Sunday, February 13, 2011
Ty is doing well
Ty's breathing tube and bandages were removed yesterday. It was a difficult experience for me and Lou to witness his extubation, but such a relief when they wheeled that ventilator out of his room. We were told that Ty was going to have to wake up completely and show signs that he was capable of breathing on his own before they could attempt to remove the tube. When his vitals were stable the day after surgery they stopped his sedatives in order to rouse him. Within a couple of hours he became more and more conscious of his surroundings. His face told me he was absolutely horrified and confused. He couldn't speak, he wanted that tube out of his throat and it appeared as though he was gagging. I just kept apologizing to him, caressing his face and telling him they would remove the tube as soon as possible -- and they did! We had to step out of the room during the actual process, but I watched the whole thing through the window (as any mother would) and it was really quite quick. He did great. His throat is sore and scratchy, but he is talking and really recovering well.
I don't expect to have any definitive updates on next steps until later this week (i.e. whether or not he will be going straight to Boston for radiation or if we will return to his original chemo regimen for a while), but I do know that his surgical team is eager to give him a new VP shunt no later than Friday and we may even be able to go home soon after that. For those who are keeping track, this will be his fourth VP shunt.
It's really too soon to say what's next, but I am hopeful that we will go home soon and get a week or so of quiet time before jumping into the next course of action. We need Ty back in tip-top shape beforehand. Just seeing how well he is doing after his craniotomy convinces me that he will continue to win this incredible battle... he's one amazing little man.