Wednesday, April 6, 2011

SUPER NEWS FOR SUPER TY

Ty's MRI today showed significant improvement.  Lou and I just received the news back-to-back from our neurosurgeon and our neurooncologist, and I feel so excited and jumpy it's as if I've had 10 cups of coffee.  I am crying, laughing, biting my nails and practically peeing my pants :)

Ty's tumor shrunk, the compression on his brainstem is significantly reduced, his ventricles look smaller and there has not been any progressive disease or infection found in the rest of his spine.  We were warned prior to the MRI that we should be prepared in case the tumor looks larger.  Since radiation often works slowly and continues to work for up to 3 months post-treatment, we were told that when scans are done this early into radiation therapy, a mass might swell or become necrotic and the imaging can be unclear as to whether or not treatment is working (i.e. the tumor might appear larger when it is, in fact, dying).  The point of today's MRI was simply to rule out any glaring neurological reasons for Ty's continued headpain and nausea.  Not only were we able to rule that out, but we were given an added bonus of being able to report that the scan looks "really good."  Our doctors are pleased and we are beyond relieved. 

Next steps are still a bit uncertain, but we are definitely planning for two more rounds of chemotherapy (21-day cycles each).  Ty will have to have his shunt replaced beforehand, so we don't know what that means as far as how soon we can begin.  We will keep you posted on that.

THANK YOU for your continued prayers and positive energy.  And thank you for reaching out to us with words of support during these difficult times.  We are so blessed.  Keep it coming!!

36 comments:

  1. Best news ever! I am so happy for you and for Ty. All of you deserve this--hard work and lots of prayers have paid off!

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  2. I am at my desk at work crying tears of joy!!!! I am so happy and relieved!! Love you all so much!!!

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  3. That is so fantastic!!! I have been following Ty's story for a little while now and have been amazed at not only your optimistic view but your son's ability to keep fighting after all he's been through. The Dr. was right when he said it was Ty who was doing all the work - making himself better. I am sooo happy for all of you and will continue to keep you in my prayers. God bless all of you! :)

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  4. AMEN!!!
    Flip flops coming your way :)

    We love you soooo much! God bless your decisions and the doctors!

    Positive vibrations your way!

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  5. YAAAAAY!!!!!!!!! So glad to hear this news! SuperTy, keep up the great job! SuperParents, keep the faith!

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  6. Phenomenal news!!
    NEVER underestimate the power of prayer!!

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  7. Wonderful news!! I check up on Ty daily and he continues to amaze!! I don't know you personally, but feel thru this I do. I pray for Ty and all of you daily. You are blessed to have this wonderful angel and he is so blessed to have you for parents! Keep the good news coming!
    Love from the O'Neill Family in NJ

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  8. Ty! You are a cool cool GUY TY! We are all soooooooooo happpppppy!!! <3 <3 <3

    Love <3

    Emily and Owen and my mom and my dad! <3 : )

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  9. Cindy, Lou, Gavin and TY as my kids said we are extremely excited and happy for your wonderful news. Keep it coming!! Prayers and positive energy are amazing and you all deserve this!!! Yesssss score Team TY!!!! Love and prayers!!

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  10. Yahooooooooooo!!! I'm so thrilled. Could this be the beginning of the end???

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  11. Soooo happy for SUPER TY and all of you!
    Lots of prayers still coming!
    Janine

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  12. GOD BLESS HIM!!! IM SO HAPPY. GOD IS AWESOME........ LOTS OF PRAYERS EVERYDAY, FROM EVERYONE!!!!! YOUR BOTH SONS ARE SO HANDSOME!!!!! MAYBE THIS IS THE BEGINNING OF THE END!!!!!!!!!! ALL MY LOVE KATHY BRUNELLE

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  13. I am so thrilled and praising God. I am still continuing to loan out my guardian angel as I know Ty still has a road to travel. Tonight I think your shoes a just a little less uglier - I know still not pleasant but God blessed Ty again today. Prayers will not stop.

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  14. Ty, Cindy and Lou, I have been following your story since January. I sit hear with tears of happiness rolling down my cheeks. This is amazing news. You are all an inspiration. You all deserve this amazing news. Keep it up Ty.

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  15. This IS super news!!! I also have been following your story for a couple of months now & this is music to my ears. I'm currently reading a book and I came across this sentence and immediately thought of Ty, it says.."the Scripture says that God answers the prayers, not of the sick or dying, but of the FRIENDS of the sick or dying". Everybody, lets keep up with all the prayers for our Superman Ty!! We love you buddy!!

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  16. Thats a boy Ty,Beating up that cancer!!! We love you all and we are so happy to hear your great news xoxoxoxoxo

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  17. Booyah!!! Slam Bam that cancer man (TY). So pleased to know that today you cant wipe the smiles off your faces. I am so giddy for you.

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  18. That news just made my day! I am so happy for Ty! He deserves this. I hope he can really start to feel better now and enjoy the nice weather hopefully coming our way soon. The prayers will continue!

    Ann from Buffalo

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  19. This is wonderful news! I check the progress of Ty ever day and was happy to read this good news this morning. Keep strong Ty and keep kick that cancer's hiney!

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  20. I'm so happy about this amazing news! Ty is truly an inspiration.

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  21. It is so amazing how somebody that you do not know can touch you so. I've been praying for healing for Ty and I never doubted God. Psalm 103:3 says, "Who forgiveth all thine iniquities; who healeth all thy disease." I trust God for you and just believe once again that Ty is healed. Mom and Dad I pray for you to continue to be strong. God Bless you and yes your family is blessed.

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  22. Wow! I am wanting to turn cartwheels, jump, scream, etc. upon reading your post!! I don't think that would look too good in an office setting, though! :)

    I am soooo happy to read the progress Ty is making. I hope y'all have a good day today and make lots of memories!

    Jan
    Georgia

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  23. Great news! God is so good!! May He bless Ty with continued fantastic progress!!

    I will be walking in our Relay for Life tomorrow night (Oviedo, FL). Ty will be in my thoughts and prayers as we come together as a community to support Cancer Research.

    Less Cancer, More Birthdays-especially for Ty...

    Michelle
    Cancer Survivor

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  24. Cindy,

    That is incredible news! I am so happy to hear that, he is an amazing little boy with such a strong spirit! I know Ty can beat this!!! Stay strong!!! I cannot wait until Ty can go home to see Gavin! I am always praying for Ty! :)

    Joy Marielle
    Baltimore, MD

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  25. Love you so much!!! Mary and I are thinking about you guys each day. We are so happy to hear the great news! Tell Ty Uncle Pete, and Aunt Mary said to keep getting bedda!

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  26. Incredibly awesome news!! I'm overjoyed for all of you. Hopefully those shoes feel a little lighter today. Lots of love to all of you!

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  27. Dr. Ulrich Friedrichson is a cancer doctor in Germany CURING cancer patients with stemcells. Please watch his video, it can't hurt.


    http://vimeo.com/20849399
    passcode is 1966

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  28. HOORAY!! So happy that you finally get good news from the doctors:)

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  29. Hooray! Can you provide an address for sending some "happiness" your way??? thanks!

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  30. Wonderful...beautiful news! We continue to pray for Ty (and your family) and send positive thoughts your way. I share Ty's story whenever I can, hoping to increase the number of prayers and good thoughts. Thank you for letting us all into your family's life through these blog posts. Your vulnerability and strength humbles me...and encourages my faith! Way to go Ty!!
    Aimee & Amare

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  31. Fantastic news! So happy to read this today!!!

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  32. How amazing!! SO happy to hear such great news!
    Go Ty Go! xoxo The Cotters

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  33. WHAT GREAT NEWS ***SWEET*BABY*BOY***

    I am so happy for you and your family! You will be healed and having a blast by the end of the summer!!

    Love Ya little man,

    Mary E. King, and the rest of the King Family
    GA

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  34. Little Ty...I just watched your daddy on the television running in the New York Marathon. I wanted to look at your blog because you sound like such a special little boy. It brought tears to my eyes to witness your fathers strength and immense desire to find a cure. Keep your chin up little cutie. God has a special plan for you and always know that countless prayers are sent in your behalf daily. Keep your eyes shining...God Bless you and your family!

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