We are anxiously awaiting Ty's next MRI with bated breath. Clinically, Ty continues to do so incredibly well at home I can't help but imagine that the results will continue to baffle the doctors, but I am also a nervous wreck. I have been living day-by-day, trying not to even think about the terminal status of Ty's prognosis because I believe in the power of prayer and positive thinking and I see it working. Even if we do receive news that the disease is progressing (please, God, no!), I am still so grateful for these amazing days... Christmas, New Year's, and simple trips for McDonald's or pizza on a daily basis.
Ty's doctors can't believe it when I tell them how active he remains, and how well he feels. Today he played with his brother on the floor building towers of blocks and talked about how he wants to walk more so he will be ready for the playground when the weather improves. He said he wants me to buy him a ping pong table, too, so I told him he has to keep practicing first - we made a deal. It makes me cry tears of joy, fear and devastation all at the same time. I am so mixed up, I don't know how to feel!! But, I know I am happy that he is happy and feeling good. So, I'll just keep going with that.
The MRI is scheduled for 7:30AM on Wednesday. It is important that we can make it to this appointment because rescheduling can be a nightmare given the fact that he requires anesthesia. This expected snowstorm I keep hearing about better BACK OFF!
Love you all. Good night hugs and kisses from Ty and Cindy. Time to go back to bed :) In the meantime I am sharing this picture from Christmas eve... Ty was standing up for a very long time with very little support from me so he could play at his new workbench. I was just SO HAPPY to see him standing like that! XOXO