Sunday, September 12, 2010

The intimate lollipop celebration that started a couple of nights ago has been taken up a notch.  After he ate his way through the supply that Grandma and pop-pop brought this morning, Stan and Beth replenished the "dum-dum" supply and we are having a full-blown lollipop party that lasts all night.  That's right, all night, thanks to the sugar :)  Ty has been enjoying every type and every flavor imagineable, and we are happy to oblige. He doesn't care to brush his teeth afterward, but as his parents we don't mind if there are a couple of cavities in his future... he's got bigger fish to fry.

He is feeling great and looking so much better day after day. His feeding tube is working fine, and he doesn't seem too agitated by all of his new "hardware". We tried some icepops and cheese today, and it was successful.  His speech is improving with his spirits, and he even got excited enough to get up on his feet today!  We had him standing in his room playing with his new toys from Uncle Billy, Aunt Lorraine, Suzanne and Mike, Pat and Janet (thanks everyone!).  It was wonderful.  Then he had a sponge bath, reading time, Dora, more lollipops, and hopefully bedtime soon. 

Tomorrow Ty has another MRI scheduled. His last scans show that he had some air in his cranium, which could be responsible for causing such significant head pain, especially when he moves around or lifts his head. We are praying, praying, praying that tomorrow's scans will show a decrease in air, which would confirm that his CSF leak has been successfully patched and no more air is getting in. If we find the opposite, more surgery is in Ty's near future and we hate to see that happen given the tremendous strides he's made over the past three days. The last thing we want is additional recovery time with the chance of more complications. We just want to take him home for a while before he needs to begin treatment.

We are so grateful for your continued prayers and positive energy. They truly helps us through this day by day, and helps put the smiles on this amazing face :)

Surrounded by sugar


  1. What a peach! Praying for a good scan tomorrow! Thanks for this great blog. I feel connected. I love you xoxoxxox

  2. We do too!
    Thanks for every post.
    Juliette sleeps with Ty every night and prays for his promt recovery.

    "Always remember that the future comes one day at a time."
    Dean Acheson

  3. Ty is such a CUTIE!!!!! You are all truly, unbelievably AMAZING!!!! So happy to hear about the good news w/ Ty's scan and leaving ICU. Always praying for you guys.
    oxoxo Raena

  4. He is amazing! he is so adorable I cant even take it in the video!