Tuesday, August 2, 2011

Having a great time in the Adirondacks


We are having so much fun at the lake.  Since I have very limited access to the internet (I’m going to try and post from the local library) I am going to share a bunch of pictures to help show how things are going so far.

Ty did get sick twice when we arrived at the rental house, but I’ve been giving him medication and it seems to be under control.  He also lost the hair in the back of his head the day we got here as a result of the radiation, so we are finding hair all over the furniture, his clothes, etc., but he doesn’t seem to realize what’s happening.  Lou brought an electric trimmer with him so he tried to create a “fade” and it looks fine.  We are here with Ty’s amazing cousins James (7 years) and Ryan (6 years) – and James allowed Lou to trim his hair, too, in order to show Ty that it’s not a big deal.  Besides, Ty is so handsome, a big bald spot can’t change that J

James has been entertaining Ty non-stop with magic tricks since we arrived.  He has new “Harry Potter” glasses, he made a magic wand out of a nice stick that he painted gold, and Ty thinks it is just the greatest.  Ty even sat through a Harry Potter movie last night with his cousins.  He had no idea what was going on, but I think he just wanted to be hanging out with the big boys.  Here’s Ty holding his magic wand, and James with his new glasses.



The influence of his cousins is going such a long way.  They were coloring, and Ty wanted to sit at the table and “do art” which is something he hasn’t been doing very much of lately because he doesn’t like to get out of his comfort zone much – i.e. the couch.   He is getting so strong, he wrote his name to my utter amazement.  Look!  It isn’t very clear and he started drawing some other scribbles around it, but it’s been almost a year since he’s been able to even draw a line with any sort of coordination… I am so happy he remembers how and he was so proud of himself.

Lou set up a big tent with blow-up chairs for Ty down at the lake, and so far he’s been willing to spend some time there.  It doesn’t last long, but I’ll take what I can get.   Gavin, on the other hand, would spend all day down there in the water if he was allowed.  He has pretty much been running around naked since we got here.   Here’s big G after a long day of running around.

Ty has been practicing his walking every day.  He is getting very strong.  He can take about 50 steps across the room with some support under his shoulders, and then he stands holding onto me for another ten seconds or more.  It’s so wonderful.  Here is standing with me yesterday.

Finally, Ty is sitting at the dinner table independently.  I still can’t get over it.  We have a special harness chair that we bought for him so he could sit at the table at home, but he absolutely hates it and never gets off the couch unless it’s to sit on my lap.  I think it’s the influence of his cousins that had him sitting on his own, eating lunch with Aunt Theresa.  Unbelievable.  Brings tears to my eyes.

I will try to keep you posted every couple of days until we get home.  Thank you so much for loving Ty and for praying for him. 


14 comments:

  1. Awesome! What a great post. I saw the pic on FB and it is amazing how strong Ty is. Thank you for putting my annoying day in perspective.

    Love and prayers from IL,
    xoxoxoxo,
    Maria

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  2. Such great progress!!!!! I am keeping Ty and you all in my prayers as always. I hope he continues to grow stronger and stronger.

    Allie

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  3. I am so so so happy for lil Ty and your family!! I pray all the time for lil Ty and I will continue to do so. I cry "happy" tears when I read your wonderful posts and I pray they will continue and only keep getting better and better, and hope and pray that you will never have to look back!!! hugs, kisses, and prayers

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  4. There is so much beauty in that little boy. My heart simply flies reading your posts. Let the magic of God's country work away on that beautiful angel. I hope you and Lou have some time to have couple time. God's blessings.

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  5. Wow....it is so wonderful that you are all getting this much needed boost. Clearly Ty is benefitting from a relaxing time with the family and the ability to just do kid stuff. I am o thrilled for you all. Keep on going Super Ty!!!!!!!!!

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  6. Cindy & Lou,

    Wow, you guys have been truly having an incredible summer!!!I am so happy for all of you! Ty seems to be doing amazing, I am so happy for you guys.

    Look at everything you guys are doing, football games, beach, vacations, wow I am so jealous! :)

    Cindy, I truly can't imagine what you are going through right now. Everything is going so well and its like you can't help yourself for thinking something bad is going to happen. It's like your waiting for Ty to regress because he is doing so well. I can't imagine what your family is going through.

    Remember this, Ty has beaten the odds everytime thus far. He has proven doctors wrong every time. His cancer is very aggressive but very rare right? So therefor, if the cancer is extremely rare, there is only so much the doctors know. So Ty will beat this, and the doctors will learn more about this form of cancer and the effective treatments through treating your super Ty.

    I truly believe this!!! God has a plan right? Will not except that's gods plan is for something different. Your family and that little bit is truly amazing!!!!

    Enjoy the lake! I think about you guys every day!

    Joy Marielle
    Baltimore,Maryland

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  7. I love this post and so glad you were able to give us an update. I have been checking back here and FB regularly.

    The pics just speak for themselves. Man, had to cry on the one where he was holding on to you and sitting at the table eating! Ty is SO strong and only getting better each day that passes. Yea!!!

    Have a great rest of the week and enjoy the much needed relaxation and rest. Can't wait to hear more once you return.

    Love,
    Jan
    Georgia

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  8. I'm so happy that Ty is doing so well. It truly brings tears to my eyes and as someone else said it really puts things in perspective. He is truly amazing. I'm praying for all of you every day. I hope your vacaton continues to be awesome. You all deserve it so much!

    Ann from Buffalo

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  9. Beautiful pictures. Thank you so much for sharing these precious moments with us.
    Love,
    Taciani

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  10. Ahhhh it has been so good to read all of the ups in your life. It is a little relief, a little breathe let out and an overall good feeling. I know Ty is enjoying Aunt Debi because she always always brings the sunshine and I hope you all continue to enjoy each delicate moment.

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  11. What a joy to see these photos! Ty is looking so strong - I can't believe my eyes. And Gavin looks like a very oversized baby in a diaper. They are so cute and its so great to hear things are going this well. What a blessing to have this healing time with family! I'm in the best mood after this blog post.
    xoxoxoxoxoxoxoxxo

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