Finally, tonight he started eating again around 9PM. He ate four pieces of bacon and he told me, "I wub that bacon, Mommy." Anything to get some calories in there. Oh how I wub that little man.
Since he has been so sleepy, I actually got a chance to clean house and get organized a bit today! It was kinda nice. Once the doctor reassured me that sleeping until 10AM and napping for two-three hours is perfectly fine given the medication he is on, I stopped worrying and took advantage of that time by going through piles of recent hospital papers. I wouldn't say it is 100% organized now, but I have nice folders and neat piles to refer to when needed. Yay!
Lou and I are thinking about planning another family vacation around Thanksgiving. Something with a beautiful coastline and sunny skies. We want to do all we can to take advantage of Ty's health and to celebrate everything he has overcome so far. Of course we want some special time with Gavin, too. At the time Ty was diagnosed, Lou and I had just booked a trip to Mexico for our anniversary. Of course we cancelled, but we are thinking maybe that is where we will end up with the boys. I hope so! I am excited about the possibility of any vacation whatsoever. Just a little scared about putting Gavin on a plane again after the horrific display of behavior to and from Disney last December. Oh boy, that was bad.
Tomorrow morning Gavin will be getting evaluated by Early Intervention for speech and behavior. He is two years and five months and he has very few words, so this is long overdue. I know he is totally fine, just slow to speak, but if there are services available that can help him along I am all for it. As for the behavior, I am also in agreement. He has just started to act out more frequently, especially against Ty, and I think it is a combination of being frustrated because he can't quite communicate, and being the sibling of a chronically ill child. He is becoming more and more aware of Ty's situation, and I think it is taking a toll on him. Don't get me wrong, he is wonderful, perfect, and tremendously resilient! I just want to make sure he continues to be okay through all of this. Here's the big goofball wearing my sneakers yesterday. Love him so much! Our Baby GaGa.
I'm gonna call it a night. Lou is also awake and I'm going to try to <gasp> spend some quiet time with him. Hopefully I will sleep well after winding down with a glass of wine and some mindless TV.