Poor Ty. He has become extremely apprehensive. He is simply fed up with being stuck in the ICU, and he started making it known by acting out in anxiety. As you already know, he pulled out his feeding tube a week ago, then a couple of IVs... but that was nothing. Lately he has begun pinching, picking and pulling at everything connected to him... he refuses to wear a shirt, or even keep a diaper on sometimes, and he bites his lips until they bleed.
This morning he pulled out his central line, or PICC, which ran all the way up his arm into his chest. He was warning me that he wanted it off for a couple of days now, and now I realize I need to take my little man more seriously. He has found a way to make himself heard and although it is so painful to watch him react this way, at least he is getting much more attention from the nurses and attendings. Everyone on staff here is on pins and needles wondering how they are going to appease this strong-willed (almost) three-year-old.
We just have to sit back and praise him for his fighting spirit. We look forward to him taking his "I'm sick of this s*it" attitude to a whole new level so he can proclaim himself a survivor after all of this is through. Where there's a will there's a way... and boy is there a will.