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  46. I have been following your posts for a while now- I cannot imagine what you are going through...I recently became a mom and I dont know what I would do if I were in your shoes but I can tell you that you are AMAZING...you are doing an amazing job Cindy- your family is such an inspiration to me. I fall to tears reading your posts- I am praying for a miracle for your sweet precious boy ...god bless your family!

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  47. I've been wanting to comment on your blog but never thought I had the right words to say, but today I finally can. When Ty was in the chamber I used to always ask "who is my favorite pumpkin? " Well of course now I know why he would always respond "ME!" I love you Ty and yes you are my favorite :) Always in my prayers Campbell family.

    Love, Lubiha

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  48. Cindy,

    My heart just shatters when I read your posts. It is soo horrible that cancer had taken such control. I am soo sad for you all that Ty is sleeping more and soo very limited.

    I pray Ty will be awake more and he will be comfortable.

    I pray that when the silence comes that God will give you peace and comfort as you watch your precious Ty. I pray for many blessing.

    2 Corinthians 12:9-10
    But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong. (NIV


    ♥♥ Love ya!! ♥♥
    C.O.L.E.'s Foundation
    (Caring Openly, Loving Eternally
    www.colesfoundation.org
    www.colespages.org
    Email: sandy@colesfoundation.com
    Sandy Daron

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  49. Praying for a miracle right along with you.
    Love from Iowa

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  51. Praying for Ty and for you, Lou, Gavin and the rest of your family and friends. There really are no words of comfort for what Ty and your family is going through right now. It is unimaginable. I know I have said this before but I think you need to hear it again- you are an OUTSTANDING MOTHER and the life that you have provided Ty, the comfort, the love, the caring, the adventures, the everything- is truly just what he needs to make him feel complete. And I bet he is laughing inside and loving every second that he spends with you guys. I am praying for another miracle for him. If anyone can do it, TY CAN!!!! But if it does get to be too much and he has to go chase the rainbows and muddy puddles in the sky, well then you have one AMAZING SUPER ANGEL looking out for you, Lou & Gavin. You are one amazing family who inspire many. God Bless ALL of you, especially Ty!!!! xoxooxoxoxooxoo

    PS- how lovely that I go and post this and apparently my daughter has a google account with a curse word at the end. Sorry about that, I was the recently deleted comment, I had hoped it would remove the author's name, guess not.

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  52. Cindy,
    Just as the comment above mine, I share also. I sit asking myself, what more can I do..than pray?
    I have contacted every prayer warrior I know, to keep yo Ty @ your family in 24/7 prayer..But I still ask, what more can I do??Go down and by a Captain Americas Hat?, or maybe buy some heart Candy's..But this is not enough..other than what I have been doing..can I send you some meal's..maybe gift cards, Starbucks..anything?? Please let me know.
    janilov325@aol.com


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  53. I so wish I could take away the pain and suffering your family is going through. I prayer that there is a miracle for Ty and that you get to spend a lot more precious time with your son. No one should suffer like this. So unfair! I can only imagine the roller coaster ride you are on. As much as you dont want to loose your precious boy, I'm sure you wish you could stop this awful ride and just get off. It's amazing the strength we find for our children. There is nothing we won't do for them! You are an amazing mother! Praying for you and your family always.

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  54. what a beautiful boy, inside and out..
    Jennifer NC

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  55. I have whispered to my girls after they have gone to sleep to send their guardian angels Ty's way!

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  56. I lost my mom 5 years ago, losing her was a hurt like I could never imagine! I have to tell you something we did. Mom would always point out the time 11:11? she just thought when she saw that on the clock it was good luck or something. When she got sick, we told her everytime for the rest of lives we would think of her when we spotted that time on the clock. My brothers and sister and I get a big kick out of it now, see 11:11 and we think, Hi Mom! We like to think she's saying hi or telling us she loves us. Today i sent my sis a text, she wrote right back, your text came at 11:11,in unison we both yelled, Hi Mom! Maybe you could think of something fun with Ty, so forever you could know every now and then you two are connecting! I love it, always makes me smile! Love and prayers, Terri

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  57. This is the first time i'm writing after following for more than a year, but you have no idea how much I spread the word about your amazing little boy and your amazing family. You bring me to tears every night, as i feel like i know you guys! I'm not kidding when I say i look up to you guys. Ty is ALWAYS in my prayers, and i don't think you understand how much you guys have changed so many people's lives, including mine. God bless Ty!

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  58. I am lying her next to my 5 year old....having some snuggles after dinner. I will hold her tighter in your honor...and we will pray for your sweet and beautiful boy. So much love being sent...so much compassion and hope and love. Wish I could give you all a hug.

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  59. My daughter is just a few months older than Ty, my charming little boy is two years younger. Each night, as I snuggle them to sleep, I think of Ty's arms around your neck... My heart hurts for you, your husband, your boys, everyone who loves each of you. I am sorry, so sorry that your beautiful baby is slipping away from you; I am sorry there isn't a way to hold on tighter.

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  60. Hi Ty, I hope you are having a peaceful slumber. By the way that picture your momma posted of you is so sweet just like candy!

    Cindy/ Lou, Your strength ( even though you do not believe that) is extraordinary,beautiful,raw. Your story has touched my heart. I read your blog several times a day and I have for the past 2 years and I will continue to do so.

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  61. I think of you all the time. You and your family are an inspiration to parents. I cherish snuggles more now and do more silly things since you mentioned wearing Ty's hat all around! God Bless all of you!

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  62. Cindy Lou, How beautiful it is that you are updating us on SUPER TY in these difficult times. He is certainly super and beautiful! I love the pictures they are the most beautiful things I think I've ever seen in my life.

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  63. Tonight I find myself watching all of Ty's videos over and over. Praying and crying, begging God for SuperTy's healing. Praying he is having a good day. Praying your next update will include more beautiful pictures of "my" precious boy smiling. I can never say I know what you are feeling but I know what I am feeling and it hurts so bad. Your sweet son has touched mt heart in a way I never thought possible. He has made me so aware of the injustice of pediatric cancer and the struggles that TOO MANY children suffer. I am forever changed in so many positive ways and it s all because of you, opening my eyes with yor writings. I love the Campbell's and wish that I could help in some way. I promise that I will NEVER stop sharing his story and making sure that people are AWARE!!!

    Prayers, hugs, kisses and love,
    Elaine Hinkle

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  64. I want you to know my 9 year old and 13 year old boys check your blog every night and constantly want to know how TY is. My 9 year old said he prayed for TY in his class yesterday (my son;s name is Daniel and he goes to a Catholic school). Daniel said the teacher said she woudl pray on her own too. I can't get him or your family out of my mind. You are doing an awesome job... it's already hard being a Mommy and then being a MOmmy with all this going on. virtual hugs to you and your family.

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  65. I read this with tears.... I feel so much love for you yet I don't know you... Your journey with Ty has given me and I am sure many perspective on what is important in life. I make sure when my son asks me to play or read or look at what he is doing I take the time to do so. If he wants to fall asleep next to me I let it happen. Life is so short. I don't want to look back on missed moments but on wonderful special memories. My love is with you tonight.
    Heather

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  66. Even if Ty doesn't "demand" your time, give him all you've got. These moments are grains of sand through the hourglass. Catch as many as you can. Returning calls and acknowledging true acts of kindness can wait. Those who do these things for the right reason will understand and those who don't understand that you absolutely need to spend every precious moment with your baby aren't people you need around you at this time. I love you, Campbell Family. If only love really was all you need...

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  67. If only the buckets of tears that we cry, could heal the ones we love...Ty would be cured a 100 fold.

    As always, In constant prayer for your baby boy.

    ~Michelle, North Ga.

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  68. Praying for Ty every minute. God should leave some of this extraordinary kids with us to learn from them. I am just amazed how you had the strenght to talk to Ty about it. I wish I'd have done that with my loved ones. Share every minute of his life with Lou and Gavin, cherish all those family moments. I still have the hope he can beat cancer this time. Sending all our Love,
    Lourdes, Dena, Miguel, Ana and Lane

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  69. Our thoughts and prayers are with you. God Bless.

    C.O.L.E.'s Prayer Team
    Caring Openly, Loving Eternally
    www.colesfoundation.org
    PA

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  70. Thought of you all night last night, even in my dreams. I pray and pray for your family. Thinking of you always. xoxo

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  71. Praying you guys had a good night. Waiting on your update
    My thoughts and prayers are with you and Ty
    Michelle

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  72. You are all in my constant thoughts and prayers. I hope you have a peaceful day, and that you get some smiles today. All love.

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  73. GO HUSKERS!! We have Team Jack Out today in Nebraska...a young boy is fighting brain cancer and the University of Nebraska Cornhuskers and their fans are wearing t-shirts
    to honor/raise awareness/and money for research for pediatric brain cancer...If your family has a minute to see the Nebraska vs. Wisconsin game...we will be wearing red Team Jack t-shirts.....they have sold an amazing amount....find Team Jack on Facebook..and know my son wears a Captain America t-shirt and I can't help but think of Super-Ty every time I see and touch that shirt!! We are praying...and know you are doing everything right!! Please Please plant that tree, and hang those posters.....I didn't, I had so much guilt it was awful!! Take Ty with you and do it....just do it!!! We are praying in Nebraska.....

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  74. Cindy & Lou,

    Just wanted to let you know I am thinking about you guys! Pacing and waiting for an update! Love you Super Ty! :)

    Joy Marielle
    Baltimore, MD

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    1. I'm with you. I have been checking every half hour. I'm a nervous wreck. I hope everything is okay

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    2. Same here. Saying prayers and wrapping love around you.

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    3. I fourth that emotion. Hope all is okay. Love and prayers. Loveto you all. Super Ty forever.

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  75. i check you blog every night looking for an update. please know that, while we can't begin to imagine the depths of your pain, in our own small way, we are walking through this right there with you - trying our best to hold you up. xoxo

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  76. Oh Ty...I can't stop thinking of you and your family. My heart breaks and the thought that your birthday is approaching makes it that much harder! Continuing to pray for you every day!
    I just read Ronan's story! What a handsome little guy he was. The thought that your mom talks to you about playing with Ronan puts a smile on my face. It also makes me appreciate every waking morning with my kids. I have a house full today and it's been raining for days, but even on the most difficult days...I refuse to get upset with them.
    Again, sending many prayers. Relieved to think your parents have made all the right decisions and are not letting you suffer anymore.

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  77. Wind blowing on my face
    Sidewalk flying beneath my bike
    A five year old's first taste
    Of what freedom's really like

    He was running right beside me
    His hand holding on the seat
    I took a deep breath and hollered
    As I headed for the street

    You can let go now, daddy, you can let go
    Oh, I think, I'm ready to do this on my own
    It's still a little bit scary but I want you to know
    I'll be okay now, daddy, you can let go

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  78. There will come that moment in the very near future when Ty draws in his last breath. That moment when, by all rights, the universe should stop. But it won't. He will slip away, and the world will continue. There will still be dishes and laundry to do. Gavin will still need his Mommy and Daddy to be amazing; more than ever, in fact. The medical bills will keep coming for months after Ty has gone, a reminder of the banality of so much of our existence. A great tragedy has unfolded in a little family over the last two years, but the universe takes no notice. Ty, I will feel your breath in the wind when it blows, see your smile in the sun when it shines, hear your laugh in the leaves when they rustle. The universe will continue, but so will you - your beautiful energy returned to it. Be at peace, little hero.

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  79. Everytime I read these I cry. I can't even put into words how sad this makes me. I think of u guys daily. I have never met u but feel like I do..love u all XOXO

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  80. It so crazy life in fact, as I read through these posts this voice came inside my head and I just had to write what I heard . I believe that when God created Ty he said to him " Ty you will have only 5 years on this earth to touch and love as many people as you can , people from all over the world will love you and your family unconditionally and you will teach them what the true meaning of love is .Their hearts will open and their eyes will see the beauty around them .. But in return I must take you back because you are so gifted and I need you here with me . On earth you will be known as a super hero and you will amaze everyone , but here in my kindom you will be more than that you will be the "Greatest Super Angel " of all and I will be by your side everyday, you will never suffer and you will never die. You will protect the ones who love you most and you will heal other children with your super powers . "Ty replied can I be Captain america here ?. God answered you can be Captain american , Spider man and Superman . Ty once again replyed "Ok God but I need to go to a very special family that will never give up on me and love me till the day I die ...and when that comes promise me you will never leave there sides either... and you help my Mommy and Daddy remember my best days ... and when My Mommy and Daddy are in bed crying I want them to feel my kisses .. Ty had so many demands but it had to be perfect , God replied Ty Louis Campbel that will be your name . Its time for me to let you go ,but I will be back on your chosen day . DT

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    1. I like this story. Ty's Daddy

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    2. I am so touched that you read this . The tears are rolling down my face . God will protect you all and especially your baby . DT

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  81. Cindy updated the facebook page with a great pic of Ty! Just wanted to let those know who are worried. Its facebook Ty Louis Campbell like page!

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  82. Oh thank you, I have checked this blog about 500 times today, gonna go take a peak

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  83. Wishing the Campbell family a good night and sweet dreams. God bless you Ty!! SuperTy always.

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  84. Thank you. I was worried too. Thinking of them all day.

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  85. You are so awesome. I can't even begin to imagine the pian you're going thru. God bless you and your sweet baby.

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  86. Sweet I boy love you up constantly all night.

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  87. Medical scientists have discovered a new way to battle cancer by using a man called Dr. OSAS

    MY NAME IS ORIEL MARTINS .I SAW A COMMENT ON CANCER BLOGS AND I WILL LOVE TO TELL EVERY BODY HOW I WAS CURED!,

    AND AM NOW A LIVING WITNESS OF IT AND I THINK ITS A SHAME ON ME IF I DON'T SHARE THIS LOVELY STORY WITH OTHER PEOPLE INFECTED WITH THIS DEADLY VIRUS.
    CANCER HAS BEEN ONGOING IN MY FAMILY, I LOST BOTH PARENTS TO CANCER. AND IT IS SO MUCH PAIN I'VE NOT BEEN ABLE TO GET OVER..
    AS WE ALL KNOW MEDICALLY THERE IS NO SOLUTION TO IT..AND MEDICATION IS VERY EXPENSIVE..SO SOMEONE INTRODUCED ME TO A HERBAL PRACTITIONER IN AFRICA...
    I HAD A JOB THERE TO EXECUTE SO I TOOK TIME TO CHECK OUT ON HIM.I SHOWED HIM ALL MY TESTS AND RESULTS..
    I WAS ALREADY DISORGANIZED WITH CANCER AND IT WAS ALREADY TAKING ITS TOWL ON ME..
    I HAD SPENT THOUSANDS OF DOLLARS SO I DECIDED TO TRY HIM OUT ALTHOUGH I DID'NT BELIEVE IN IT,
    I WAS JUST TRYING IT OUT OF FRUSTRATION? AND AFTER 2 DAYS, HE SENT ME THE PORTION ND I USED IT AND WAS CURED.
    AND YOU WON'T BELIEVE THAT 5 DIFFERENT DOCTORS CONFIRMED IT THAT AM CURED IT WAS LIKE A DREAM,,I NEVER BELIEVE CANCER HAS CURE..AM NOW A CANCER SURVIVOUR,, AM A LIVING WITNESS...I DON'T KNOW HOW TO THANK THIS MAN. I JUST WANT TO HELP OTHERS IN ANY WAY I CAN..
    I HAVE JOINED MANY FORUMS AND HAVE POSTED THIS TESTIMONIES AND ALOT OF PEOPLE HAS MAIL AND CALLED THIS MAN ON PHONE AND AFTER THEY ALL CONFIRMED CURED. BBC NEWS TOOK IT LIVE AND EVERY EVERYBODY SAW IT AND ITS NOW OUT IN PAPERS AND MAGAZINES THAT THERE IS A HERBAL CURE FOR CANCER AND ALL WITH THE HELP OF THIS MAN,, IF YOU WISH, TAKE IT OR NOT..GOD KNOWS I HAVE TRIED MY BEST. ABOUT 28 PEOPLE HAVE BEEN CONFIRMED CURED THROUGH THE HERBAL CURE OF DR.OSAS. AND THEY SEND MAILS TO THANKS ME AFTER THEY HAVE BEEN CONFIRMED CURED,THIS MAN IS REAL..DON'T MISS THIS CHANCE,,CANCER IS A DEADLY VIRUS,,GET RID OF IT NOW..
    If there is anyone who has similar problem and still looking for a way out, his email still remains
    doctorosasherbalhome@gmail.com or contact his number via +2348112252378 or you can as well add him on whatsapp with same number.

    DOCTOR OSAS CAN AS WELL CURE THE FOLLOWING DISEASE:-

    1. HIV/AIDS

    2. HERPES

    3. CANCER ALL KINDS

    4. ALS

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  88. Medical scientists have discovered a new way to battle cancer by using a man called Dr. OSAS

    MY NAME IS ORIEL MARTINS .I SAW A COMMENT ON CANCER BLOGS AND I WILL LOVE TO TELL EVERY BODY HOW I WAS CURED!,

    AND AM NOW A LIVING WITNESS OF IT AND I THINK ITS A SHAME ON ME IF I DON'T SHARE THIS LOVELY STORY WITH OTHER PEOPLE INFECTED WITH THIS DEADLY VIRUS.
    CANCER HAS BEEN ONGOING IN MY FAMILY, I LOST BOTH PARENTS TO CANCER. AND IT IS SO MUCH PAIN I'VE NOT BEEN ABLE TO GET OVER..
    AS WE ALL KNOW MEDICALLY THERE IS NO SOLUTION TO IT..AND MEDICATION IS VERY EXPENSIVE..SO SOMEONE INTRODUCED ME TO A HERBAL PRACTITIONER IN AFRICA...
    I HAD A JOB THERE TO EXECUTE SO I TOOK TIME TO CHECK OUT ON HIM.I SHOWED HIM ALL MY TESTS AND RESULTS..
    I WAS ALREADY DISORGANIZED WITH CANCER AND IT WAS ALREADY TAKING ITS TOWL ON ME..
    I HAD SPENT THOUSANDS OF DOLLARS SO I DECIDED TO TRY HIM OUT ALTHOUGH I DID'NT BELIEVE IN IT,
    I WAS JUST TRYING IT OUT OF FRUSTRATION? AND AFTER 2 DAYS, HE SENT ME THE PORTION ND I USED IT AND WAS CURED.
    AND YOU WON'T BELIEVE THAT 5 DIFFERENT DOCTORS CONFIRMED IT THAT AM CURED IT WAS LIKE A DREAM,,I NEVER BELIEVE CANCER HAS CURE..AM NOW A CANCER SURVIVOUR,, AM A LIVING WITNESS...I DON'T KNOW HOW TO THANK THIS MAN. I JUST WANT TO HELP OTHERS IN ANY WAY I CAN..
    I HAVE JOINED MANY FORUMS AND HAVE POSTED THIS TESTIMONIES AND ALOT OF PEOPLE HAS MAIL AND CALLED THIS MAN ON PHONE AND AFTER THEY ALL CONFIRMED CURED. BBC NEWS TOOK IT LIVE AND EVERY EVERYBODY SAW IT AND ITS NOW OUT IN PAPERS AND MAGAZINES THAT THERE IS A HERBAL CURE FOR CANCER AND ALL WITH THE HELP OF THIS MAN,, IF YOU WISH, TAKE IT OR NOT..GOD KNOWS I HAVE TRIED MY BEST. ABOUT 28 PEOPLE HAVE BEEN CONFIRMED CURED THROUGH THE HERBAL CURE OF DR.OSAS. AND THEY SEND MAILS TO THANKS ME AFTER THEY HAVE BEEN CONFIRMED CURED,THIS MAN IS REAL..DON'T MISS THIS CHANCE,,CANCER IS A DEADLY VIRUS,,GET RID OF IT NOW..
    If there is anyone who has similar problem and still looking for a way out, his email still remains
    doctorosasherbalhome@gmail.com or contact his number via +2348112252378 or you can as well add him on whatsapp with same number.

    DOCTOR OSAS CAN AS WELL CURE THE FOLLOWING DISEASE:-

    1. HIV/AIDS

    2. HERPES

    3. CANCER ALL KINDS

    4. ALS

    ReplyDelete