WATCH THE VIDEO HERE
My days of watching childhood cancer youtube videos had to be stopped (for my own health), but I'm glad I came across this one because it just goes to show you how many people are watching their children fight for their lives like this.
"I wanna walk!"
I spent a lot of time stretching Ty's legs yesterday. At one point I had him wiggling his toes and trying to push on my hands. Despite his severe weakness, there is some very slight movement and that keeps me hopeful for improvement. I was cheering him on and at one point I said something about walking again someday to encourage him to keep trying. I immediately wanted to take it back because it's just not the right time to get him excited for something that's so far out of reach, but Ty heard it and latched onto what I said.
"Yeah, I wanna walk!" he said.
"Oh good, baby. With that attitude, some day you surely will" Big smile.
"No, I wanna walk now"
"Oh, I think it's too soon. When I said you'll walk again, I meant maybe in a few months or so," trying to be vague.
"No, I wanna walk now. Mama, let me walk. Take me off bed."
"But, you are still so weak baby. I don't want you to get hurt."
"That's okay, Mommy. You can just hold my hand."
Ugh! Heart... spoon... you know what those words felt like. But at the same time I was so proud of his can-do attitude and couldn't stop smiling and staring into his eyes while I struggled for an answer. I decided to take him out of the bed and sat him on my lap. We brought his feet to the floor, it was not easy for me to do this because his entire body is so wobbly, but we managed and he seemed satisfied with that. My big boy. Such a trooper. Lou had walked in while we were in the middle of trying to "walk" and he helped me hold him steady. As always, we were both so happy to see him striving to get better.
The photo I shared of the oxygen chamber the other day was just something I pulled off of a website as an example. Here is the real deal. Ty in his "space suit" as we call it. Tonight I suggested that if anyone asks him what he's gonna be when he grows up, that he should answer "ROCK STAR ASTRONAUT." If anyone can pull that off, Ty can :) I love that. My little rockstar astronaut jamming on the moon and taking the galaxy by storm.
|Ty getting ready to go in|
|Ty inside - Lou took this from the outside looking in|